Primary and secondary control strategies and psychological well-being among familial caregivers of older adults with dementia

References

• Alzheimer’s Association . (2013). Caregiving across the United States: Caregivers of persons with Alzheimer’s disease or dementia in 14 states . Retrieved from https://www.alz.org/media/documents/caregiving-data-combined-2011-2013-report.pdf
   Google Scholar
• Alzheimer’s Association . (2014). 2014 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia: the Journal of the Alzheimer’s Association , 10, e47–e92. doi:10.1016/j.jalz.2014.02.001
   PubMed Web of Science ®Google Scholar
• Alzheimer’s Association . (2018). 2018 Alzheimer’s disease facts and figures. Alzheimer’s & Dementia: the Journal of the Alzheimer’s Association , 14, 367–429. doi:10.1016/j.jalz.2018.02.001
   Web of Science ®Google Scholar
• Atteih, S. , Mellon, L. , Hall, P. , Brewer, L. , Horgan, F. , Williams, D. , & Hickey, A. (2015). Implications of stroke for caregiver outcomes: Findings from the ASPIRE-S study. International Journal of Stroke , 10, 918–923. doi:10.1111/ijs.12535
   PubMed Web of Science ®Google Scholar
• Bertrand, R. M. , Fredman, L. , & Saczynski, J. (2006). Are all caregivers created equal? Stress in caregivers to adults with and without dementia. Journal of Aging and Health , 18, 534–551. doi:10.1177/0898264306289620
   PubMed Web of Science ®Google Scholar
• Black, H. K. , Schwartz, A. J. , Caruso, C. J. , & Hannum, S. M. (2008). How personal control mediates suffering: Elderly husbands’ narratives of caregiving. The Journal of Men’s Studies , 16, 177–192. doi:10.3149/jms.1602.177
   Google Scholar
• Brækhus, A. , Øksengård, A. R. , Engedal, K. , & Laake, K. (1998). Social and depressive stress suffered by spouses of patients with mild dementia. Scandinavian Journal of Primary Health Care , 16, 242–246.
   PubMed Web of Science ®Google Scholar
• Cheng, S.-T. , Mak, E. P. M. , Fung, H. H. , Kwok, T. , Lee, D. T. F. , & Lam, L. C. W. (2017). Benefit-finding and effect on caregiver depression: A double-blind randomized controlled trial. Journal of Consulting and Clinical Psychology , 85, 521–529. doi:10.1037/ccp0000176
   PubMed Web of Science ®Google Scholar
• Chipperfield, J. G. , & Greenslade, L. (1999). Perceived control as a buffer in the use of health care services. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences , 54, 146–154. doi:10.1093/geronb/54B.3.P146
   Web of Science ®Google Scholar
• Chipperfield, J. G. , Newall, N. E. , Perry, R. P. , Stewart, T. L. , Bailis, D. S. , & Ruthig, J. C. (2012). Sense of control in late life: Health and survival implications. Personality and Social Psychology Bulletin , 38, 1081–1092. doi:10.1177/0146167212444758
   PubMed Web of Science ®Google Scholar
• Chipperfield, J. G. , & Perry, R. P. (2006). Primary- and secondary-control strategies in later life: Predicting hospital outcomes in men and women. Health Psychology , 25, 226–236. doi:10.1037/0278-6133.25.2.226
   PubMed Web of Science ®Google Scholar
• Chipperfield, J. G. , Perry, R. P. , Bailis, D. S. , Ruthig, J. C. , & Chuchmach, L. P. (2007). Gender differences in use of primary and secondary control strategies in older adults with major health problems. Psychology & Health , 22, 83–105. doi:10.1080/14768320500537563
   Web of Science ®Google Scholar
• Chipperfield, J. G. , Perry, R. P. , & Menec, V. H. (1999). Primary and secondary control-enhancing strategies: Implications for health in later life. Journal of Aging and Health , 11, 517–539. doi:10.1177/089826439901100403
   PubMed Web of Science ®Google Scholar
• Cho, J. , Ory, M. G. , & Stevens, A. B. (2016). Socioecological factors and positive aspects of caregiving: Findings from the REACH II intervention. Aging & Mental Health , 20, 1190–1201. doi:10.1080/13607863.2015.1068739
   PubMed Web of Science ®Google Scholar
• Chuchmach, L. (2002). The mediational role of perceived control between health status and life satisfaction in an elderly population ( Unpublished manuscript). Department of Psychology, University of Manitoba, Winnipeg, Canada.
   Google Scholar
• Cohen, S. , Kamarck, T. , & Mermelstein, R. (1983). A global measure of perceived stress. Journal of Health and Social Behavior , 24, 385–396.
   PubMed Web of Science ®Google Scholar
• Connell, C. M. , Janevic, M. R. , & Gallant, M. P. (2001). The costs of caring: Impact of dementia on family caregivers. Journal of Geriatric Psychiatry and Neurology , 14, 179–187. doi:10.1177/089198870101400403
   PubMed Web of Science ®Google Scholar
• Gallicchio, L. , Siddiqi, N. , Langenberg, P. , & Baumgarten, M. (2002). Gender differences in burden and depression among informal caregivers of demented elders in the community. International Journal of Geriatric Psychiatry , 17, 154–163.
   PubMed Web of Science ®Google Scholar
• Gaugler, J. E. , Mittelman, M. S. , Hepburn, K. , & Newcomer, R. (2010). Clinically significant changes in burden and depression among dementia caregivers following nursing home admission. BMC Medicine , 8, 85–98. doi:10.1186/1741-7015-8-85
   PubMed Web of Science ®Google Scholar
• Hall, N. C. , Chipperfield, J. G. , Heckhausen, J. , & Perry, R. P. (2010). Control striving in older adults with serious health problems: A 9-year longitudinal study of survival, health, and well-being. Psychology and Aging , 25, 423–445. doi:10.1037/a0019278
   Web of Science ®Google Scholar
• Hamm, J. M. , Chipperfield, J. G. , Perry, R. P. , Heckhausen, J. , & Mackenzie, C. S. (2014). Conflicted goal engagement: Undermining physical activity and health in late life. The Journals of Gerontology, Series B: Psychological Sciences and Social Sciences , 69, 533–542. doi:10.1093/geronb/gbu048
   PubMed Web of Science ®Google Scholar
• Haynes, T. L. , Heckhausen, J. , Chipperfield, J. G. , Perry, R. P. , & Newall, N. E. (2009). Primary and secondary control strategies: Implications for health and well-being among older adults. Journal of Social and Clinical Psychology , 28, 165–197. doi:10.1521/jscp.2009.28.2.165
   Web of Science ®Google Scholar
• Heckhausen, J. , & Schulz, R. (1995). A life-span theory of control. Psychological Review , 102, 284–304.
   PubMed Web of Science ®Google Scholar
• Hintz, S. , Frazier, P. A. , & Meredith, L. (2014). Evaluating an online stress management intervention for college students. Journal of Counseling Psychology . doi:10.1037/cou0000014
   PubMed Web of Science ®Google Scholar
• Li, R. , Cooper, C. , Bradley, J. , Shulman, A. , & Livingston, G. (2012). Coping strategies and psychological morbidity in family carers of people with dementia: A systematic review and meta-analysis. Journal of Affective Disorders , 139, 1–11. doi:10.1016/j.jad.2011.05.055
   PubMed Web of Science ®Google Scholar
• Litzelman, K. , Tesauro, G. , & Ferrer, R. (2017). Internal resources among informal caregivers: Trajectories and associations with well-being. Quality of Life Research , 26, 3239–3250. doi:10.1007/s11136-017-1647-9
   PubMed Web of Science ®Google Scholar
• Mausbach, B. T. , Chattillion, E. A. , Ho, J. , Flynn, L. M. , Tiznado, D. , von Känel, R. , … Grant, I. (2014). Why does placement of persons with Alzheimer’s disease into long-term care improve caregivers’ well-being? Examination of psychological mediators. Psychology and Aging , 29, 776–786. doi:10.1037/a0037626
   PubMed Web of Science ®Google Scholar
• Mausbach, B. T. , Chattillion, E. A. , Roepke, S. K. , Patterson, T. L. , & Grant, I. (2013). A comparison of psychosocial outcomes in elderly Alzheimer caregivers and noncaregivers. American Journal of Geriatric Psychiatry , 21, 5–13. doi:10.1097/JGP.0b013e31824472d5
   PubMed Web of Science ®Google Scholar
• National Alliance for Caregiving & AARP . (2009). Caregiving in the U.S . Retrieved from http://www.caregiving.org/data/Caregiving_in_the_US_2009_full_report.pdf
   Google Scholar
• O’Shaughnessy, M. , Lee, K. , & Lintern, T. (2010). Changes in the couple relationship in dementia care: Spouse carers’ experiences. Dementia , 9, 237–258. doi:10.1177/1471301209354021
   Google Scholar
• Papastavrou, E. , Kalokerinou, A. , Papacostas, S. S. , Tsangari, H. , & Sourtzi, P. (2007). Caring for a relative with dementia: Family caregiver burden. Journal of Advanced Nursing , 58, 446–457. doi:10.1111/j.1365-2648.2007.04250.x
   PubMed Web of Science ®Google Scholar
• Papastavrou, E. , Tsangari, H. , Karayiannis, G. , Papacostas, S. , Efstathiou, G. , & Sourtzi, P. (2011). Caring and coping: The dementia caregivers. Aging & Mental Health , 15, 702–711. doi:10.1080/13607863.2011.562178
   PubMed Web of Science ®Google Scholar
• Peng, Y. , & Lachman, M. E. (1994). Primary and secondary control: Cross-cultural and life-span developmental perspectives. Paper presented at the 13th Biennial Meeting of Institutional Society for the Study of Behavioural Development, Amsterdam, the Netherlands.
   Google Scholar
• Perry, R. P. , Stupnisky, R. H. , Hall, N. C. , Chipperfield, J. G. , & Weiner, B. (2010). Bad starts and better finishes: Attributional retraining and initial performance in competitive achievement settings. Journal of Social and Clinical Psychology , 29, 668–700. doi:10.1521/jscp.2010.29.6.668
   Web of Science ®Google Scholar
• Prince, M. , Bryce, R. , Albanese, E. , Wimo, A. , Ribeiro, W. , & Ferri, C. P. (2013). The global prevalence of dementia: A systematic review and metaanalysis. Alzheimer’s & Dementia: the Journal of the Alzheimer’s Association , 9, 63–75. doi:10.1016/j.jalz.2012.11.007
   PubMed Web of Science ®Google Scholar
• Razani, J. , Corona, R. , Quilici, J. , Matevosyan, A. , Funes, C. , Larco, A. , … Lu, P. (2014). The effects of declining functional abilities in dementia patients and increases in psychological distress on caregiver burden over a one-year period. Clinical Gerontologist , 37, 235–252. doi:10.1080/07317115.2014.885920
   PubMed Web of Science ®Google Scholar
• Rothbaum, F. , Weisz, J. R. , & Snyder, S. S. (1982). Changing the world and changing the self: A two-process model of perceived control. Journal of Personality and Social Psychology , 42, 5–37. doi:10.1037/0022-3514.42.1.5
   Web of Science ®Google Scholar
• Ruthig, J. C. , Chipperfield, J. G. , Perry, R. P. , Newall, N. E. , & Swift, A. (2007). Comparative risk and perceived control: Implications for psychological and physical well-being among older adults. The Journal of Social Psychology , 147, 345–369. doi:10.3200/SOCP.147.4.345-369
   PubMed Web of Science ®Google Scholar
• Sallim, A. B. , Sayampanathan, A. A. , Cuttilan, A. , & Chun-Man, H. R. (2015). Prevalence of mental health disorders among caregivers of patients with Alzheimer disease. Journal of the American Medical Directors Association , 16, 1034–1041. doi:10.1016/j.jamda.2015.09.007
   PubMed Web of Science ®Google Scholar
• Sanders, S. , Ott, C. H. , Kelber, S. T. , & Noonan, P. (2008). The experience of high levels of grief in caregivers of persons with Alzheimer’s disease and related dementia. Death Studies , 32, 495–523. doi:10.1080/07481180802138845
   PubMed Web of Science ®Google Scholar
• Schulz, R. , Belle, S. H. , Czaja, S. J. , McGinnis, K. A. , Stevens, A. , & Zhang, S. (2004). Long-term care placement of dementia patients and caregiver health and well-being. JAMA , 292, 961–967. doi:10.1001/jama.292.8.961
   PubMed Web of Science ®Google Scholar
• Sequeira, C. (2013). Difficulties, coping strategies, satisfaction and burden in informal Portuguese caregivers. Journal of Clinical Nursing , 22, 491–500. doi:10.1111/jocn.12108
   PubMed Web of Science ®Google Scholar
• Watson, D. , Clark, L. A. , & Tellegen, A. (1988). Development and validation of brief measures of positive and negative affect: The PANAS scales. Journal of Personality and Social Psychology , 54, 1063–1070.
   PubMed Web of Science ®Google Scholar
• Williams, K. L. , Morrison, V. , & Robinson, C. A. (2014). Exploring caregiving experiences: Caregiver coping and making sense of illness. Aging & Mental Health , 18, 600–609. doi:10.1080/13607863.2013.860425
   PubMed Web of Science ®Google Scholar
• Wrosch, C. , Heckhausen, J. , & Lachman, M. E. (2000). Primary and secondary control strategies for managing health and financial stress across adulthood. Psychology and Aging , 15, 387–399.
   PubMed Web of Science ®Google Scholar