Sterilisation and women with intellectual disability in Iceland

Abstract

Background Throughout history women with intellectual disability have been commonly subjected to involuntary sterilisation. Involuntary sterilisation involves debate about fundamental human rights, such as the right to maintain fertility and to have children. In this paper, the experiences of a small group of Icelandic women with intellectual disability with regard to the issue of sterilisation are discussed.

Method The research was based on 6 life stories of women with intellectual disability born between 1946 and 1965. Additional participants included 3 siblings of these women.

Results The findings of the research indicate that the sterilisation procedures resulted in a deep emotional impact on all of the women who participated in this research. The women expressed a range of emotions, such as sadness, anger, and grief, especially those who had been sterilised without their knowledge.

Conclusion Despite the negative consequences experienced by the women as a result of sterilisation, the women did not portray themselves as victims but rather as survivors. The findings reiterate the importance of respecting the women's sexuality and right to self-determination.

Keywords:

• intellectual disability
• life histories
• sterilisation
• sexuality

Notes

^†This manuscript was accepted under the Guest Editorship of Nathan Wilson.