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Original Article

eHealth for inflammatory bowel disease self-management – the patient perspective

, , &
Pages 973-980 | Received 02 Mar 2017, Accepted 17 May 2017, Published online: 09 Jun 2017

References

  • Crohn's & Colitis Australia. Improving inflammatory bowel disease care across Australia; 2013.
  • Spiegel B. 2015 American Journal of Gastroenterology Lecture: how digital health will transform gastroenterology. Am J Gastroenterol. 2016;111:624–630.
  • Eysenbach G. What is e-health? J Med Internet Res. 2001;3:E20.
  • Gibbons MC, Shaikh Y. The patient of the future: participatory medicine and enabling technologies. In: Weaver CA, Ball MJ, Kim GR, et al., editors. Healthcare information management systems: cases, strategies, and solutions. Cham: Springer International Publishing; 2016. p. 283–297.
  • Australian Bureau of Statistics. Household Internet Access; 2014; [cited 2015 May 27]. Available from: http://www.abs.gov.au/ausstats/[email protected]/Lookup/8146.0Chapter12012-13
  • Thom and Camille Ryan ACSR, ACS-28, U.S. Census Bureau. Computer and internet use in the United States: 2013. Washington (DC); 2014.
  • Commonwealth of Australia (Australian Communications and Media Authority). ACMA communications report 2013–14; 2014.
  • Pew Research Centre. U.S. smartphone use in 2015; 2015.
  • Wolters FL, Russel MG, Sijbrandij J, et al. Crohn's disease: increased mortality 10 years after diagnosis in a Europe-wide population based cohort. Gut. 2006;55:510–518.
  • Hoie O, Schouten LJ, Wolters FL, et al. Ulcerative colitis: no rise in mortality in a European-wide population based cohort 10 years after diagnosis. Gut. 2007;56:497–503.
  • Eysenbach G. The law of attrition. J Med Internet Res. 2005;7:e11.
  • Elkjaer M, Shuhaibar M, Burisch J, et al. E-health empowers patients with ulcerative colitis: a randomised controlled trial of the web-guided 'Constant-care' approach. Gut. 2010;59:1652–1661.
  • Pedersen N, Elkjaer M, Duricova D, et al. eHealth: individualisation of infliximab treatment and disease course via a self-managed web-based solution in Crohn's disease. Aliment Pharmacol Ther. 2012;36:840–849.
  • McCombie A, Gearry R, Andrews J, et al. Does computerized cognitive behavioral therapy help people with inflammatory bowel disease? A randomized controlled trial. Inflam Bowel Dis. 2016;22:171–181.
  • Cross RK, Jambaulikar G, Langenberg P, et al. TELEmedicine for Patients with Inflammatory Bowel Disease (TELE-IBD): design and implementation of randomized clinical trial. Contemporary Clin Trials. 2015;42:132–144.
  • Murray E. Web-based interventions for behavior change and self-management: potential, pitfalls, and progress. Medicine 20. 2012;1:e3.
  • Jackson BD, Gray K, Knowles SR, et al. EHealth technologies in inflammatory bowel disease: a systematic review. J Crohn's Colitis. 2016;10:1103–1121.
  • Con D, De Cruz P. Mobile phone apps for inflammatory bowel disease self-management: a systematic assessment of content and tools. JMIR mHealth Uhealth. 2016;4:e13.
  • Birnbaum F, Lewis D, Rosen RK, et al. Patient engagement and the design of digital health. Acad Emerg Med. 2015;22:754–756.
  • Hilliard ME, Hahn A, Ridge AK, et al. User preferences and design recommendations for an mHealth app to promote cystic fibrosis self-management. JMIR mHealth and uHealth. 2014;2:e44.
  • Schnall R, Bakken S, Rojas M, et al. mHealth technology as a persuasive tool for treatment, care and management of persons living with HIV. AIDS Behav. 2015;19(Suppl 2):81–89.
  • Kim HY. Analysis of variance (ANOVA) comparing means of more than two groups. Restor Dent Endod. 2014;39:74–77.
  • Aguas Peris M, Del Hoyo J, Bebia P, et al. Telemedicine in inflammatory bowel disease: opportunities and approaches. Inflam Bowel Dis. 2015;21:392–399.
  • Cross RK, Arora M, Finkelstein J. Acceptance of telemanagement is high in patients with inflammatory bowel disease. J Clin Gastroenterol. 2006;40:200–208.
  • Krier M, Kaltenbach T, McQuaid K, et al. Potential use of telemedicine to provide outpatient care for inflammatory bowel disease. Am J Gastroenterol. 2011;106:2063–2067.
  • Patil S, Cross R, Rogers JD, et al. Where we're going, we don't need appointments: the future of telemedicine in IBD. Inflam Bowel Dis. 2012;18:2199–2200.
  • Vinding KK, Elsberg H, Thorkilgaard T, et al. Fecal calprotectin measured by patients at home using smartphones–a new clinical tool in monitoring patients with inflammatory bowel disease. Inflam Bowel Dis. 2016;22:336–344.
  • Murphy EV. Clinical decision support: effectiveness in improving quality processes and clinical outcomes and factors that may influence success. Yale J Biol Med. 2014;87:187–197.
  • Atreja A, Khan S. Impact of the mobile HealthPROMISE platform on the quality of care and quality of life in patients with inflammatory bowel disease: study protocol of a pragmatic randomized controlled trial. JMIR Res Protoc. 2015;4:e23.
  • Jackson BD, Con D, Liew D, et al. P490. Clinicians’ adherence to international guidelines in the clinical care of adults with inflammatory bowel disease. Scand J Gastroenterol. 2017;52:536–542.
  • Baars JE, Markus T, Kuipers EJ, et al. Patients' preferences regarding shared decision-making in the treatment of inflammatory bowel disease: results from a patient-empowerment study. Digestion. 2010;81:113–119.
  • van Mierlo T, Fournier R, Fedorak R. Don't forget the doctor: gastroenterologists' preferences on the development of mHealth tools for inflammatory bowel disease. 2015;3:e5.
  • Siegel CA. Shared decision making in inflammatory bowel disease: helping patients understand the tradeoffs between treatment options. Gut. 2012;61:459–465.
  • Bernal I, Domenech E, Garcia-Planella E, et al. Medication-taking behavior in a cohort of patients with inflammatory bowel disease. Dig Dis Sci. 2006;51:2165–2169.
  • Jeppesen MH, Ainsworth MA. Telephone reminders reduced the non-attendance rate in a gastroenterology outpatient clinic. Danish Med J. 2015;62.
  • Jackson CA, Clatworthy J, Robinson A, et al. Factors associated with non-adherence to oral medication for inflammatory bowel disease: a systematic review. Am J Gastroenterol. 2010;105:525–539.
  • Tae CH, Jung SA, Moon HS, et al. Importance of patients' knowledge of their prescribed medication in improving treatment adherence in inflammatory bowel disease. J Clin Gastroenterol. 2016;50:157–162.
  • Hommel KA, Gray WN, Hente E, et al. The Telehealth Enhancement of Adherence to Medication (TEAM) in pediatric IBD trial: design and methodology. Contemp Clin Trials. 2015;43:105–113.
  • PriceWaterhouseCoopers. Improving inflammatory bowel disease care across Australia. Crohn's & Colitis Australia; 2013.
  • Mitchell R, Kremer A, Westwood N, et al. Talking about life and IBD: a paradigm for improving patient–physician communication. J Crohn's Colitis. 2009;3:1–3.
  • Newman S, Steed L, Mulligan K. Self-management interventions for chronic illness. Lancet (London, England). 2004;364:1523–1537.
  • Shah SL, Siegel CA. Increasing patient activation could improve outcomes for patients with inflammatory bowel disease. Inflam Bowel Dis. 2015;21:2975–2978.
  • Mosen DM, Schmittdiel J, Hibbard J, et al. Is patient activation associated with outcomes of care for adults with chronic conditions? J Ambulat Care Manage. 2007;30:21–29.

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