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Research Article

A comparison of parenting stress between mothers of children with spina bifida and able-bodied controls

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Pages 22-28 | Received 14 Aug 2010, Accepted 08 Sep 2010, Published online: 17 Jan 2011
 

Abstract

Objectives: To compare parenting stress between mothers of children with spina bifida (SB) and able bodied controls.

Methods: Sixty-six mothers of children with SB and controls (matched for age, sex and ethnicity) completed the Parenting Stress Index Short Form (PSI/SF) and General Health Questionnaire-12 (GHQ-12). Each child's adaptive skills was assessed using the Vineland Adaptive Behaviour Scales (VABS).

Results: Mothers of children with SB had significantly higher scores for GHQ-12 and the Parental Distress (PD), Parent-Child Dysfunctional Interaction (P-CDI) and Difficult Child (DC) sub-scales of the PSI/SF, even after adjusting for socioeconomic and caregiver status. Single parent status, having a child with SB and higher Life Stress scores were associated with higher PD and DC scores. Lower VABS scores were associated with higher P-CDI scores.

Conclusion: Factors such as recent life change events, single parent status and the child's adaptive skills modify the impact of spina bifida on parenting stress.

Objetivos: Comparar el estrés entre las madres de niños con espina bífida (EB) y de niños sanos.

Método: Sesenta y seis madres de niños con EB y del grupo control (con similitud en edad, sexo y grupo étnico) completaron en Indice de Estrés en Padres versión corta (PSI/SF) y el Cuestionario de Salud (GHQ-12). Cada habilidad adaptativa de cada niño fue evaluada con las Escalas Vineland de comportamiento adaptativo (VABS).

Resultados: Las madres con hijos con EB tienen resultados más elevados en la GHQ-12 y la PD, aún después de ajustar el estado socioeconómico y de cuidador. Padre soltero con un hijo con EB se asoció a un mayor puntaje en la PD y en la DC. Menor puntaje en la VABS se asoció a un mayor puntaje en la P-CDI.

Conclusiones: Factores como cambio en el estilo de vida reciente, padre soltero, y habilidades de adaptación del niño modifica el impacto de espina bífida en el estrés de los padres.

Palabras clave: espina bífida, estrés de padres, habilidade adaptativa, eventos que cambian la vida, padre único

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