Loneliness in Patients with Rheumatic Diseases: The Significance of Invalidation and Lack of Social Support

REFERENCES

• Arnold , L. M. , Crofford , L. J. , Mease , P. J. , Burgess , S. M. , Palmer , S. C. Abetz , L. 2008 . Patient perspectives on the impact of fibromyalgia . Patient Education and Counseling , 73 : 114 – 120 .
   PubMed Web of Science ®Google Scholar
• Asnani , M. R. , Fraser , R. , Lewis , N. A. and Reid , M. E. 2010 . Depression and loneliness in Jamaicans with sickle cell disease . BMC Psychiatry , 10 : 40
   PubMed Web of Science ®Google Scholar
• Axford , J. , Butt , A. , Heron , C. , Hammond , J. , Morgan , J. Alavi , A. 2010 . Prevalence of anxiety and depression in osteoarthritis: Use of the Hospital Anxiety and Depression Scale as a screening tool . Clinical Rheumatology , 29 : 1277 – 1283 .
   PubMed Web of Science ®Google Scholar
• Beal , C. C. and Stuifbergen , A. 2007 . Loneliness in women with multiple sclerosis . Rehabilitation Nursing , 32 : 165 – 171 .
   PubMed Web of Science ®Google Scholar
• Cacioppo , J. T. and Hawkley , L. C. 2009 . Perceived social isolation and cognition . Trends in Cognitive Sciences , 13 : 447 – 454 .
   PubMed Web of Science ®Google Scholar
• Cacioppo , J. T. , Hawkley , L. C. and Thisted , R. A. 2010 . Perceived social isolation makes me sad: 5–year cross–lagged analyses of loneliness and depressive symptomatology in the Chicago Health, Aging, and Social Relations Study . Psychology and Aging , 25 : 453 – 463 .
   PubMed Web of Science ®Google Scholar
• Cacioppo , J. T. , Hughes , M. E. , Waite , L. J. , Hawkley , L. C. and Thisted , R. A. 2006 . Loneliness as a specific risk factor for depressive symptoms: Cross-sectional and longitudinal analyses . Psychology and Aging , 21 : 140 – 151 .
   PubMed Web of Science ®Google Scholar
• Cosmides , L. 1989 . The logic of social-exchange: Has natural-selection shaped how humans reason: Studies with the Wason Selection Task . Cognition , 31 : 187 – 276 .
   PubMed Web of Science ®Google Scholar
• Creed , P. A. and Reynolds , J. 2001 . Economic deprivation, experiential deprivation and social loneliness in unemployed and employed youth . Journal of Community & Applied Social Psychology , 11 : 167 – 178 .
   Web of Science ®Google Scholar
• Davey , H. M. , Barratt , A. L. , Butow , P. N. and Deeks , J. J. 2007 . A one–item question with a Likert or visual analog scale adequately measured current anxiety . Journal of Clinical Epidemiology , 60 : 356 – 360 .
   PubMed Web of Science ®Google Scholar
• De Boer , A. G. E. M. , Wijker , W. , Speelman , J. D. and De Haes , J. C. J. M. 1996 . Quality of life in patients with Parkinson's disease: Development of a questionnaire . Journal of Neurology Neurosurgery and Psychiatry , 61 : 70 – 74 .
   PubMed Web of Science ®Google Scholar
• Demir , A. and Tarhan , N. 2001 . Loneliness and social dissatisfaction in Turkish adolescents . Journal of Psychology , 135 : 113 – 123 .
   PubMed Web of Science ®Google Scholar
• Dijker , A. J. and Koomen , W. 2006 . A psychological model of social control and stigmatization: Evolutionary background and practical implications . Psychology, Health & Medicine , 11 : 296 – 306 .
   PubMedGoogle Scholar
• Distel , M. A. , Rebollo-Mesa , I. , Abdellaoui , A. , Derom , C. A. , Willemsen , G. Cacioppo , J. T. 2010 . Familial resemblance for loneliness . Behavior Genetics , 40 : 480 – 494 .
   PubMed Web of Science ®Google Scholar
• El-Mansoury , T. M. , Taal , E. , Abdel-Nasser , A. M. , Riemsma , R. P. , Mahfouz , R. Mahmoud , J. A. 2008 . Loneliness among women with rheumatoid arthritis: A cross-cultural study in the Netherlands and Egypt . Clinical Rheumatology , 27 : 1109 – 1118 .
   PubMed Web of Science ®Google Scholar
• Felson , D. T. and Zhang , Y. Q. 1998 . An update on the epidemiology of knee and hip osteoarthritis with a view to prevention . Arthritis and Rheumatism , 41 : 1343 – 1355 .
   PubMed Web of Science ®Google Scholar
• Gaubitz , M. 2006 . Epidemiology of connective tissue disorders . Rheumatology , 45 : 3 – 4 .
   Web of Science ®Google Scholar
• Hawkley , L. C. and Cacioppo , J. T. 2010 . Loneliness matters: A theoretical and empirical review of consequences and mechanisms . Annals of Behavioral Medicine , 40 : 218 – 227 .
   PubMed Web of Science ®Google Scholar
• Hawkley , L. C. , Hughes , M. E. , Waite , L. J. , Masi , C. M. , Thisted , R. A. and Cacioppo , J. T. 2008 . From social structural factors to perceptions of relationship quality and loneliness: The Chicago Health, Aging, and Social Relations Study . Journals of Gerontology: Series B. Psychological Sciences and Social Sciences , 63 : S375 – S384 .
   PubMed Web of Science ®Google Scholar
• Heinrich , L. A. and Gullone , E. 2006 . The clinical significance of loneliness: A literature review . Clinical Psychology Review , 26 : 695 – 718 .
   PubMed Web of Science ®Google Scholar
• Isik , A. , Koca , S. S. , Ozturk , A. and Mermi , O. 2007 . Anxiety and depression in patients with rheumatoid arthritis . Clinical Rheumatology , 26 : 872 – 878 .
   PubMed Web of Science ®Google Scholar
• Kara , M. and Mirici , A. 2004 . Loneliness, depression, and social support of Turkish patients with chronic obstructive pulmonary disease and their spouses . Journal of Nursing Scholarship , 36 : 331 – 336 .
   PubMed Web of Science ®Google Scholar
• Klippel , J. H. , Stone , J. H. , Crofford , L. J. and White , P. H. 2008 . Primer on the rheumatic diseases , New York : Springer Science+Business Media .
   Google Scholar
• Kool , M. B. , van Middendorp , H. , Boeije , H. and Geenen , R. 2009 . Understanding the lack of understanding: Invalidation from the perspective of the patient with fibromyalgia . Arthritis & Rheumatism-Arthritis Care & Research , 61 : 1650 – 56 .
   PubMed Web of Science ®Google Scholar
• Kool , M. B. , van Middendorp , H. , Lumley , M. A. , Schenk , Y. , Jacobs , J. W. G. Bijlsma , J. W. J. 2010 . Lack of understanding in fibromyalgia and rheumatoid arthritis: The Illness Invalidation Inventory (3*I) . Annals of the Rheumatic Diseases , 69 : 1990 – 1995 .
   PubMed Web of Science ®Google Scholar
• Kozora , E. , Ellison , M. C. and West , S. 2006 . Depression, fatigue, and pain in systemic lupus erythematosus (SLE): Relationship to the American College of Rheumatology SLE neuropsychological battery . Arthritis & Rheumatism-Arthritis Care & Research , 55 : 628 – 635 .
   PubMed Web of Science ®Google Scholar
• Kurzban , R. and Leary , M. R. 2001 . Evolutionary origins of stigmatization: The functions of social exclusion . Psychological Bulletin , 127 : 187 – 208 .
   PubMed Web of Science ®Google Scholar
• Laidmäe , V. , Leppik , L. , Tulva , T. and Hääl , M. 2009 . Disease-related social and family life: People coping with rheumatoid arthritis in Estonia . Critical Public Health , 19 : 87 – 105 .
   Google Scholar
• Madenci , E. , Herken , H. , Keven , S. , Yagiz , E. and Guersoy , S. 2007 . Alexithymia in patients with fibromyalgia syndrome [Fibromiyalji Sendromlu Hastalarda Aleksitimi] . Turkiye Klinikleri Tip Bilimleri Dergisi , 27 : 32 – 35 .
   Google Scholar
• Penninx , B. W. J. H. , van Tilburg , T. , Kriegsman , D. M. W. , Boeke , A. J. P. , Deeg , D. J. H. and van Eijk , J. T. M. 1999 . Social network, social support, and loneliness in older persons with different chronic diseases . Journal of Aging and Health , 11 : 151 – 168 .
   PubMed Web of Science ®Google Scholar
• Penninx , B. W. J. H. , van Tilburg , T. , Kriegsman , D. M. W. , Deeg , D. J. H. , Boeke , A. J. P. and van Eijk , J. T. M. 1997 . Effects of social support and personal coping resources on mortality in older age: The Longitudinal Aging Study Amsterdam . American Journal of Epidemiology , 146 : 510 – 519 .
   PubMed Web of Science ®Google Scholar
• Rokach , A. , Lechcier-Kimel , R. and Safarov , A. 2006 . Loneliness of people with physical disabilities . Social Behavior and Personality , 34 : 681 – 699 .
   Web of Science ®Google Scholar
• Sherbourne , C. D. and Stewart , A. L. 1991 . The Mos Social Support Survey . Social Science & Medicine , 32 : 705 – 714 .
   PubMed Web of Science ®Google Scholar
• Singer , S. , Danker , H. , Bloching , M. , Kluge , A. , Schwenke , J. Oeken , J. 2007 . Perceived stigmatisation following laryngectomy . Psychotherapie Psychosomatik Medizinische Psychologie , 57 : 328 – 333 .
   PubMed Web of Science ®Google Scholar
• Temel , J. S. , Pirl , W. F. , Recklitis , C. J. , Cashavelly , B. and Lynch , T. J. 2006 . Feasibility and validity of a one-item fatigue screen in a thoracic oncology clinic . Journal of Thoracic Oncology , 1 : 454 – 459 .
   PubMed Web of Science ®Google Scholar
• Winningham , R. G. and Pike , N. L. 2007 . A cognitive intervention to enhance institutionalized older adults’ social support networks and decrease loneliness . Aging & Mental Health , 11 : 716 – 721 .
   PubMed Web of Science ®Google Scholar
• Wolfe , F. , Clauw , D. J. , Fitzcharles , M. , Goldenberg , D. L. , Katz , R. S. Mease , P. 2010 . The American College of Rheumatology preliminary diagnostic criteria for fibromyalgia and measurement of symptom severity . Arthritis Care & Research , 62 : 600 – 610 .
   PubMed Web of Science ®Google Scholar
• Wolfe , F. , Ross , K. , Anderson , J. , Russell , I. J. and Hebert , L. 1995 . The prevalence and characteristics of fibromyalgia in the general population . Arthritis & Rheumatism , 38 : 19 – 28 .
   PubMed Web of Science ®Google Scholar