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Global Public Health
An International Journal for Research, Policy and Practice
Volume 17, 2022 - Issue 9
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Articles

‘If not for this support, I would have left the treatment!': Qualitative study exploring the role of social support on medication adherence among pulmonary tuberculosis patients in Western India

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Pages 1945-1957 | Received 25 Jan 2021, Accepted 19 Jul 2021, Published online: 29 Aug 2021
 

ABSTRACT

Social support has been identified as a significant factor in addressing treatment barriers and facilitating treatment adherence. Using a descriptive design, this qualitative study aims at sharing personal feelings and social support-related experiences among pulmonary tuberculosis (TB) patients in Western India. A semi-structured interview guide was designed, and thirty-seven in-depth interviews were conducted. Descriptive thematic analysis was employed for reporting the themes and the results. The participants highlighted diverse social support experiences like empathy, compassion, trust, neglect, tangible aid, strained relationships with in-laws, health provider’s support, strength, and motivation which influences their treatment adherent behaviour. Contrasting differences of social support experiences among adherent and non-adherent TB patients were also reported. The study has important ramifications for developing patient-centric social support intervention strategies, TB policy, and practice. The study has shown, ‘if not for this support’, patients would have left the treatment, and it is mainly because this debilitating disease robs people of their physical, social, economic, psychological, and emotional well-being far beyond the period when treatment is being administered. However, we resonate that addressing social support is not the only way, and TB elimination overall will require an optimal mix of enhanced biomedical, social, economic, and policy interventions.

Acknowledgments

We would like to thank the Bhiwandi city division of the revised national control programme of India and the team of the United Association for Public Health and Education (UAPHE) for assisting us in data collection.

Disclosure statement

No potential conflict of interest was reported by the author(s).

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