The School Experiences of Siblings of Children With Chronic Illness: Australian Parents’ Perceptions

References

• AlderferM.A., & HodgesJ.A. (2010). Supporting siblings of children with cancer: A need for family-school partnerships. School Mental Health, 2, 72–81.
   PubMedGoogle Scholar
• AlderferM.A., LongK.A., LownE.A., MarslandA.L., OstrowskiN.L., HockJ.M., & EwingL.J. (2010). Psychosocial adjustment of siblings of children with cancer: A systematic review. Psycho-Oncology, 19, 789–805 717p. doi:10.1002/pon.1638
   PubMed Web of Science ®Google Scholar
• AlderferM.A., StanleyC., ConroyR., LongK.A., FaircloughD.L., KazakA.E., & NollR.B. (2015). The social functioning of siblings of children with cancer: A multi-informant investigation. Journal of Pediatric Psychology, 40, 309–319. doi:10.1093/jpepsy/jsu079
   Web of Science ®Google Scholar
• BarreraM., FlemingC.F., & KhanF.S. (2004). The role of emotional social support in the psychological adjustment of siblings of children with cancer. Child: Care, Health and Development, 30, 103–111. doi:10.1111/j.1365-2214.2003.00396.x
   PubMed Web of Science ®Google Scholar
• BerbisJ., OudinC., AlessandriniM., VercassonC., BarlogisV., ChambostH., . . . AuquierP. (2015). Quality of life in minor siblings of childhood leukemia survivors, long-term after diagnosis: A LEA study (for Leucemies de l'Enfant et de l'Adolescent — Childhood and adolescent leukemia). Psycho-Oncology, 24, 661–668.
   Web of Science ®Google Scholar
• BjörkM., WiebeT., & HallströmI. (2005). Striving to survive: Families’ lived experiences when a child is diagnosed with cancer. Journal of Pediatric Oncology Nursing, 22, 265–275. doi:10.1177/1043454205279303
   PubMedGoogle Scholar
• BroydB.P., Pritchard-JonesK., EdwardsL., & P. Chambers (Ed.). (2008). Pupils with cancer: A guide for teachers. London, UK: Royal Marsden NHS Foundation Trust.
   Google Scholar
• Cancer Council NSW. (2015). Cancer in the school community. Sydney, Australia: Author. Retrieved from https://www.cancerwa.asn.au/resources/2015-07-21-Cancer-in-the-school-community-rev-ed.pdf
   Google Scholar
• Clarke-SteffenL. (1997). Reconstructing reality: Family strategies for managing childhood cancer. Journal of Pediatric Nursing: Nursing Care of Children and Families, 12, 278–287. doi:10.1016/S0882-5963(97)80045-0
   PubMedGoogle Scholar
• DonnanB.M., WebsterT., WakefieldC.E., Dalla-PozzaL., AlvaroF., LavoipierreJ., & MarshallG.M. (2015). What about school? Educational challenges for children and adolescents with cancer. Australian Educational and Developmental Psychologist, 32, 23–40.
   Web of Science ®Google Scholar
• FauxS.A., WalshM., & DeatrickJ.A. (1988). Intensive interviewing with children and adolescents. Western Journal of Nursing Research, 10, 180–194. doi:10.1177/019394598801000206
   PubMedGoogle Scholar
• FrenchA.E., TsangarisE., BarreraM., GugerS., BrownR., UrbachS., . . . NathanP.C. (2013). School attendance in childhood cancer survivors and their siblings. Journal of Pediatrics, 162, 160–165.
   PubMed Web of Science ®Google Scholar
• GanL.L., LumA., WakefieldC.E., NandakumarB., & FardellJ.E. (2017). School experiences of siblings of children with chronic illness: A systematic literature review. Journal of Pediatric Nursing: Nursing Care of Children and Families, 33, 23–32. doi:10.1016/j.pedn.2016.11.007
   Web of Science ®Google Scholar
• GilliganR. (1998). The importance of schools and teachers in child welfare. Child & Family Social Work, 3, 13–25. doi:10.1046/j.1365-2206.1998.00068.x
   Google Scholar
• GjengedalE., RustøenT., WahlA.K., & HanestadB.R. (2003). Growing up and living with cystic fibrosis: Everyday life and encounters with the health care and social services — A qualitative study. Advances in Nursing Science, 26, 149–159.
   PubMed Web of Science ®Google Scholar
• HartlingL., MilneA., TjosvoldL., WrightsonD., GallivanJ., & NewtonA.S. (2014). A systematic review of interventions to support siblings of children with chronic illness or disability. Journal of Paediatrics and Child Health, 50, E26–E38. doi:10.1111/j.1440-1754.2010.01771.x
   PubMed Web of Science ®Google Scholar
• HoltA. (2010). Using the telephone for narrative interviewing: A research note. Qualitative Research, 10, 113–121. doi:10.1177/1468794109348686
   Web of Science ®Google Scholar
• IncledonE. (2015). A review of factors associated with mental health in siblings of children with chronic illness. Journal of Child Health Care, 19, 182–194. doi:10.1177/1367493513503584
   PubMed Web of Science ®Google Scholar
• JacksonY., & FrickP.J. (1998). Negative life events and the adjustment of school-age children: Testing protective models. Journal of Clinical Child Psychology, 27, 370–380. doi:10.1207/s15374424jccp2704_1
   PubMed Web of Science ®Google Scholar
• Jenholt NolbrisM., & AhlströmB.H. (2014). Siblings of children with cancer — Their experiences of participating in a person-centered support intervention combining education, learning and reflection: Pre- and post-intervention interviews. European Journal of Oncology Nursing, 18, 254–260. doi:https://doi.org/10.1016/j.ejon.2014.01.002
   Web of Science ®Google Scholar
• KaplanL.M., KaalK.J., BradleyL., & AlderferM.A. (2013). Cancer-related traumatic stress reactions in siblings of children with cancer. Families, Systems & Health: The Journal of Collaborative Family HealthCare, 31, 205–217. doi:10.1037/a0032550
   PubMed Web of Science ®Google Scholar
• KazakA.E., SimmsS., & RourkeM.T. (2002). Family systems practice in pediatric psychology. Journal of Pediatric Psychology, 27, 133–143. doi:10.1093/jpepsy/27.2.133
   PubMed Web of Science ®Google Scholar
• KnaflK.A., DarneyB.G., GalloA.M., & AngstD.B. (2010). Parental perceptions of the outcome and meaning of normalization. Research in Nursing & Health, 33, 87–98. doi:10.1002/nur.20367
   PubMed Web of Science ®Google Scholar
• KnaflK.A., & DeatrickJ.A. (1986). How families manage chronic conditions: An analysis of the concept of normalization. Research in Nursing & Health, 9, 215–222. doi:10.1002/nur.4770090306
   PubMed Web of Science ®Google Scholar
• KnechtC., HellmersC., & MetzingS. (2015). The perspective of siblings of children with chronic illness: A literature review. Journal of Pediatric Nursing, 30, 102–116. doi:10.1016/j.pedn.2014.10.010
   PubMed Web of Science ®Google Scholar
• KobayashiK., HayakawaA., & HohashiN. (2015). Interrelations between siblings and parents in families living with children with cancer. Journal of Family Nursing, 21, 119–148. doi:10.1177/1074840714564061
   PubMed Web of Science ®Google Scholar
• LabayL.E., & WalcoG.A. (2004). Brief report: Empathy and psychological adjustment in siblings of children with cancer. Journal of Pediatric Psychology, 29, 309–314.
   PubMed Web of Science ®Google Scholar
• LambE., & Holley-BoenW. (2016). School support for siblings of patients with cancer. New Zealand Journal of Counselling, 36, 16–34.
   Google Scholar
• LobatoD.J., & KaoB.T. (2002). Integrated sibling-parent group intervention to improve sibling knowledge and adjustment to chronic illness and disability. Journal of Pediatric Psychology, 27, 711–716. doi:10.1093/jpepsy/27.8.711
   PubMed Web of Science ®Google Scholar
• LongK.A., MarslandA.L., WrightA., & HindsP. (2015). Creating a tenuous balance: Siblings’ experience of a brother's or sister's childhood cancer diagnosis. Journal of Pediatric Oncology Nursing, 32, 21–31. doi:10.1177/1043454214555194
   PubMed Web of Science ®Google Scholar
• MasonJ. (2004). In M.S. Lewis-Beck, A. Bryman, & T.F. Liao (Eds.), The SAGE encyclopedia of social science research methods (vol. 3, pp. 1021–1021). Thousand Oaks, CA: Sage.
   Google Scholar
• McLooneJ.K., WakefieldC.E., & CohnR.J. (2013). Childhood cancer survivors’ school (re)entry: Australian parents’ perceptions. European Journal of Cancer Care, 22, 484–492. doi:10.1111/ecc.12054
   Web of Science ®Google Scholar
• MilesM.B., & HubermanA.M. (1994). Qualitative data analysis: An expanded sourcebook. London, UK: Sage.
   Google Scholar
• MurrayJ.S. (2001). Social support for school-aged siblings of children with cancer: A comparison between parent and sibling perceptions. Journal of Pediatric Oncology Nursing, 18, 90–104. doi:10.1177/104345420101800302
   Google Scholar
• NolbrisM.J., EnskärK., & HellströmA.L. (2007). Experience of siblings of children treated for cancer. European Journal of Oncology Nursing, 11, 106–112.
   PubMed Web of Science ®Google Scholar
• O'BrienI., DuffyA., & NichollH. (2009). Impact of childhood chronic illnesses on siblings: A literature review. British Journal of Nursing, 18, 1358–1365.
   PubMedGoogle Scholar
• PrchalA., & LandoltM.A. (2012). How siblings of pediatric cancer patients experience the first time after diagnosis: a qualitative study. Cancer Nursing, 35, 133–140. doi:10.1097/ncc.0b013e31821e0c59
   PubMed Web of Science ®Google Scholar
• RobinsonC.A. (1993). Managing life with a chronic condition: The story of normalization. Qualitative Health Research, 3, 6–28. doi:10.1177/104973239300300102
   PubMedGoogle Scholar
• RoffeyS. (2004). The home-school interface for behaviour: A conceptual framework for co-constructing reality. Educational and Child Psychology, 21, 95–108.
   Google Scholar
• SamsonK., RourkeM.T., & AlderferM.A. (2016). A qualitative analysis of the impact of childhood cancer on the lives of siblings at school, in extracurricular activities, and with friends. Clinical Practice in Pediatric Psychology, 4, 362–372. doi:10.1037/cpp0000161
   Google Scholar
• SaundersB., SimJ., KingstoneT., BakerS., WaterfieldJ., BartlamB., . . . JinksC. (2017). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality & Quantity. doi:10.1007/s11135-017-0574-8
   PubMed Web of Science ®Google Scholar
• ShochetI.M., SmythT., & HomelR. (2007). The impact of parental attachment on adolescent perception of the school environment and school connectedness. Australian and New Zealand Journal of Family Therapy, 28, 109–118. doi:10.1375/anft.28.2.109
   Google Scholar
• SidhuR., PassmoreA., & BakerD. (2005). An investigation into parent perceptions of the needs of siblings of children with cancer. Journal of Pediatric Oncology Nursing, 22, 276–287 212p.
   PubMedGoogle Scholar
• SrivastavaP., & HopwoodN. (2009). A practical iterative framework for qualitative data analysis. International Journal of Qualitative Methods, 8, 76–84. doi:10.1177/160940690900800107
   Google Scholar
• SturgesJ.E., & HanrahanK.J. (2004). Comparing telephone and face-to-face qualitative interviewing: A research note. Qualitative Research, 4, 107–118. doi:10.1177/1468794104041110
   Google Scholar
• TongA., SainsburyP., & CraigJ. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19, 349–357. Retrieved from: http://cdn.elsevier.com/promis_misc/ISSM_COREQ_Checklist.pdf. doi:10.1093/intqhc/mzm042
   PubMed Web of Science ®Google Scholar
• VermaesI.P.R., Van SusanteA.M.J., & Van BakelH.J.A. (2012). Psychological functioning of siblings in families of children with chronic health conditions: A meta-analysis. Journal of Pediatric Psychology, 37, 166–184. doi:10.1093/jpepsy/jsr081
   PubMed Web of Science ®Google Scholar
• WakefieldC.E., McLooneJ., ButowP., LenthenK., & CohnR.J. (2013). Support after the completion of cancer treatment: Perspectives of Australian adolescents and their families. European Journal of Cancer Care, 22, 530–539. doi:10.1111/ecc.12059
   PubMed Web of Science ®Google Scholar
• WilkinsK.L., & WoodgateR.L. (2005). A review of qualitative research on the childhood cancer experience from the perspective of siblings: A need to give them a voice. Journal of Pediatric Oncology Nursing, 22, 305–319. doi:10.1177/1043454205278035
   PubMedGoogle Scholar
• WilkinsonR.B. (2004). The role of parental and peer attachment in the psychological health and self-esteem of adolescents. Journal of Youth and Adolescence, 33, 479–493. doi:10.1023/b:joyo.0000048063.59425.20
   Web of Science ®Google Scholar
• WoodgateR.L. (2006). Siblings’ experiences with childhood cancer: A different way of being in the family. Cancer Nursing, 29, 406–414
   PubMed Web of Science ®Google Scholar