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Research Article

What Concerns Subjects with Inflammatory Bowel Disease and an Ileostomy?

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Pages 978-984 | Published online: 08 Jul 2009

  • Drossman DA, Patrick DL, Mitchell CM, Zagami EA, Appelbaum MI. Health-related quality of life in inflammatory bowel disease. Functional status and patient worries and concerns. Dig Dis Sci 1989:34:1379-86.
  • Moser G, Tillinger W, Sachs G, Genser D, Maier-Dobersberger T, Spiess K, et al. Disease-related worries and concerns: a study on out-patients with inflammatory bowel disease. Eur J Gastroenterol Hepatol 1995:7:853-8.
  • Yazdanpanah Y, Klein O, Gambiez L, Baron P, Desreumaux P, Marquis P, et al. Impact of surgery on quality of life in Crohn's disease. Am J Gastroenterol 1997:92:1897-900.
  • Hjortswang H, Strom M, Almer S. Health-related quality of life in Swedish patients with ulcerative colitis. Am J Gastroenterol 1998:93:2203-11.
  • Martinsson ES, Josefsson M, Ek AC. Working capacity and quality of life after undergoing an ileostomy. J Adv Nurs 1991; 16:1035-41.
  • Salter MJ. What are the differences in body image between patients with a conventional stoma compared with those who have had a conventional stoma followed by a continent pouch? J Adv Nurs 1992:17:841-8.
  • Nugent KP, Daniels P, Stewart B, Patankar R, Johnson CD. Quality of life in stoma patients. Dis Colon Rectum 1999:42: 1569-74.
  • Weinryb RM, Gustavsson JP, Eiljeqvist E, Poppen B, Rossel RJ. A prospective study of the quality of life after pelvic pouch operation. J Am Coll Surg 1995:180:589-95.
  • Seidel SA, Newman M, Sharp KW. Ileoanal pouch versus ileostomy: Is there a difference in quality of life? Am Surg 2000; 66:540-6; discussion 546-7.
  • Eazarus R. Coping theory and research: past, present and future. Psychosom Med 1993:55:234-47.
  • Kinash RG, Fischer DG, Lukie BE, Carr TE. Coping patterns and related characteristics in patients with IBD. Rehabil Nurs 1993; 18:12-9.
  • Cronqvist A, Klang B, Bjorvell H. The use and efficacy of coping strategies and coping styles in a Swedish sample. Qual Life Res 1997:6:87-96.
  • Carlsson E, Bosaeus I, Nordgren S. Body composition in patients with an ileostomy and inflammatory bowel disease: validation of bio-electric impedance spectroscopy (BIS). Eur J Clin Nutr 2002; 56:680-6.
  • Drossman DA, Eeserman J, Li ZM, Mitchell CM, Zagami EA, Patrick DE. The Rating Form of Patient Concerns: a new measure of health status. Psychosom Med 1991:53:701-12.
  • Colombel JF, Yazdanpanah Y, Eaurent F, Houcke P, Delas N, Marquis P. Quality of life in chronic inflammatory bowel diseases. Validation of a questionnaire and first French data. Gastroenterol Clin Biol 1996:20:1071-7.
  • Hjortswang H, Strom M, Almeida RT, Almer S. Evaluation of the RFIPC, a disease-specific health-related quality of life questionnaire in Swedish patients with ulcerative colitis. Scand J Gastroenterol 1997:32:1235-40.
  • Ware JE, Jr, Sherbourne CD. The MOS 36-item short-form health survey (SF-36). I. Conceptual framework and item selection. Med Care 1992:30:473-83.
  • Sullivan M, Karlsson J, Ware JE, Jr. SF 36-Health survey. Swedish manual and interpretation guide. Gothenburg, Sweden: Sahlgrenska University Hospital; 1994.
  • Sullivan M, Karlsson J, Ware JE, Jr. The Swedish SF-36 Health Survey-I. Evaluation of data quality, scaling assumptions, reliability and construct validity across general populations in Sweden. Soc Sci Med 1995:41:1349-58.
  • Sullivan M, Karlsson J. The Swedish SF-36 Health Survey III. Evaluation of criterion-based validity: results from normative population. J Clin Epidemiol 1998:51:1105-13.
  • Padilla GV, Ferrell B, Grant MM, Rhiner M. Defining the content domain of quality of life for cancer patients with pain. Cancer Nurs 1990:13:108-15.
  • Jalowiec A, Murphy SP, Powers MJ. Psychometric assessment of the Jalowiec Coping Scale. Nurs Res 1984:33:157-61.
  • Jalowiec A. Confirmatory factor analysis of the Jalowiec Coping Scale. In: Waltz C, Stricland O, editors. Measurement of nursing outcomes: nursing client outcomes. New York: Springer Co; 1988. p. 287-308.
  • Klang B, Bjorvell H, Cronqvist A. Patients with chronic renal failure and their ability to cope. Scand J Caring Sci 1996:10:89-95.
  • Eevenstein S, Ei Z, Aimer S, Barbosa A, Marquis P, Moser G, et al. Cross-cultural variation in disease-related concerns among patients with inflammatory bowel disease. Am J Gastroenterol 2001:96:1822-30.
  • de Rooy EC, Toner BB, Maunder RG, Greenberg GR, Baron D, Steinhart AH, et al. Concerns of patients with inflammatory bowel disease: results from a clinical population. Am J Gastroenterol 2001:96:1816-21.
  • Provenzale D, Shearin M, Phillips-Bute BG, Drossman DA, Li Z, Tillinger W, et al. Health-related quality of life after ileoanal pull-through evaluation and assessment of new health status measures. Gastroenterology 1997:113:7-14.
  • Muir AJ, Edwards LJ, Sanders LL, Bollinger RR, Koruda MJ, Bachwich DR, et al. A prospective evaluation of health-related quality of life after ileal pouch anal anastomosis for ulcerative colitis. Am J Gastroenterol 2001:96:1480-5.
  • Richards DM, Hughes SA, Irving MH, Scott NA. Patient quality of life after successful restorative proctocolectomy is normal. Colorectal Dis 2000:3:223-6.
  • Camilleri-Brennan J, Steele RJ. Objective assessment of quality of life following panproctocolectomy and ileostomy for ulcerative colitis. Ann R Coll Surg Engl 2001:83:321-4.
  • Casati J, Toner BB, de Rooy EC, Drossman DA, Maunder RG. Concerns of patients with inflammatory bowel disease. A review of emerging themes. Dig Dis Sci 2000:45:26-31.
  • Keltikangas-Jarvinen L, Jarvinen HJ. Psychosocial adaption to ileostomy: a study after construction of conventional and continent stomies. Scand J Gastroenterol 1987:22:202-6.
  • Ojerskog B, Hallstrom T, Kock NG, Myrvold HE. Quality of life in ileostomy patients before and after conversion to the continent ileostomy. Im J Colorectal Dis 1988:3:166-70.
  • Sjodahl R, Lemon E, Nystrom PO, Olaison G. Complications, surgical revision and quality of life with conventional and continent ileostomy. Acta Chir Scand 1990:156:403-7.
  • Kohler LW, Pemberton JH, Zinsmeister AR, Kelly KA. Quality of life after proctocolectomy. A comparison of Brooke ileostomy, Kock pouch, and ileal pouch-anal anastomosis. Gastroenterology 1991:101:679-84.
  • Litle V, Barbour S, Schrock T, Welton M. The Continent ileostomy: long-term durability and patient satisfaction. J Gastrointest Surg 1999:3:625-32.
  • Nordin K, Pahlman L, Larsson K, Sundberg-Hjelm M, Loof L. Health-related quality of life and psychological distress in a population-based sample of Swedish patients with inflammatory bowel disease. Scand J Gastroenterol 2002:37:450-7.
  • McLeod RS, Churchill DN, Lock AM, Vanderburgh S, Cohen Z. Quality of life of patients with ulcerative colitis preoperatively and postoperatively. Gastroenterology 1991:101:1307-13.
  • Kohler L, Troidl H. The ileoanal pouch: a risk-benefit analysis. Br J Surg 1995:82:443-7.
  • Bekkers MJ, van Knippenberg FC, van den Borne HW, Poen H, Bergsma J, van Berge Henegouwen GP. Psychosocial adaptation to stoma surgery: a review. J Behav Med 1995:18:1-31.
  • Oleson M. Subjectively perceived quality of life. Image J Nurs Sch 1990:22:187-90.
  • Caiman KC. Quality of life in cancer patients: an hypothesis. J Med Ethics 1984:10:124-7.
  • Bowling A. What things are important in people's lives? A survey of the public's judgements to inform scales of health related quality of life. Soc Sei Med 1995:41:1447-62.
  • Bowling A. Measuring health: a review of quality of life measuring scales, 2nd edn. Buckingham, Philadelphia: Open University Press: 1997.
  • Drossman DA. Inflammatory bowel disease. In: Spilker B, editor. Quality of life and pharmacoeconomics in clinical trials, 2nd edn. Philadelphia: Lippincot Raven Publishers; 1996. p. 925-35.

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