The relationship between positive experiences in people with Ménière's disorder and the impact of the condition

Abstract

Objective: Patient enablement in a disease or disorder comprises the alleviation of medical symptoms, reduced participation restriction and reinforcement of the positive aspects of the condition. The aim of this study was to determine the aspects of positive experiences related to the impact of Ménière's disorder on the individuals’ lives. Study design: A postal survey of the members of the Finnish Ménière's Association included a structured questionnaire on positive experiences that have been reported by people with Ménière's disorder. Results: Detailed analyses revealed 10 questions that loaded on three factors related to the impact of the condition. Five questions loaded on two factors – ‘Relaxation’ and ‘Perspective on Ménière's disorder', which accounted for 58% in the variance in the psychological impact of the condition. Eight questions loaded on three factors: ‘Relaxation’ and ‘Perspective on Ménière's disorder’ and ‘Appreciation of support', which accounted for 56% in the variance in the global impact measures. Conclusions: Aspects of self-reported positive experience in Ménière's disorder can predict the impact of the condition describing ways in which it can be improved, its acceptance, and appreciation of those around the individual.

Key words::

• Ménière's disorder
• positive experiences
• disease impact

Acknowledgements

This study has been made in cooperation with the Finnish Ménière's Federation and financially supported by Finnish Slot Machine Association, RAY.

Declaration of interest: The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper.

Appendix 1. Questionnaire about Positive Experiences Associated with Ménière's Disorder.

In this part, you will see a list of statements. Opposite the list of statements, there is the question “Does this situation or feeling happen to you?” You will see a choice of four answers opposite each statement. These are: often true, sometimes true, rarely true, never true.

You have to circle the answer that best fits your experience of the situation or feeling described in the statement.

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