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Research Article

Transition Program from School to Employment in Youths with Intellectual Disability: Evaluation of the Irish Pilot Study E-IDEAS

Pages 87-100 | Received 06 Oct 2020, Accepted 06 Jun 2021, Published online: 29 Jun 2021

ABSTRACT

Aim

The purpose of this pilot was to evaluate the effectiveness of the E-IDEAS curriculum, specifically designed for workplace inclusion of youths with intellectual disabilities (ID) and aimed to transfer social, communication, independent living and employment skills.

Method

The curriculum was attended by 5 participants, and it was provided concurrently with five different work-placements across a period of six months. Two assessment tools were used to demonstrate the acquisition of such skills and an evidence-base improvement of their quality of life. Pre and post-intervention standardized assessments were also taken for measuring the improvement in quality of life (through the San Martín Scale) and adaptive behavior (through the Vineland-II Adaptive Behavior Scale).

Results

The data collected showed increases in the acquisition of such skills. Evidence of maintenance and generalization were also demonstrated.

Conclusion

Implications for practice and further research are discussed.

Introduction

Employment

Employment is a crucial aspect of adult life as well as the acquisition of skills to access the Labor Market.Citation1,Citation2 Being educated and being employed are human rights, as stated in the UN Convention on the Rights of Persons with Disabilities (UNCRPD), that in Article 27 recognizes “the right of persons with disabilities to work, on an equal basis with others.”Citation3 Employment represents an important opportunity to improve inclusion and positive outcomesCitation4 such as increased cognitive functioning, social interaction opportunities and peer relationships.Citation5,Citation6

Employment and work are beneficial not only for monetary and personal fulfillment but also for the maintenance of health.Citation7 In addition, it promotes social status, self-esteem, financial independence, as well as independent living, physical and psychological health, greater participation and emancipation.Citation8,Citation9 Employment defines a person, his/her identity, gives meaning and purpose in day-to-day activities.Citation10 The World Health OrganizationCitation11 affirms work helps to provide regular activity, which is important for maintaining a healthy lifestyle.Citation12

Low Rates of Employment in People with Intellectual Disability (ID)

Employment studies of educational outcomes of youths with ID show high levels of unemployment and underemploymentCitation13 and the challenge faced by them during the transition from education system to employment still persist.Citation14–16 The current context in Ireland is characterized by mainstream or special schools with a well-meaning but outdated focus on caring for the individual, rather than promoting specific transition programs for acquiring employment skills and an active productive role in society.Citation17 The transition from school to employment is often a difficult time for youths with ID. The lack of employment and independent living skills can interfere with an individuals’ ability to have a paid job and participate in the community and, as a consequence, leads to poorer quality of life outcomes.Citation18

Transition Programmes

Transition programs can include any academic or functional curriculum,Citation19,Citation20 support of job coaching,Citation21 or assistive technology.Citation2,Citation22,Citation23 Researchers continue to cite the need to conduct more studies on transition programs to determine exactly what should constitute good practice,Citation24–27 for the design of learning pathways aimed to facilitate the acquisition of job-related skills and the realization of experiences in real employment settings.Citation28–33

Youth with ID are an under-studied populationCitation34 and although in recent years some studies have been conducted on methodologies that favor inclusion in employment contexts, little research and even less practical case of curriculum have been designed to support the transition to adult life in order to facilitate their employability. Overall, there is a paucity of research addressing specific strategies and methods for transferring employment skills and provide experiences in real work settings, since successful employment contributes to improving the quality of life of individuals with ID.Citation35–37

What Skills are Important to Transfer?

The skills needed for an effective transition to adult life are social, independent living, communication and employment skills for performing work related tasks and being independent.Citation38,Citation39 As studies show, deficits in such skills and professionalism are a significant barrier for obtaining and maintaining employment for individuals with ID.Citation40–42 Having difficulties in understanding social rules in the workplace, the communicative intent of others or being unable to understand facial expressions and tones of voice or the inability to seek help when needed and handling job feedback, often have resulted in obstacles.Citation43–46 Further lack of personal hygiene and inability to understand emotions of others can impact the overall employment experience, as the majority of workplaces require understanding and adherence to social norms.

Methodology for Curriculum Development

The methodology adopted for the development of the Empowerment of youth with Intellectual Disabilities through Education and training for Acquiring Employment Skills (E-IDEAS) curriculum is based on task analysis and chaining. It comes from Applied Behavior Analysis and it is used to break complex tasks into a sequence of smaller steps or actions.Citation47 The understanding of all steps involved for a particular task can assist in identifying any steps that may need extra instruction, and this helps to learn the task in a logical progression. The methodology to design the curriculum was also influenced by projects and programs resulted from a systematic review concerning transition from school to employment, namely: Project SEARCH,Footnotea Project IDEAL,Footnoteb Project STEP,Footnotec Bridges From School to Work Program,Footnoted Oregon’s Youth Transition Program,Footnotee Bridget project,Footnotef Able to Include projectFootnoteg and ATLEC project.Footnoteh These projects and programs are described in .

Table 1. Description of projects and programs influencing the methodology design of E-IDEAS curriculum

Method

Experimental Design

Despite the necessity for research on employment in individuals with ID, there has been little research conducted in the area of assessment of curriculum for transition to adult life. This may be partly due to the lack of appropriate measures (usually consisted of informal measures) available to assess the acquisition of employment skills. For this reason, two different assessment tools have been used at the beginning and at the end of the research including pre/post outcome measures, to evaluate changes in participant’s behavior over time.

Participants

To be part of the research, participants had to meet the following inclusion

criteria: have (i) 18 years or older, (ii) a diagnosis of ID, (iii) mild to moderate disability; (iv) can provide informed consent; (v) live in the community. Exclusion criterium was where an individual had a cognitive impairment that would affect reliable participation or capacity to give informed consent or to use materials (e.g., the assistive technology AVAIL®, tablets, worksheets, etc.) or to actively participate during lessons. Five participants ranging in age from 19 to 22 years were recruited from a vocational training center in the west of Ireland. One participant was diagnosed ID and four with Down Syndrome and a co-occurring mild to moderate ID. Participants’ scores relating to diagnoses were obtained from their case files. All participants had been enrolled in special education services throughout their lives. Participation in the research was voluntary and informed written assent was also obtained from participant’s parents. The Research Ethics Committee at the university and the Ethics Committee from the disability service provider approved this research. Pseudonyms were assigned to all participants to preserve anonymity and confidentiality (See ).

Table 2. Description of participants

Setting

The pilot took place in two locations: the university and a disability service provider, for a total of 4 months (96 hours). The curriculum was delivered by one researcher supported by two undergraduate students from the School of Psychology in the university and one staff member from the disability service provider. The individualized work-placement took place in five different job placements (2 hours for 2 days per week for 3 months) with the support of five job coaches provided by a local organization involved in the research and the support of the education platform AVAIL®. Participants were trained to use this assistive technology through tablets during the classroom activities at the training center and during their work-placement with the support of job coaches.

Curriculum Structure

The E-IDEAS curriculum is composed of two parts with different learning activities, delivered concurrently and representing a unique learning program:

  1. Employment preparation curriculum.

  2. Individualized work-placement.

The Employment preparation curriculum has been developed using a “top/down” driven approach, as it was based on previous research and projects outcomes. While the Individualized work-placement was organized adopting a “bottom/up” driven approach that consists of analyzing the work placement context, identifying employment needs, organizing focus groups and collecting feedback from all the stakeholders involved. Also, a person-centered approach was used for designing job related activities and employment tasks.Citation48

The E-IDEAS curriculum was developed starting from the identification of skills that are significant to overcome barriers for obtaining and maintaining paid employment. These have been further analyzed and organized in four categories of skills: basic, social, independent living and employment, and each one in sub-category with its own specific and detailed skills to be transferred, as reported in .

Table 3. List of skills to be transferred

The curriculum was organized on the base of these categories of skills that resulted in modules. The sub-category under didactical unit including aims, objectives, activities and materials, is detailed in .

Table 4. Modules, didactical units, aims, objectives, activities and materials of E-IDEAS curriculum

The learning assumptions are:

  • The starting point is the learner.

  • The content of lesson is drawn from the daily experiences of learners.

  • The teacher is also a learner whose role is to facilitate a participatory process.

  • What is learned and how it is learned can teach a sense of self-confidence, the ability to think critically, the courage to confront difficult communication situations, and skills to solve daily problems individually and collectively.

  • A variety of materials and tools help learners participate more actively in class.

  • Learning should be fun.

Teaching Activities Adopted

These were as follows:

  • Individual reflections: stimulated by questions and answers for examining participant’s personal experiences, beliefs and needs.

  • Group discussions: provided the opportunity to share perceptions, feelings and experiences.

  • Group activities: used to guided participants to understand, practice and solve problems.

  • Role-play: provided a friendly setting to practice skills needed.

  • Team-working: focused on strengthening participants oral communication skills, sense of collaboration, problem solving aptitude, conflict resolution and to make decisions.

  • Practical cases and exercises: participants were required to complete ad-hoc exercises based on specific real-life situations or imagined scenarios.

  • Slides, photos and videos: used to provide simple information to support participants’ learning and understanding.

  • Non-structured interviews: used to collect participants feedback about their work placement experiences.

Individualized Work-placement

The individualized work-placements took place within the community. One participant was placed in a hair salon, one was placed in a cafeteria, one in a restaurant, one in a supermarket and one in a youth organization. The job-related tasks were performed with the support of job coaches. Examples of activities performed were folding the towels for the barbers, pricing different products using the pricing gun, cleaning counters, tables and chairs, emptying and filling the dishwasher, recycling, organizing the drawers. Many of these activities were previously introduced and explained to participants through the AVAIL platform and this helped them to understand the different steps required to successfully perform the tasks.

Materials and Tools Used

Materials and tools used were as follows:

  • Power point presentations: helped participants to stay focused on each argument presented during sessions and provided a visive support to better understand the content delivered. These were developed using an Easy-to-Read style.

  • Photos/images: used as text alternatives for identifying learning contents and for helping participants to improve the accessibility of topic presented.

  • Videos: used to add details or focus on the arguments presented in order to support the learning process.

  • Worksheets: used for exercises and practical cases.

  • Maps and timetables: used to help participants to orientate in the community as well as for familiarizing with traveling resources.

  • Tablets: used with applications appropriate to the level of ability of participants. These have enhanced engagement in learning as well as increased participants independence.

  • AVAIL® platform: assistive technology used through Tablets. It is an educational platform that utilizes the principles of Applied Behavior Analysis (ABA), Audio/Video modeling and other prompting for helping individuals to acquire skills that are critical to their success and to live independently. It utilizes key strategies, task analysis, chaining, prompt-fading and positive reinforcement.Citation49 The prompts used were composed by instructions and demonstrations of job-related tasks to increase the likelihood that individuals will make the right response. For example, the audio/video modeling was used to show to participants how to clean tables, to use a dishwasher, to introduce oneself and other tasks addressed to employment skills acquisition.Citation50

Data Analysis

An inductive approach was taken to data analysis.Citation51 To assess the efficacy of the curriculum to transfer social, communication, independent living and employment skills, visual and qualitative analyses were utilized. Changes in scores obtained from pre and post-intervention collected through indirect measures (San Martín and Vineland-II scales) were analyzed to assess a real participants’ improvement of quality of life and an effective acquisition of skills. The effect sizes of intervention were interpreted using informal interviews, observations and analysis of the scores obtained through the scales before and after the curriculum delivery. Also, work placements experiences were observed and further analyzed and discussed with job-coaches that supported participants. The small number of participants has not allowed a significative statistical or quantitative analysis of data collected.

Dependent Measures

The skills measures were selected to assess participants before and after the curriculum. The dependent measures for the intervention included evaluations on direct observational measure, scores from the San Martín ScaleCitation52 and Vineland-II Adaptive Behavior Scales – 2nd edition.Citation53 Data were also collected regarding participant’s participation in work experience throughout the study. Also, job coaches that supported participants during the work placements completed a report on the job-related tasks performed and were interviewed about their experience with participants.

Direct Measures

Observations of participants were conducted across different settings. For example, in training rooms during class times, canteen during lunch and break, kitchen and places for practical activities at the training center. During the research, specific exercises and tests were used to assess the acquisition of knowledge and awareness on different behaviors across the four skills domains outlined in the curriculum.

Indirect Measures

The San Martín Scale

The scale is a tool to assess the quality of life of people with significant disabilities taking into account psychometric characteristics to ensure validity and reliability. The domains of quality of life are emotional well-being, interpersonal relationships, material well-being, personal development, physical well-being, self-determination, social inclusion and social rights. The tool consists of 95 items to be answered by respondents through a Likert-type 4-point scale. Each domain yields a total raw score which is converted into a standard score. Previous studies on the validity of the San Martín Scale demonstrated that the eight quality of life domains assessed on the scale are reliable (Cronbach’s alpha ranging, from .821 to .933).Citation52

The Vineland-II Adaptive Behavior Scale (VABS)

The VABS is an informant-based measure designed to assess adaptive behavior and acquisition of independent living skills. It consists of four sub domains including communication, daily living skills, socialization, and motor skills (this skills domain is used only for children 6 years of age and younger, as it is only valid for this age group). Respondents answer on a Likert-type 3-point scale to 307 items. Each domain yields a total raw score which is converted into a standard score then summed and converted into an overall adaptive behavior composite score. The reliability of the Vineland-II was evaluated through previous studies.Citation54

Results

Findings

All five participants were evaluated using pre and posttesting in order to provide a social and qualitative validity of Intervention. Outcomes were evaluated using questionnaires administered directly to participants, families, care givers and job coaches. The scales used allowed for the collection of data to assess the improvement of participants’ quality of life and acquisition of skills. A summary of results deviation obtained through tests before and after the intervention for each participant is presented in .

Figure 1. Scores obtained in the pre and post-test using the San Martín scale.

Figure 1. Scores obtained in the pre and post-test using the San Martín scale.

Figure 2. Scores obtained in the pre and post-test using the Vineland-II scale.

Figure 2. Scores obtained in the pre and post-test using the Vineland-II scale.

Across all curricular areas, including social, communication, independent living and employment skills, participants demonstrated they acquired such skills correctly following the implementation of teaching and training activities. This improvement occurred when the intervention was implemented and the work placements started, suggesting that the curriculum was responsible for the improvements in job related tasks performed by participants. Results show that young adults who attended the E-IDEAS curriculum have higher scores at posttest. The San Martín and Vineland-II scales, which were the primary outcome measure of the study, showed an increase in the achievement of independent living and employment skills.

Although there was no statistical analysis of scores, the posttest results were greater than baseline and are indicative of empirical and clinical significance. The scores obtained in pre and posttest using the San Martín scale show that all participants increased the scores comparing the results of pre and posttest (), and improvements were observed in the domains of emotional well-being, interpersonal relationships and self-determination. Comparing the pre and posttest results of Vineland-II scale all participants increased the scores () related to their adaptive behavior. The domains where they have most improved were communication, daily living skills and socialization. In addition, job coaches and care givers reported that social, communication, independent living and employment skills improved following the curriculum, demonstrating a significant improvement in overall social competencies. These included peer and adults-related social skills and independent living skills, which have led to more appropriate social behaviors in employment settings, and improved personal competence in managing daily activities. Based on job coaches feedback collected through reports and interviews, the main employment skills acquired by participants consisted of communication and interaction skills with colleagues, timekeeping, cleanliness and independence.

The 3-month follow-up probes provided further information about the skills acquired and additional work experiences were carried out by some participants after the intervention. Following completion of the curriculum and work placement, F. was successful in gaining employment in a restaurant four days per week. Mt. obtained a paid job at a supermarket and for M. the work-placement period was extended for two additional months. The other two participants (K. and G.) were appointed for job interviews at a cafeteria and a restaurant.

After completion of the pilot study a measure of social validity was undertaken by the authors with each participant through a questionnaire to rate the participant’s satisfaction with transition program. The first researcher completed a social validity interview with participants during and after the work placements and following completion of the curriculum. Another social validity questionnaire was sent out to families for assessing parent’s satisfaction with the intervention and the progress they felt their son/daughter made in social, communication, independent living and employment skills.

Discussion

Findings

Findings from the current study support the effectiveness of the E-IDEAS curriculum, demonstrating that it may be used for designing training intervention in vocational rehabilitation centers aimed to transfer social, communication, independent living and employment skills necessary for workplace inclusion. These show an improvement in the acquisition of skills following the implementation of the intervention for all five participants. All participants showed evidence of responding positively to classroom’s activities and during the work placement. Maintenance of gains following 3 months post intervention were observed. The tests scores obtained after the intervention increased on some measures of social skills and quality of life.

Concerning the social validity, parents were asked to describe any differences they noticed in the behavior of their son/daughter. One respondent described the intervention as helping her son have an increased communication and to be more assertive. Two parents stated that their daughter helped out more in the kitchen. One parent highlighted that her daughter was more responsive and confident with others. All parents felt their son/daughter enjoyed the intervention. The staff members involved in the intervention also completed a social validity questionnaire and reported that the curriculum and work placement were both acceptable and effective in improving the skills of participants.

These findings support the potential benefit, as well as the feasibility, of implementing this transition program, confirming that a specific preparatory intervention provided simultaneously with a work placement may enhance competencies acquisition and the possibility to find a job. The results suggest that the E-IDEAS curriculum offers promising results as a training protocol to enhance skills for workplace inclusion.

Limitations

While this pilot utilized a methodical approach to evaluate empirically the efficacy of the curriculum, potential sources of bias exist. These are due to the lack of specific tools for measuring the acquisition of employment skills by persons with ID as well as for analyzing specific achievements. The lack of testing for generalization within the workplace environment to ascertain true social fit is another limitation. Generalization of target social skills was measured in naturalistic settings throughout the university and training center. Further research might examine the transfer and generalization of targets skills in work environments and provide additional evidence to support the social validity of the curriculum.

Future Research

Future research could explore the effects of the intervention on larger group samples. Research could explore the use of group designs, as the small sample size included in this study might reflect an issue. Further study could examine the effects of this curriculum (developed in Ireland) in other countries, as the topography of skills useful to obtain and maintain a job and social norms can vary across cultures and locations. What is needed is to carefully examine and replicate features of the curriculum that builds capacities for transition to adult life and provide empirical and research-based programs for the acquisition of job-related skills.

Conclusion

This pilot provides an important foundation for future research in this area. Since there is not much empirical research focusing on transition programs, including the availability of curricula showing evidence of the achievements in obtaining meaningful and paid jobs. The research carried out delivers useful elements to replicate, adapt or re-design transition programs grounded on evidence-based research and real work experiences. To conclude, the E-IDEAS curriculum can be used by care givers, educators and teachers to enable the implementation of a transition program that simultaneously provides an employment preparation and individualized work-placement which can successfully support the acquisition of skills for work inclusion and the obtaining of a paid job.

Ethical approval

All procedures performed in studies involving human participants were in accordance with the ethical standards of National University of Ireland Galway and with the 1964 Helsinki declaration and its later amendments or comparable ethical standards.

Informed consent

Informed consent was obtained from all individual participants included in the study.

Disclosure statement

The authors declare that they have no conflict of interest.

Additional information

Funding

This research was supported by funding from the charity RESPECT and the People Programme (Marie Curie Actions) of the European Union’s Seventh Framework Programme [FP7/2007-2013] under REA grant agreement no. [PCOFUND-GA-2013-608728].

Notes

References