282
Views
115
CrossRef citations to date
0
Altmetric
Article

Health‐related quality of life in patients with inflammatory bowel disease five years after the initial diagnosis

, , , , , , , , , , & show all
Pages 365-373 | Received 18 Aug 2003, Accepted 24 Nov 2003, Published online: 08 Jul 2009

References

  • Grand RJ, Homer DR. Approaches to inflammatory bowel disease in childhood and adolescence. Pediatr ClinN Am 1975;22:835.
  • Hendriksen C, Kreiner S, Binder V. Long-term prognosis in ulcerative colitis: based on results from a regional patient group from the county of Copenhagen. Gut 1985;26:158–63.
  • Munkholm P, Langholz E, Davidsen M, Kreiner S, Binder V. Incidence and prevalence of Crohn’s disease in the county of Copenhagen 1962–87: a 6-fold increase in incidence. Scand J Gastroenterol 27:6091992.
  • Moum B, Vatn MH, Ekbom A, Aadland E, Fausa O, Lygren I, et al. Incidence of ulcerative colitis and indeterminate colitis in four counties of southeastern Norway, 1990–93. A prospective population-based study. Scand J Gastroenterol 1996;31:362–6.
  • Moum B, Vatn MH, Ekbom A, Aadland E, Fausa O, Lygren I, et al. Incidence of Crohn’s disease in four counties of southeastern Norway, 1990–93. A prospective population-based study. Scand J Gastroenterol 1996;31:355–61.
  • Moum B, Ekbom A, Vatn MH, Aadland E, Sauar J, Lygren I, et al. Inflammatory bowel disease: re-evaluation of the diagnosis in a prospective population based study in south eastern Norway. Gut 1997;40:328–32.
  • Best WR, Becktel JM, Singleton JW, Kern F. Development of a Crohn’s Disease Activity Index; National Cooperative Crohn’s Disease Study. Gastroenterology 1976;70:439–44.
  • Harvey RF, Bradshaw JM. A simple index of Crohn’s disease activity. Lancet 1980;1:514.
  • Myren J, Bouchier IAD, Watkinson G, Softley A, Clamp SE, de Dombal FT. The OMGE Multinational inflammatory bowel disease survey 1976–1982. A further report on 2657 cases. Scand J Gastroenterol 1984;19 Suppl 95:1–27.
  • van Hees PAM, van Elteren PH, van Lier HJJ, van Tongeren JHM. An index of inflammatory activity in patients with Crohn’s disease. Gut 1989;21:279–86.
  • Irvine EJ. Quality of Life: measurement in inflammatory bowel disease. Scand J Gastroenterol 1993;28 Suppl 199:36–9.
  • Guyatt G, Mitchell A, Irvine EJ, Singer J, Williams N, Goodacre R, et al. A new measure of health status for clinical trials in inflammatory bowel disease. Gastroenterology 1989;96:804–10.
  • Irvine EJ, Feagan B, Rochon J, Archambault A, Fedorak RN, Groll A, et al. Quality of life: a valid and reliable measure of therapeutic efficacy in the treatment of inflammatory bowel disease. Canadian Crohn’s Relapse Prevention Trial Study Group. Gastroenterology 1994;106:287–96.
  • Love JR, Irvine EJ, Fedorak RN. Quality of life in inflammatory bowel disease. J Clin Gastroenterol 1992;14:15–9.
  • Drossman DA, Patrick DL, Mitchell CM, Zagami EW, Appelbaum MI. Health related quality of life in inflammatory bowel disease: functional status and patients worries and concerns. Dig Dis Sci 1989;34:1379–86.
  • Irvin EJ. Development and subsequent refinement of the inflammatory bowel disease questionnaire: a quality-of-life instrument for adult patients with inflammatory bowel disease. J Ped Gastroenterol Nutr 1999;28:S23–7.
  • Russel MGVM, Pastoor CJ, Brandon S, Rijken J, Engels LGJB, van der Heijde DMFM, et al. Validation of the Dutch translation of the inflammatory bowel disease questionnaire (IBDQ): a health-related quality of life questionnaire in inflammatory bowel disease. Digestion 1997;58:282–8.
  • Han SW, McColl E, Steen N, Barton JR, Welfare MR. The Inflammatory Bowel Disease Questionnaire: a valid and reliable measure in ulcerative colitis patients in the North East of England. Scand J Gastroenterol 1998;33:961–6.
  • Kim WH, Cho YS, Yoo HM, Park IS, Park EC, Lim JG. Quality of life in Korean patients with inflammatory bowel diseases: ulcerative colitis, Crohn’s disease and intestinal Behccet’s disease. Int J Colorec Dis 1999;14:52–7.
  • Cheung WY, Garratt AM, Russell IT, Williams JG. The UK IBDQ—A British version of the inflammatory bowel disease questionnaire: development and validation. J Clin Epidemiol 2000;53:297–306.
  • Hjortswang H, Järnerot G, Curman B, Sandberg-Gertzén H, Tysk C, Blomberg B, et al. Validation of the inflammatory bowel disease questionnaire in Swedish patients with ulcerative colitis. Scand J Gastroenterol 2001;36:77–85.
  • Pallis AG, Vlachonikolis IG, Mouzas IA. Assessing health- related quality of life in patients with inflammatory bowel disease, in Crete, Greece. BMC Gastroenterol 2002;2:1. Epub 2002 Jan 10.
  • Bernklev T, Moum B, Moum T, the Inflammatory Bowel SouthEastern Norway (IBSEN) Group of Gastroenterologists. Quality of life in patients with inflammatory bowel disease: translation, data quality, scaling assumptions, validity, reliability and sensitivity to change of the Norwegian version of IBDQ. Scand J Gastroenterol 2002;37:1164–74.
  • Feagan BG, Rochon J, Fedorak RN, Irvine EJ, Wild G, Sutherland L, et al, for the North American Crohn’s Study Group: Methotrexate for the treatment of Crohn’s disease. N Engl J Med 1995;332:292–7.
  • Irvine EJ. Effects of budesonide therapy on quality of life in active Crohn’s disease. Res Clin Forums 1996;18:77–85.
  • Casellas F, Lopez-Vivancos J, Badia X, Vilaseca J, Malagelada JR. Impact of surgery for Crohn’s disease on health-related quality of life. Am J Gastroenterol 2000;95:177–82.
  • Broering DC, Eisenberger CF, Koch A, Bloechle C, Knoefel WT, Izbicki JR. Quality of life after surgical therapy of small bowel stenosis in Crohn’s disease. Dig Surg 2001;18:124–30.
  • Nordin K, Pahlman L, Larsson K, Sundberg-Hjelm M, Loof L. Health-related quality of life and psychological distress in a population-based sample of Swedish patients with inflammatory bowel disease. Scand J Gastroenterol 2002;37:450–7.
  • Moum B, Ekbom A, Vatn MH, Aadland E, Sauar J, Lygren I, et al. Clinical course during the first year after diagnosis in ulcerative colitis and Crohn’s disease. Results of a large prospective population-based study in southeastern Norway 1990–1993. Scand J Gastroenterol 1997;32:1005–12.
  • Jahnsen J, Moum B, Schulz T, Sauar J, Lygren I, Stray N, et al. Inflammatory bowel disease, disease course and status 5 years after diagnosis (the IBSEN study). Gastroenterology 2000;118: A1005.
  • Binder V, Both H, Hansen PK, Hendriksen C, Kreiner S, Torp- Pedersen K. Incidence and prevalence of ulcerative colitis and Crohn’s disease in the county of Copenhagen, 1962 to 1978. Gastroenterology 1982;83: 563–8.
  • Gasche C, Scholmeric J, Brynskov J, D’Haens G, Hanauer SB, Irvine EJ, et al. A simple classification of Crohn’s disease: report of the Working Party for the World Congresses of Gastroenterology, Vienna 1998. Inflamm Bowel Dis 2000;6: 8–15.
  • Palm Ø, Moum B, Jahnsen J, Gran JT. The prevalence and incidence of peripheral arthritis in patients with inflammatory bowel disease, a prospective population-based study (the IBSEN study). Rheumatology 2001;40:1256–61.
  • Irvine EJ, Grace E, Kerr GD, Lyrenas E, Bolin T, O’Morain C, et al. Non-disease related factors affecting health related quality of life (HRQOL) in inflammatory bowel disease (IBD). Abstract DDW, 16–22 May 1998, New Orleans, LA.
  • Glise H, Wiklund I. Health related quality of life and gastrointestinal disease. J Gastroenterol Hepatol 2002;17 Suppl:S73–85.
  • Wenger NK. Quality of life issues in hypertension: consequences of diagnosis and considerations in management. Am Heart J 1988;116:628–32.
  • Vandenburg MJ, Evans SJW, Kelly BJ, Bradshaw F, Currie WJC, Cooper WJD. Factors affecting the reporting of symptoms by hypertensive patients. Br J Clin Pharmacol 1984; 10:189–95.
  • van Wijk CM, Kolk AM. Sex differences in physical symptoms: the contribution of symptom perception theory. Soc Sci Med 1997;45:231–46.
  • Drossman D, Leserman J, Mitchell M, Zhiming M, Zagamin E, Patrick D. Health status and health care use in persons with inflammatory bowel disease: a national sample. Dig Dis Sci 1991;36:1746–55.
  • Helzer JE, Stillings WA, Chammas S, Norland CC, Alpers DH. A controlled study of the association between ulcerative colitis and psychiatric diagnoses. Dig Dis Sci 1982;27:513–8.
  • Russel MG, Nieman FH, Bergers JM, StockbrUgger RW, the South Limburg IBD study group: Cigarette smoking and quality of life in patients with inflammatory bowel disease. Eur J Gastroenterol hepatol 1996;8:1075–81.
  • Irvine EJ, Donnelly M. Quality of life comparably impaired in patients with ulcerative colitis and irritable bowel syndrome. Gastroenterology 1994;106:A517.
  • Hjermstad MJ, Fayers PM, Bjordal K, Kaasa S. Health-related quality of life in the general Norwegian population assessed by the European Organization for Research and Treatment of Cancer Core Quality-of-Life Questionnaire: the QLQ = C30 (+3). J Clin Oncol 1998;16:1188–96.
  • Testa MA, Simonson DC. Assessment of quality of life outcomes. N Engl J Med 1996;334:835–40.
  • Lydick EG, Epstein RS. Clinical significance of quality of life data. In: Spilker B, editor. Quality of life and pharmaco- economics in clinical trials, 2nd edn, 1996.
  • Junipher EF, Guyatt GH, Willan A, Griffith LE. Determining a minimal important change in a disease-specific quality of life questionnaire. J Clin Epidemiol 1994;47:81–7.
  • Norman GR, Sloan JA, Wyrwich KW. Interpretation of changes in health-related quality of life. The remarkable universality of half a standard deviation. Med Care 2003;41:582–92.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.