Should We Trust Patient-Reported Outcomes?

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This article refers to:

What Justifies the Allocation of Health Care Resources to Patients with Disorders of Consciousness?

Notes

1 There are good reasons to include loved-ones and caregivers in both case conceptualization and treatment planning. The patient’s experience and/or insight can be affected in predictable ways directly relevant to diagnosis and treatment. Such circumstances only reinforce the value of PRO which, like all health data, must be interpreted in context.

2 To cite only two: Tavalaro, J., and Tayson, R. 1997. Look up for yes. New York, NY: Kodansha America Inc.; and Bauby, J.-D. 1997. The diving bell and the butterfly. Ed. E. R. Laffont.

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Funding

This publication was made possible through the support of a grant from the John Templeton Foundation. The opinions expressed in this publication are those of the author and do not necessarily reflect the views of the John Templeton Foundation.