Carers’ experience of memory screening tests^*

Abstract

Background: Current evidence suggests that patients with dementia find memory tests humiliating and embarrassing. However, the knowledge concerning carers’ experience of witnessing patients with dementia undergo memory screening has not been fully explored.

Aims: This study was to explore the experiences of relatives of patients with dementia witnessing memory-screening tests.

Method: Eleven relatives of patients with dementia were recruited from three memory clinics using a purposive sampling method. A semi-structured questionnaire was used to collect data. The data was subjected to thematic analysis.

Results: The relatives appreciated the memory-screening tests as a diagnostic tool but the majority did not understand the questioning in the tests. Witnessing memory-screening tests generated anxiety in the relatives and they felt that memory screening tests were humiliating for patients.

Conclusion: A collaborative approach where the clinician, the patient and the relative(s) participate in the memory-screening tests is advised. Some relatives may benefit from counselling.

• Relatives
• caregivers
• cognitive tests
• neuropsychological tests

Declaration of interest

The authors report no conflicts of interest. The authors alone are responsible for the content and writing of this article.

Notes

* Work carried out at: Memory clinics under the Central and North West London NHS Foundation Trust (specifically 1. Harrow Memory Clinic. Bentley House 15-21 Headstone Drive Harrow HA3 5QX, 2. Brent Memory Clinic. Park Royal Centre for Mental Health Central Way (off Acton Lane) London NW10 7NS. 3. Woodlands Centre, Hillingdon Hospital, Piel Heath Road, Uxbridge, Middlesex UB8 3NN).