Family relationships in intellectual disability: Parents’ perceptions as elicited by family photographs

ABSTRACT

Background

Families, as a network of emotional connections, assume a particularly important role when there is a member with intellectual disabilities (ID). The main aim of the study is to explore the perceptions of parents of persons with ID about their family relationships.

Method

Ten parents of persons with ID, four of which were fathers, were interviewed using photo-elicited interviews and 60 photographs were analysed.

Results

Persons depicted in the photographs were mainly members of the nuclear family, and the moments captured were mostly family rituals. Joy was the most present feeling in the photographs and “saudade” the most evoked feeling when viewing them. Family relationships assume an essential role for parents, and acceptance and inclusion emerged as central concepts.

Conclusions

The core value of family relationships for parents, as a resource to deal with the challenges brought on by the condition, should be taken into account in interventions.

KEYWORDS:

• Family relationships
• family quality of life
• families of persons with disabilities
• photo-elicitation interview

Disclosure statement

No potential conflict of interest was reported by the author(s).