Technology for activity participation in older people with mild cognitive impairment or dementia: expert perspectives and a scoping review

Abstract

Purpose

This two-phased study aimed to collate, summarize and characterize – through the lens of an occupation-based, person-centred framework – ongoing research and practice featuring activity participation-supportive digital health technology (DHT) for direct use by older persons with mild cognitive impairment or Alzheimer’s disease and related dementias (PwMCI/ADRD).

Materials and methods

Phase 1: Using scoping review procedures, PubMed, MEDLINE and PsycInfo were searched to identify primary research studies. Phase 2: Semi-structured interviews were completed with MCI/ADRD expert stakeholders identified through publicly available biographies and snowball referral. Thematic analysis was used to identify, synthesize and cross-compare emergent themes from both data sources that were subsequently organized into core facets of the Human Activity Assistive Technology (HAAT) model.

Results

The scoping review resulted in 28 studies, which were primarily feasibility work with small sample sizes. Interviewed experts (N = 17) had 4+ years of MCI/ADRD experience, came from a variety of settings, and held myriad roles. Real world and research-based use of DHTs held some commonalities, particularly around support for social participation and instrumental activities of daily engagement. No DHT for sleep or work/volunteerism were noted in either phase. People with milder MCI/ADRD conditions were most often targeted users. Soft technology strategies facilitating implementation centred on product design (e.g., prompting software, customisability, multimedia/multisensory experiences), instructional methods and technology partner involvement.

Conclusions

This study demonstrates that although DHT supportive of activity participation is being studied and integrated into the lives of PwMCI/ADRD, there are still key opportunities for growth to meet the needs of diverse MCI/ADRD end users.

Implications for rehabilitation

• Mainstream digital health technologies (DHTs) are being utilized by persons with mild cognitive impairment and Alzheimer’s disease and related dementias (PwMCI/ADRD) in everyday life, in limited capacities, to support social participation, leisure, health management and instrumental activities of daily living (IADL).

• Innovative research-based technologies to be used directly by PwMCI/ADRD are under development, particularly to facilitate management of ADL, social participation and IADL in persons with mild-to-moderate forms of cognitive impairment.

• Soft technology strategies to support technology implementation with MCI/ADRD target users include close attention to design of the technology (e.g., customisability, sensory stimulators and prompting features), instructional strategies that promote learning and motivation and involvement of technology partners to facilitate engagement with the technology.

• Future studies will require more robust research designs with transparent reports of participant characteristics and facilitative instructional methods to expand DHT’s potential to account for and better meet the needs of diverse MCI/ADRD communities in real-world contexts.

Keywords:

• Alzheimer’s disease and related dementias
• digital health technology
• activity participation
• scoping review
• older adults
• activities of daily living
• digital divide

Disclosure statement

No potential conflict of interest was reported by the author(s).

Additional information

Funding

This work was supported by the National Institute on Ageing of the National Institutes of Health under award number R21 AG052838-02S1. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.