Adult acquired major upper limb amputation in Norway: prevalence, demographic features and amputation specific features. A population-based survey

Abstract

Purpose. To estimate the prevalence of adult acquired major upper limb amputation in Norway. To describe this amputee population regarding demographic features and amputation specific features. To compare our data to data collected internationally.

Method. Population-based cross-sectional study on adult upper limb amputees with acquired limb loss through or proximal to the radio-carpal joint. Patients were found in the databases of the two companies in Norway that make upper limb prostheses and in the medical records of three of the largest Norwegian hospitals. Data were collected by postal questionnaires.

Results. We estimated a population prevalence of 11.6 per 100,000 adults (n  ==  416). Our survey was not 100%% comprehensive and the estimate is conservative. The amputees were predominantly men with traumatic, unilateral, distal amputations at a young age. There were significant gender- and amputation level differences in cause. Most amputees had used prostheses. About four in ten were in paid employment.

Conclusions. Our findings are mainly consistent with earlier studies from other countries. Implications of our findings related to the planning of future health care for these patients are outlined, including suggestion of regional multidisciplinary rehabilitation emphasising occupational rehabilitation and focus on preventive measures. Potential areas of follow-up are suggested.

Keywords:

• Arm
• amputee
• amputation
• upper limb
• Norway

Acknowledgements

The authors would like to thank Rosemary Franklin, Physiotherapist, and Ingrid Lesjø, Occupational Therapist, for their contribution to developing questionnaires. The authors would also like to thank Tomm Kristensen, Heidi Lyrstad and Søren Engstrøm, Certified Prosthetists and Orthotists, Liv Bakken, Occupational Therapist, Eva Marie L. Fahlstrøm, Executive Secretary, and Sigrun Solberg and Eivind Witsø, Chief Physicians, for their help in the search for amputees. The authors are grateful to Hanne Berntsen, Health Secretary, for her help with data registration, and to Andreas Håndlykken, Senior Developer, for his invaluable help with the computer files during the inclusion process.

Declaration of interest: The authors report no declarations of interest. Their work was funded in part by Innlandet Hospital Trust and in part by The Norwegian Extra Foundation for Health and Rehabilitation.