![Sample our Humanities journals, sign in here to start your FREE access for 14 days]({"type":"image" , "src" : "/sda/5939/TOC-Subject-Sample-2021-Humanities.jpg"})
Notes
1. Our intention here is not to make any comparisons between the ways in which historical abuses and forms of oppression have been distributed across vulnerable groups in the history of the United States, but only to acknowledge that there are many histories and vulnerabilities that might contribute to our ethical obligations in research today.
2. Detailed ethical frameworks for conducting participatory research with indigenous communities can be found in the work of Dianne Quigley (Quigley Citation2006), the OCAP (ownership, control, access, and possession) principles that “crystallize themes long advocated by First Nations in Canada” (Schnarch Citation2004), and Caldwell and colleagues' “20 guiding principles of collaborative, participatory, and culturally competent research with AI/ANs” (Caldwell et al. Citation2005). The four ethical goals of community consultation (enhanced protection, enhanced benefits, legitimacy, and shared responsibility) espoused by Dickert and Sugarman, while not specific to indigenous communities, are also an excellent resource (Dickert and Sugarman Citation2005).
3. When the BxCRRB was established, the Bronx was both the poorest urban county in the United States and ranked lowest of New York's 62 counties in terms of health factors and outcomes (Martin del Campo et al. Citation2013).
4. This is a challenge that the BxCRRB has faced since its inception, as it is currently only able to provide community consultations but does not have the regulatory authority to mandate changes to a research protocol. At the moment, it is debating whether it should apply for FederalWide Assurance (FWA) to ensure that its feedback is taken into consideration by researchers (Martin del Campo et al. Citation2013).