Service use and access in young children with an intellectual disability or global developmental delay: Associations with challenging behaviour

ABSTRACT

Background Challenging behaviours are frequently shown by children with an intellectual disability. This study documents service use within this population and explores its relationship with challenging behaviours and child and parent characteristics.

Method Forty-nine mothers of young children with an intellectual disability or global developmental delay completed questionnaires focusing on child behaviour, parental mental health, and service use.

Results Maternal mental health was not associated with services accessed. Cost of services accessed differed by topography of challenging behaviour for destruction of the environment or aggression. No differences were noted for self-injurious behaviour.

Conclusion In this small study, topography of challenging behaviour impacts on the frequency and/or duration (and therefore cost) of community-based health care accessed. Behaviours that have external impact, such as aggression and destruction of the environment, are associated with a higher cost of services used, a pattern not noted for behaviours that had less external impact (e.g., self-injurious behaviour).

KEYWORDS:

• intellectual disability
• challenging behaviour
• behaviour problems
• service use

Acknowledgements

We are grateful to the individuals and their families for giving their time to support this research study and other team members who have contributed to the process. This paper presents independent research partly funded by the National Institute for Health Research (NIHR) Post-Doctoral Fellowship Programme, and Cerebra. The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR, Cerebra, or the Department of Health.

Disclosure statement

No potential conflict of interest was reported by the authors.

Additional information

Funding

This work was supported by the National Institute for Health Research (NIHR) Post-Doctoral Fellowship Programme [grant number PDF-2010-03-002] and Cerebra.