Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

Heidi A. Hamann MS Department of Psychology, University of Utah, 390 South 1530 East, Room 502, Salt Lake City, UT, 84112-0251, USA

Robert T. Croyle PhD Behavioral Research, National Cancer Institute, Bethesda, MD, USA

Ken R. Smith PhD Department of Family and Consumer Studies, University of Utah, USA

Barbara N. M. Quan BS Department of Psychology, University of Utah, USA

Kathryn L. McCance PhD RN College of Nursing, University of Utah, USA

Jeffrey R. Botkin MD MPH Pediatrics and Medical Ethics, School of Medicine, University of Utah, USA

Abstract

This article explores interest in a support group among 218 individuals tested for a mutation in BRCA1, a breast and ovarian cancer susceptibility gene. When queried 4 to 7 months after receiving the BRCA1 test results, approximately one-fourth of the participants expressed interest in a hypothetical support group. A mixed-carrier status and multiple family group was preferred over a carrier-only and single family group. The information about interest in a support group among individuals tested for a BRCA1 mutation represents an important step in identifying those who are most receptive to psychosocial interventions.

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Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

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Interest in a Support Group Among Individuals Tested for a BRCA1 Gene Mutation

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