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Peer-Reviewed Articles

Psychosocial Care for the Caregivers of Primary Malignant Brain Tumor Patients

, &
Pages 74-95 | Received 16 Mar 2012, Accepted 14 Aug 2012, Published online: 25 Feb 2013
 

Abstract

Despite clinical experience that suggests a high burden of care among relatives of individuals with a primary malignant brain tumor (PMBT), little is known about their actual needs. In this study, the caregivers' personal experiences, quality of life, burden of care, and psychological well-being were examined. Fifty-nine percent did not receive any financial aid for home care, 33% had increased risk for psychosomatic problems, 45% had anxiety, and 33% increased depression levels. The caregiver's quality of life was most strongly affected by the burden of care (p < .001) and the patient's mental state (p < .03). To improve the situation, empathetic professionals and an early implementation of palliative care and social work are required.

Acknowledgments

We thank all patients and families who participated in the study and generously shared their experiences with us.

Notes

Note. MMS ++++ = not measureable; +++ = advanced dementia; ++ = increased dementia; + = normal level.

HADS: +++ = high level of anxiousness, depressed; ++ = increased anxiousness/depression; + = no signs of anxiousness/depression.

BSFC: +++ = at very high risk; ++ = increased risk; + = not at risk.

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