“Tell Me So That I Can Help You”: Private Information and Privacy Coordination Issues in the Context of Eldercare

ABSTRACT

In order to provide competent care to aging parents, adult children, and older parents must renegotiate long-standing privacy boundaries that allow caregivers access to parents’ private information. It is reasonable to surmise that caregivers encounter privacy coordination issues when attempting to care for their aging parent. This study utilizes Communication Privacy Management theory to explore what content is considered private and what privacy coordination issues arise in the context of eldercare. Results from 27 in-depth interviews with adult children caring for an aging parent suggest that information concerning parents’ future care, health and well-being, and (in)capabilities were marked private. The findings also detail three disruptions to privacy coordination, including parental caregivers’ ambivalence toward managing parents’ care-related information. Critical implications of the study are discussed, which include how privacy turbulence may be a functional catalyst for boundary recalibration.

Additional information

Funding

This research was supported in part from the Verser Graduate Student Support Fund at the University of Missouri.