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Coronavirus

YouTube and COVID-19 vaccines: A mini scoping review

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Article: 2202091 | Received 31 Dec 2022, Accepted 27 Mar 2023, Published online: 27 Apr 2023

ABSTRACT

YouTube is a highly popular social media platform capable of widespread information dissemination about COVID-19 vaccines. The aim of this mini scoping review was to summarize the content, quality, and methodology of studies that analyze YouTube videos related to COVID-19 vaccines. COVIDENCE was used to screen search results based on inclusion and exclusion criteria. PRISMA was used for data organization, and the final list of 9 articles used in the mini review were summarized and synthesized. YouTube videos included in each study, total number of cumulative views, results, and limitations were described. Overall, most of the videos were uploaded by television and internet news media and healthcare professionals. A variety of coding schemas were used in the studies. Videos with misleading, inaccurate, or anti-vaccination sentiment were more often uploaded by consumers. Officials seeking to encourage vaccination may utilize YouTube for widespread reach and to debunk misinformation and disinformation.

This article is part of the following collections:
The landscape of Covid-19 vaccines: development, deployment, acceptance

Introduction

COVID-19 vaccination is a powerful countermeasure, touted as essential in mitigating the devastating effects of SARS-CoV-2.Citation1 COVID-19 vaccine development and testing for efficacy were acceleratedCitation2 with emergency use authorization by the United States (US) Food and Drug Administration (FDA) in December 2020.Citation3 At the current time, there are four approved vaccines available in the US.Citation4 Two are mRNA-based vaccines, one is a protein subunit vaccine, and the other is a viral vector vaccine.Citation3 The US Centers for Disease Control and Prevention (CDC) highly recommends staying current on vaccine uptakeCitation5 including receipt of boosters at pertinent times for appropriately aged individuals and those with comorbidities. COVID-19 vaccine uptake has been found to decrease the risk of contracting COVID-19, and in instances where vaccinated individuals do in fact get infected with the virus, it has been shown to significantly reduce severity of illness,Citation6,Citation7 risk of hospitalization,Citation8–10 and mortality.Citation5,Citation11

There has been a steady increase in COVID-19 vaccination,Citation12 improved confidence in vaccine efficacy, and concomitant benefits.Citation13 However, vaccine hesitancy was prevalent during the height of the pandemic, throughout both the early stages of vaccination development and the eventual rollout, both worldwideCitation14 and in the US specifically.Citation15 In fact, in January 2021, nearly 62% of those who had not yet been vaccinated expressed a reluctance to receive the vaccineCitation16

Multiple reasons have been posited for vaccine hesitancy, including the proliferation of misinformation, disinformation,Citation17–21 as well as difficult-to-understand information about adverse events on the news,Citation22,Citation23 and on social media.Citation24–26 Issues of mistrustCitation27 and equitable access further exacerbated skepticism and reluctance.Citation28

The emergence of the COVID-19 pandemic was met by fear, lack of preparedness, confusion, and uncertainty.Citation29,Citation30 This unprecedented experience contributed to the need to accelerate vaccine production, a process that many were unaccustomed to.Citation3 This, coupled with an ‘infodemic’Citation31–33 of information overloadCitation34,Citation35 led consumers to seek information to make informed decisions for themselves and their loved ones.

YouTube is a highly popular source of information, which is widely accessible due to delivery via video content. More than 80% of Americans indicate that they use YouTube as a source of news, according to survey results.Citation36 Current estimates suggest that YouTube is an important source of news for Americans.Citation37 Given the free nature of the medium, there is a likelihood for individuals to upload content as well as for accessing information.

Seeking information via YouTube, eliminates literacy issues as a barrier, and consumers are drawn to hear about experiences from each other. Nonetheless, without rigorous oversight, there is the potential for variability in the comprehensiveness, usefulness, and quality of content. In fact, in May 2020, YouTube outlined a misinformation policy to combat the spread of information on COVID-19 vaccines that was counter to evidence-based, public health knowledge.Citation38 Given the popularity of YouTube and the uptick in public health research based on the platform, the purpose of this mini scoping review is to describe the content, quality, and methodology of YouTube videos related to COVID-19 vaccines. The mini scoping review format was chosen as the aim is to summarize a specific subfield. The review methodology used the 5-step process recommended by Arksey and O’MalleyCitation39 that were: Stage 1: identifying the research question; Stage 2: identifying relevant studies; Stage 3: study selection; Stage 4: charting the data; Stage 5: collating, summarizing and reporting the results.

The research question studied was as follows: What is the content, quality, and methodology of studies analyzing YouTube videos related to COVID-19 vaccines? The review aims were:

  • to identify existing evaluations of YouTube videos with respect to COVID-19 vaccines

  • to synthesize the results of evaluation studies of YouTube videos on COVID-19 vaccines in terms of study design, upload source, view counts, coding methodology, definition of what constitutes misinformation.

Methods

Database search and screening

The first search for articles was conducted using the Columbia University Library system (CLIO), using the search terms “YouTube AND (vaccine OR Vaccination) AND COVID-19.” Search criteria excluded newspaper articles, including journal articles only, published in the English language between 1/1/2020 and 10/28/2022. The search returned 301 articles, which were imported into COVIDENCE, a data screening and extraction software. A second search was conducted on October 29, 2022, on the National Library of Medicine website using the search terms YouTube and (covid-19 or coronavirus) and vaccine” which yielded 49 results that were imported into COVIDENCE. Lastly, a third search was conducted by the second author on the National Library of Medicine website on December 2, 2022, using the search terms, “COVID-19 and vaccine and YouTube; and “coronavirus and vaccine and YouTube which returned 22 and 43 results, respectively. Forty-three results returned included the first set of 22 and were imported into COVIDENCE. A total of 393 articles were imported into COVIDENCE which automatically removed 40 duplicates, leaving 353 studies for screening against title and abstract. At this stage, 339 studies were excluded and further full-text review was conducted for 14 studies using inclusion and exclusion criteria outlined below with the final result of 9 articles included in the analysis of the scoping review. The five studies that were excluded were for misaligned outcome measures (n = 4), misaligned interventions (n = 1). The entire search was then repeated using the search terms “YouTube AND immunization AND COVID-19” and no additional studies were identified. The entire review from screening to final inclusion was conducted by two reviewers. Discussion between the authors resolved any conflicts in votes. The authors consulted with each other on the methodology, search terms, and inclusion and exclusion criteria. depicts the data flow.

Figure 1. PRISMA diagram of data flow.

Figure 1. PRISMA diagram of data flow.

Inclusion criteria

Criteria for inclusion in the mini-scoping review were English language journal articles published between 2020 and 2022 that mentioned key search terms YouTube and (COVID-19 or coronavirus) and (vaccine or vaccination).

Exclusion criteria

Search results that referred to social media other than YouTube, such as Twitter, Facebook, Instagram; non-English language journals.

Analysis

COVIDENCE software was used to extract pertinent information about the articles and exported to an Excel spreadsheet. The study design, whether the study was to the general population or to a specific subset, total number of videos included in the analysis, total cumulative views, inclusion and exclusion criteria, and the results were all tabulated. Additionally, limitations and implications are summarized in .

Table 1. Summary of Articles Included in Mini Scoping Review.

Ethics approval

As per the policy at William Paterson University, studies not involving human subjects (such as this) are not subject to review by the Institutional Review Board.

Results

Inclusion/Exclusion of studies

Eight of the nine studies that met the final inclusion criteria for this review were cross-sectional and descriptive. One study used a successive sampling with replacement method. Eight of the nine studies included English language videos, while one included Spanish language videos. Upload source was documented in all nine videos and seven categorized videos as being from health worker/medical professionals, television/internet/entertainment news-based sources, consumer/patient//individual users. Two of the studies added categories for government/for-profit organizations, education/university channels and newspapers.Citation40,Citation41 Cumulative view counts reported for the videos included in 8 of 9 the studies ranged from 4.6 million to 169.4 million. One studyCitation42 reported a range of view counts from 32 to 51,018.

Characteristics of studies

Of the nine studies, six did not limit the scope of the search on YouTube to a particular demographic or condition. Two of the studies specifically looked at COVID-19 vaccines and pregnancy,Citation43,Citation44 and one study analyzed videos related to COVID-19 vaccines and rheumatic disease.Citation42 Content elements were coded as binary variables (YES/NO), depending on whether they were mentioned or not mentioned. The determination of which content elements to code were based on a Centers for Disease Control and Prevention (CDC) fact sheet in three of the studies.Citation43,Citation45,Citation46 Two studies developed additional coding criteria based on statements or guidelines from reputable organizations such as the American College of Obstetrics and Gynecology (ACOG) and the Society for Maternal and Fetal Medicine (SMFM)Citation43 World Health Organization (WHO) or CDC.Citation40 Two of the studies created study-specific parameters based on literature on the topic.Citation42,Citation44

Quality and accuracy of information in studies

Four of the studies used DISCERN to rate the quality and reliability of the information provided.

DISCERN is a 16-point rating scale with three sections developed to evaluate the quality of web-based written material providing consumer health information related to clinical treatment choices.Citation47

One study used a modified DISCERN scale. Other scales used to rate quality were the Global Quality Scale (3 studies), JAMA criteria (1) modified JAMA (1), Health on the Net Foundation Code (1). In one study,Citation40 an unvalidated COVID Vaccine Score (CVS) was developed based on information obtained from prior published literature. Another studyCitation48 grouped videos as 1) having a positive tone if a clear recommendation was made for vaccines; 2) having a negative tone if arguments were presented against vaccination and 3) ambiguous if both positive and negative statements were made and 4) neutral if no statements made for or against vaccines.

Summary of individual studies

Two studies examined YouTube videos related to COVID-19 vaccines and pregnancy. The first studyCitation43 used a CDC fact sheet to code the content of 50 of the most widely viewed English videos, discussing COVID-19 vaccines in relation to pregnancy in early 2021, during the initial phase of the vaccine rollouts. The most common upload source of the videos was television-internet-based news (44%) and medical professionals (40%). Although consumers uploaded only 6% of the videos in the study, they were most likely to express anti-vaccine sentiment, fear or distrust of vaccines. In contrast, medical professionals more frequently mentioned the low likelihood of vaccines causing harm while breastfeeding.

The second study related to COVID-19 vaccines and pregnancyCitation44 analyzed 45 English language videos on YouTube pertaining to COVID-19 vaccines and pregnancy. Content evaluation categories ranged from broad topic areas covering COVID-19 vaccination in general to its specific effects on breastfeeding and pregnancy outcomes, miscarriage, maternal mortality, and fetus anomaly. A majority (84%) of the videos were presented by health-care workers, with all but 2 recommending vaccination. In addition to describing the characteristics such as upload source and topics mentioned, the videos were rated using a Video Power Index (VPI), DISCERN and the Global Quality Scale (GQS). VPI computed a ratio of likes in relation to overall likes and dislikes. The mean quality indices were lowest for videos uploaded by network news sources.

One of the nine studiesCitation42 evaluated the quality and reliability of videos discussing COVID-19 and rheumatic disease, using GQS and DISCERN. Analysis revealed two-thirds of the 56 videos included in the study to be of high quality. Eighty-five percent of the high-quality videos were uploaded by a society or organization. The quality of the videos may have been affected by YouTube’s misinformation policy implemented in 2020.Citation38 In the early stages of the pandemic, in April 2020, researchersCitation45 studied the implications for uptake of vaccines by evaluating 100 of the most-widely viewed (indicated by filtering the number of views) videos discussing the vaccine development process. Nearly 75% of videos were uploaded by news sources. Consumers uploaded 16% of videos, but accumulated over 25% of views. Professionals uploaded a mere 11% of videos. Vaccine manufacturing process and the length of time required for a ready vaccine were the most frequently mentioned topics. No significant difference was found in the content uploaded by the three different sources.

Li et al.Citation40 determined the accuracy, usability and quality of the most widely viewed YouTube videos on COVID-19 vaccination using a modified DISCERN and modified JAMA scale. Additionally, a COVID Vaccine Scale score was developed using WHO and CDC guidelines. Videos (n = 122) were scored 1 if they were factually correct based on the guidelines, 0.5 if they were ambiguous and 0 if they contained one or more nonfactual statements.

The majority of videos were uploaded by network news, followed by health professionals.

Although 89.3% of the videos were deemed factual, the 11% that were nonfactual garnered nearly 18 million views.

Hernandez-Garcia and Gimenez-JulvezCitation48 evaluated 118 Spanish language videos discussing COVID-19 vaccines. Besides studying characteristics of videos such as country of origin and upload source, the tone of messages indicating attitude toward vaccination was also analyzed. Of the Spanish language videos, 63.6% originated in Mexico and USA; 57.6% were created by media. Videos uploaded by health professionals garnered a significantly higher number of views than those by the media and also showed a more positive tone. Positive messages were identified in 53.6% of videos with 53.1% of total views. The most discussed topics included target groups for vaccinations and safety of vaccinations.

Chan et al.Citation49 evaluated the reliability and quality of information on COVID-19 vaccination in 48 YouTube videos. Vaccine trials, side effects, vaccine science and efficacy were the most often discussed topics; Continued public health measures were promoted by 21% of the videos with only 2 videos deemed to make non-factual claims. All but one scored either low or moderate in adherence to HCON. Professionals scored higher than independent users on DISCERN, although medical professionals score the highest overall.

Basch et al.Citation46 conducted a successive sampling with replacement study to identify the source and characteristics of the 100 most widely viewed videos on COVID-19 vaccines. Two samples were obtained from a YouTube search in July and December of 2020 with 29 from the July sample retained in December. There was a significant increase in number and cumulative views from July to December, 2020 of videos addressing fear, concerns with vaccine effectiveness and adverse reactions; More than 80% of the videos were uploaded by television or internet news, and fewer than 10% from consumer, professionals, or entertainment television; most reviewed topics were vaccine development process and fast-tracking in that order.

Marwah et al.Citation41 studied the quality, accuracy, and reliability of YouTube videos on COVID-19 vaccines. Results of an initial search on “coronavirus” and “COVID-19” were sorted by view count and 150 of the most widely viewed videos were selected for further analysis. A qualitative analysis of closed-caption text from the 150 videos for mention of the word ‘vaccine,’ yielded 32 videos. DISCERN, JAMA benchmark criteria and the Global Quality Scale (GQS) were utilized to rate the 32 videos. Twenty-nine of the videos were deemed useful and three misleading; The average quality score was 3.63 of 5 (standard deviation [SD] = 0.83), the average accuracy score 1.28 of 4 (SD = 0.81), and the average reliability score was 3.69 of 5 (SD = 1.12).

Discussion

The findings of this mini-scoping review indicate that there are relatively few studies evaluating YouTube videos related to COVID-19 vaccines and vaccination. Study methodology varies across studies in several aspects, as highlighted in this review. First, while filtering by view count is commonplace in YouTube studies, several studies included in this review do not appear to seek out the most commonly viewed videos. View counts, especially as they pertain to COVID-19 content are subject to algorithms put in place by YouTube. Filtering by view count does not provide information on who is viewing the video, the percent of the video that was observed, what information is retained, and how content may influence behavior. Nonetheless, the view count is commonly being used as a metric for popularity, which infers a level of impact.

As noted in a synthesis of literature on vaccine hesitancy in the media (both traditional and social media), studies of this nature are often devoid of a theoretical framework.Citation50 In concert, another review of social media studies in general found that the overwhelming number of studies included in the review did not include a theoretical framework.Citation51 The findings of this mini-review echo these sentiments in that the included papers were not linked to health education or health communication theories. Use of theories can provide an in-depth understanding of concepts or issues revealed through analysis of social media. Further, use of theoretical frameworks can provide a greater opportunity for evidence-based reflection.Citation51 A search of the literature did not reveal any systematic reviews on COVID-19 vaccinations and YouTube, nor did we identify review studies on vaccination in general. One review examined general healthcare information.Citation52 Findings were similar to those in this mini scoping review in that the designs tended to rely on content analysis and that YouTube videos contained anecdotal information that was generally unreliable and that professionally created videos were more reliable.Citation52 While each study in this review sets out to describe content in one or more aspects, there is a gap in the literature in terms of evaluating videos related to COVID-19 vaccines for accuracy. In particular, this is concerning due to the large number of videos created by nonprofessionals. YouTube has an algorithm that prioritizes COVID-19 videos that are the most reliable.

As a result, almost all studies that perform searches on YouTube likely overestimate quality. Since content on YouTube persists regardless of knowledge gains, it is difficult to assess how much of the information was aligned with scientific knowledge at the time of creation. With greater efforts on behalf of YouTube Health to create valid and reliable health content, there is greater potential for clarity in trusted sources and/or validated information.

Moreover, most studies conducted on YouTube have a cross-sectional design, which means that results are time-bound, limiting temporal generalizability. This is especially true for a medium like YouTube which is dynamic, with content and number of views changing almost daily, if not hourly. Another significant limitation in YouTube analysis studies is the sheer volume of videos that searches can return. Researchers then pick arbitrary cutoff limits for the number of videos included. These limitations are seemingly universal for this type of research.

This mini scoping review is also limited. Despite researchers’ efforts, it is possible that papers may be excluded from the review due to the database in which they are stored. The methods relied on COVIDENCE systematic review software, use of different software may reveal different content, which is why we supplemented our search with manual techniques. Furthermore, the inclusion of papers written in English only does not adequately represent the breadth of literature on a platform that is accessed worldwide. Despite these limitations, the review results have implications for public health practitioners in terms of creating evidence-based, accurate, literacy-controlled video content that is far-reaching, especially to underserved areas and communities.

This mini-scoping review had narrow search criteria on a niche topic and therefore included only those studies that evaluated content of YouTube videos related COVID-19 vaccines. Studies have been conducted in which the characteristics of YouTube videos disseminated on other social media platforms such as Twitter were examined.Citation53 Future scoping reviews can focus on such multi-platform YouTube video distribution, differences in methodology and assessment of accuracy by vaccine type, and evaluate changes over time.

Author’s contribution

SN and CHB conceptualized the study. SN conducted the search. SN and CHB conducted screening, data extraction, drafted and edited the manuscript.

Disclosure statement

No potential conflict of interest was reported by the author(s).

Additional information

Funding

The author(s) reported there is no funding associated with the work featured in this article.

References