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Acta Chirurgica Belgica Volume 112, 2012 - Issue 1
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Original Papers

Exploring Limits for Data Registration in the Context of PROCARE, a Quality Improvement Project on Rectal Cancer

T. Vandendael The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
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F. Penninckx The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).View further author information
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C. Bertrand The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
,
W. Ceelen The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
,
Etienne Danse The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
,
Pieter Demetter The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
,
Karin Haustermans The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
,
Stéphanie Laurent The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
,
Gaetan Molle The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
,
Jean Vandestadt The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
,
Jean-Luc Van Laethem The PROCARE steering group consists of delegates from all Belgian scientific organisations involved in the treatment of rectum cancer, i.e. the Belgian Section of Colorectal Surgery, a section of the Royal Belgian Society of Surgery (Bertrand C., De Coninck D., Duinslaeger M., Kartheuser A., Penninckx F., Van de Stadt J., Vaneerdeweg W.), the Belgian Society of Surgical Oncology (Claeys D.), the Belgian Group for Endoscopic Surgery (Burnon D.), the Belgian Society of Radiotherapy-Oncology (Haustermans K., Scalliet P., Spaas Ph.), the Belgian Society of Pathology and the Digestive Pathology Club (Demetter P., Jouret-Mourin A., Sempoux C.), the Belgian Society of Medical Oncology (Demey W., Humblet Y., Van Cutsem E.), the Belgian Group for Digestive Oncology (Laurent S., Van Cutsem E., Van Laethem J. L.), the Royal Belgian Society of Radiology (Danse E., Op de Beeck B., Smeets P.), the Société Royale Belge de Gastro-entérologie (Melange M., Rahier J.), the Vlaamse Vereniging voor Gastro-enterologie (Cabooter M., Pattyn P., Peeters M.), the Belgian Society of Gastro-intestinal Endoscopy (Buset M.). Are also represented: the Belgian Professional Surgical Association (Haeck L., Mansvelt B.), the Foundation Belgian Cancer Registry (Van Eycken E.) and the RIZIV/INAMI (Dercq J.-P., Thijs A.).
,
Koen Vindevoghel Vandendael T. is data manager for PROCARE at the Belgian Cancer Registry.
& on behalf of PROCARE* show all
Pages 15-23 | Published online: 11 Mar 2016

References

  • Rectale kankerzorg, fase 1: Een praktijkrichtlijn voor rectale kanker. Good Clinical Practice (GCP). Brussel: Federaal Kenniscentrum voor de Gezondheidszorg (KCE); 2007. KCE reports 69A (D/2007/10.273/54). Note that the main text is in English.
  • Vlayen J., Verstreken M., Mertens C., Van Eycken E., Penninckx F. Kwaliteit van rectale kankerzorg-Fase 2: ontwikkeling en test van een set van kwaliteitsindicatoren. Good Clinical Practice (GCP). Brussel: Federaal Kenniscentrum voor de Gezondheidszorg (KCE); 2008. KCE reports 81A (D/2008/10.273/38). Note that the main text is in English.
  • Goetghebeur E., Van Rossem R., Baert K. et al. Kwaliteit van rectale kankerzorg-fase 3: statistische methoden om centra te benchmarken met een set van kwaliteitsindicatoren. Good Clinical Practice (GCP). Federaal Kenniscentrum voor de Gezondheidszorg (KCE). 2011. KCE Report 161A. D/2011/10.273/38. Note that the main text is in English.
  • PROCARE data entry set is in English and can be downloaded from the PROCARE website http://coldfusionwebhostings.be/PSK/Upload/GENERAL//procare/formulieren/data-entry-PR0CARE-form%20version%2020100820_link%20online% 20application.pdf
  • Penninckx F., Beirens K., Fieuws S. et al. Risk adjusted benchmarking of anastomotic leak rate after total mesorectal excision in the context of a national project. Colorectal Dis, submitted.
  • Khuri S. F., Daley J., Henderson W. G. The comparative assessment and improvement of quality of surgical care in the department of Veterans Affairs. Arch Surg, 2002, 137: 2027.
  • Dimick J. B., Osborne N. H., Hall B. L., Ko C. Y., Birkmeyer J. D. Risk adjustment for comparing hospital quality with surgery: how many variables are needed ? J Am Coll Surg, 2010, 210: 503508.
  • Lilford R. J., Brown C. A., Nicholl J. Use of process measures to monitor the quality of clinical practice. BMJ, 2007, 335: 648650.
  • Peters L. J., O’Sullivan B., Giralt J. et al. Critical impact of radiotherapy protocol compliance and quality in the treatment of advanced head and neck cancer: results from TROG 02.02. J Clin Oncol, 2010, 28: 2996–3001.
  • Pitches D. W., Mohammed M. A., Lilford R. J. What is the empirical evidence that hospitals with higher-risk adjusted mortality rates provide poorer quality care ? A systematic review of the literature. BMC Health Serv Res, 2007, 7: 91.
  • Fink A. S. Adjusted or unadjusted outcomes. Am J Surg, 2009, 198 (5 Suppl): S28–S35.
  • Hall B. L., HirbeM., Waterman B., Boslaugh S., Dunagan W. C. Comparison of mortality risk adjustment using a clinical data algorithm (American College of Surgeons National Surgical Quality Improvement Program) and an administrative data algorithm (Solucient) at the case level within a single institution. J Am Coll Surg, 2007, 205: 767–777.

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