A thematic framework of illness narratives produced by stroke patients

Abstract

Purpose: The present study aims at elucidating the impact of stroke on psychosocial functioning of stroke survivors. Methods: Data were investigated using interpretative thematic analysis of illness stories produced by 29 patients. Results: Eight themes emerged from the data: Medical Information; Interpersonal Changes; Cognitive, Physical and Emotional Functioning; Strategies of Coping; Social Support; and Information Irrelevant to the Question. The most frequent organization of the themes followed the course of medical intervention and rehabilitation. Narrations of individual patients varied in terms of the presence of particular themes, the amount of information on each topic and organization. Conclusions: The results suggest that the analysis of non-guided illness narratives can be effectively used to identify the thematic areas important to individual stroke patients. The thematic content analysis of stroke stories can allow health professionals to better understand the patient’s state of knowledge related to illness as well as his or her socio-psychological functioning which may be useful in the course of planning further assessment and rehabilitation of patients with stroke.

Implications for Rehabilitation

• Experience of illness and life changes following stroke should be recognized as central to the provision of targeted rehabilitation.

• To understand the subjective perspective a content analysis of the content narrative is recommended.

• Our study highlights seven general thematic categories that may be regarded as key.

• The categories may be useful for clinicians to help individuals to clarify their main concerns following a stroke.

• Illness stories
• psychosocial functioning
• stroke
• thematic framework

Declaration of interest

The authors report no conflicts of interest. This investigation was supported by a Mazowieckie Scholarship (Mazowieckie Stypendium Doktoranckie) and funds provided by the Faculty of Psychology, University of Warsaw (BST 500 166/17). We confirm that all patient/personal identifiers have been removed or disguised. The patients/persons described are not identifiable and cannot be identified through the details of their stories.