Use of the International Classification of Functioning, Disability and Health to identify preliminary comprehensive and brief core sets for Guillain Barre syndrome

Abstract

Purpose. To identify the preliminary comprehensive and brief core sets for Guillain Barre syndrome (GBS), in a Delphi process using the International Classification of Functioning, Disability and Health (ICF).

Method. Focus groups and a consensus process were used to identify ICF core sets for GBS. This included: preliminary ICF studies; empirical patient data collection for 77 GBS participants; review of the evidence base and treatment in GBS literature followed by a Delphi exercise with 23 physicians and allied health professionals in Melbourne, Australia.

Results. The expert consensus selected 99 second level ICF categories (in three rounds) which identify health domains relevant to GBS for multidisciplinary assessment. These domains were consistent with current practice and existing GBS literature. The comprehensive core set includes: 27 (23%%) categories from the component ‘body function’, 7 (12%%) categories from ‘body structures’, 43 (36%%) from ‘activities and participation’ and 22 (29%%) from the component ‘environmental’ factors. The brief set comprised 20 categories, 20%% of categories in the comprehensive core set.

Conclusion. The core set categories for GBS-related health need to be addressed in multidisciplinary care programs. Future clinical ‘rating’ of this set may facilitate scale development using the ICF in GBS. Further research is needed to confirm the generalisability of this set in clinical settings.

Keywords:

• ICF and Guillain Barre syndrome
• rehabilitation
• disability
• outcome assessment
• Delphi

Acknowledgements

We wish to acknowledge all participants: Drs Nina Zhang, Marina Demetrios, Kevin Young, Edwin Luk, Geoff Abbott, Tom Hale, Vijay Karapelli. Nursing: Matt Lowe. Physiotherapists: Julie Louie, Mithra Thuraisingam, Shoni James, Kelly Bower, Penina Gunzburg, Penny Hollingworth, Erin Werkmeister. Occupational Therapists: Louisa Bilske, Shinay Mackey. Speech pathologists: Margaret Pozzebon, Merridy Moore. Neuropsychologists: Deborah Leighton, Erika Wong, Nerissa Cordy. Social work: Chris Bakarnis. K Vezzoso for data entry and coordination of the consensus.