Exploring the preliminary outcomes of a sibling leadership program for adult siblings of individuals with intellectual and developmental disabilities

Abstract

Although adult siblings often fulfill caregiving roles for their brothers and sisters with intellectual and developmental disabilities (IDD) and report needing support, little intervention research has been conducted with adult siblings of individuals with IDD. The purpose of this pilot study was to examine the preliminary outcomes of a leadership and support program for adult siblings of individuals with IDD. Pre, post and follow-up survey data indicated that the program correlated with increased sibling connectedness and empowerment. Additionally, the program met sibling expectations with respect to: connectedness, empowerment, and resources. Siblings were highly satisfied with the program. Also, siblings wanted to impact systemic change, especially with respect to the adult service delivery system. Implications for research and practice are discussed.

Keywords:

• sibling
• disability
• program
• leadership
• empowerment

Additional information

Funding

This work was supported by Pennsylvania Developmental Disabilities Council.