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EDITORIAL

State of Science Conference in Cancer Care – identification of front line research topics

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Pages 134-135 | Received 01 Nov 2009, Published online: 26 Jan 2010

This issue of Acta Oncologica includes three review articles [Citation1–3] with commentaries from a recent State of the Science conference organized by the multidisciplinary Swedish Research Network in Cancer Care. This national network was first initiated with support from the Swedish Cancer Nursing Society and has also received funding from the Swedish Cancer Society since 2006. After several decades of research conducted by a wide variety of individuals, cancer care research had become comparably strong in Sweden. Examples of recent articles from this research are [Citation4–23]. There was a general recognition of the need to further develop and consolidate our collective efforts if this research will have greater impact on patients and their families. The network thus came about as an effort by researchers in the field to avoid weaknesses in prioritized research caused by lack of resources, small groups or individual efforts, and a resulting lack of powerful multi-center studies. The main goal of the network is to create a new forum from which it is possible to increase collaboration and consultancy among researchers in this relatively small field in Sweden, foster increased knowledge transfer from research into clinical practice, and improve the robustness and clinical relevance of new research endeavors. Over 80 PhD-prepared researchers in cancer care with professional backgrounds as nurses, physiotherapists, occupational therapists, physicians, dental hygienists, social workers and psychologists/ behavioral scientists are now members.

The state of the science conference held in August 2009 was part of the network's efforts to identify front-line issues in areas of relevance for all disciplines involved in cancer care research. The topics were chosen to strengthen the characteristic patient focus of most cancer care research in Sweden, at the same time as the cutting edge in these fields could be illuminated by international experts. Two main topics were presented for an open audience of approximately 100 people on August 19, 2009: From information to self-care was discussed by Professor Michael Brundage, a Canadian oncologist and by Professor Annette Street, an Australian sociologist, while Professor M.A.G. Sprangers, a psychologist from the Netherlands and Professor Ann Langius-Eklöf, Registered Nurse from Sweden, spoke about moving From quality of life to patient-reported outcomes. On the following day, two workshops were held for interested members of the Swedish Research Network in Cancer Care, with the aim of synthesizing each topic and discussing its relevance for the Swedish context.

In the following pages, papers by the international key note speakers reflecting the content of their presentations are presented, followed by commentaries based on the workshop discussions.

Declaration of interest: The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper.

References

  • Sprangers M. Disregarding clinical trial-based patient-reported outcomes is unwarranted: Five advances to substantiate the scientific stringency of quality-of-life measurement. Acta Oncol 2010;49:155–63.
  • Street A, Horey D. The State of the Science: Informing choices across the cancer journey with public health mechanisms and decision processes. Acta Oncol 2010;49:144–52.
  • Brundage M. Feldman-Stewart D., Tishelman C. How do interventions designed to improve provider-patient communication work? Illustrative applications of a framework for communication. Acta Oncol 2010;49:136–43.
  • Roshanai AH, Rosenquist R, Lampic C, Nordin K. Does enhanced information at cancer genetic counselling improve counselees’ knowledge, risk perception, satisfaction and negotiation of information to at-risk relatives? - A randomized study. Acta Oncol 2009;48:999–1009.
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  • Fröjd C, Lampic C, Larsson G, von Essen L. Is satisfaction with doctors’ care related to health-related quality of life, anxiety and depression among patients with carcinoid tumours? A longitudinal report. Scand J Caring Sci 2009;23:107–16.
  • Djärv T, Blazeby JM, Lagergren P. Predictors of postoperative quality of life after esophagectomy for cancer. J Clin Oncol 2009;27:1963–8.
  • Lundström S, Fürst CJ, Friedrichsen M, Strang P. The existential impact of starting corticosteroid treatment as symptom control in advanced metastatic cancer. Palliat Med 2009;23:165–70.
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  • Koinberg I, Engholm G-B, Genell A, Holmberg L. A health economic evaluation of follow-up after breast cancer surgery; result from an RCT study. Acta Oncol 2009;48:99–104.
  • Berterö C, Vanhanen M, Appelin G. Receiving a diagnosis of inoperable lung cancer: Patients’ perspectives of how it affects their life situation and quality of life. Acta Oncol 2008;47:862–99.
  • Tishelman C, Bergenmar M, Bernhardsson B-M, Blomberg K, Börjeson S, Foderus H, . Using undergraduate nursing students as mediators in a knowledge transfer program for care for patients with advanced cancer. Eur J Cancer Care 2008;17:253–60.
  • Fransson P, Lund JA, Damber JE, Klepp O, Wiklund F, Fosså S, . Quality of life in patients with locally advanced prostate cancer given endocrine treatment with or without radiotherapy: 4-year follow-up of SPCG-7/SFUO-3, an open-label, randomised, phase III trial. Lancet Oncol 2009;10:370–80.
  • Mattsson E, Lindgren B, Von Essen L. Are there any positive consequences of childhood cancer? A review of the literature. Acta Oncol 2008;47:199–206.
  • Enblom A, Bergius Axelsson B, Steineck G, Hammar M, Börjeson S. One third of patients with radiotherapy-induced nausea consider their antiemetic treatment insufficient. Support Care Cancer 2009;17:23–32.
  • Lundh Hagelin C, Wengström Y, Fürst CJ. Patterns of fatigue related to advanced disease and radiotherapy in patients with cancer – a comparative cross-sectional study of fatigue intensity and characteristics. Support Care Cancer 2009; 17: 519–26.

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