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Original Article

Validation of ulcerative colitis and Crohn’s disease and their phenotypes in the Danish National Patient Registry using a population-based cohort

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Pages 1171-1175 | Received 01 Jul 2020, Accepted 04 Aug 2020, Published online: 24 Aug 2020

References

  • Ungaro R, Mehandru S, Allen PB, et al. Seminar ulcerative colitis. Lancet. 2017;389:1756–1770.
  • Torres J, Mehandru S, Colombel JF, et al. Crohn’s disease. Lancet. 2017;389(10080):1741–1755.
  • Lo B, Vester-Andersen MK, Vind I, et al. Changes in disease behaviour and location in patients with Crohn’s disease after seven years of follow-up: a Danish Population-based Inception Cohort. J Crohn’s Colitis. 2017;1(8):265–272.
  • Burisch J, Ungaro R, Vind I, et al. Proximal disease extension in patients with limited ulcerative colitis: a Danish Population-based Inception Cohort. J Crohns Colitis. 2017;11(10):1200–1204.
  • Vester-Andersen MK, Prosberg MV, Jess T, et al. Disease course and surgery rates in inflammatory bowel disease: a population-based, 7-year follow-up study in the era of immunomodulating therapy. Am J Gastroenterol. 2014;109(5):705–714.
  • Fonager K, Sørensen HT, Rasmussen SN, et al. Assessment of the diagnoses of Crohn's disease and ulcerative colitis in a Danish hospital information system. Scand J Gastroenterol. 1996;31(2):154–159.
  • Vind I, Riis L, Jess T, et al. Increasing incidences of inflammatory bowel disease and decreasing surgery rates in Copenhagen City and County, 2003–2005: a population-based study from the Danish Crohn colitis database. Am J Gastroenterol. 2006;101(6):1274–1282.
  • Langholz E. An epidemiological study based on a regional inception cohort, with special reference to disease course and prognosis. Dan Med Bull. 1999;46(5):400–415.
  • Munkholm P. Crohn’s disease-occurrence course and prognosis: an epidemiologic cohort-study. Dan Med Bull. 1997;44(3):287–302.
  • Gasche C. A simple classification of Crohn’s disease: report of the Working Party for the World Congresses of Gastroenterology, Vienna 1998. Inflamm Bowel Dis. 2000;6:8–15.
  • Satsangi J, Silverberg MS, Vermeire S, et al. The Montreal Classification of inflammatory bowel disease: controversies, consensus, and implications. Gut. 2006;55(6):749–753.
  • Lynge E, Sandegaard JL, Rebolj M. The Danish national patient register. Scand J Public Health. 2011;39(7 Suppl.):30–33.
  • Schmidt M, et al. The Danish national patient registry: a review of content, data quality, and research potential. Clin Epidemiol. 2015;7:449–490.
  • Lophaven SN, Lynge E, Burisch J. The incidence of inflammatory bowel disease in Denmark 1980–2013: a Nationwide Cohort Study. Aliment Pharmacol Ther. 2017;45(7):961–972.
  • Jakobsson GL, Sternegård E, Olén O, et al. Validating inflammatory bowel disease (IBD) in the Swedish National Patient Register and the Swedish Quality Register for IBD (SWIBREG). Scand J Gastroenterol. 2017;52(2):216–221.
  • Lewis JD, Brensinger C, Bilker WB, et al. Validity and completeness of the General Practice Research Database for studies of inflammatory bowel disease. Pharmacoepidemiol Drug Saf. 2002;11(3):211–218.
  • Rezaie A, Quan H, Fedorak RN, et al. Development and validation of an administrative case definition for inflammatory bowel diseases. Can J Gastroenterol. 2012;26:711–717.
  • Benchimol EI, Guttmann A, Mack DR, et al. Validation of international algorithms to identify adults with inflammatory bowel disease in health administrative data from Ontario, Canada. J Clin Epidemiol. 2014;67(8):887–896.
  • Burisch J, Gisbert JP, Siegmund B, et al. Validation of the ‘United Registries for Clinical Assessment and Research’ [UR. CARE], a European Online Registry for Clinical Care and Research in Inflammatory Bowel Disease. J Crohns Colitis. 2018;12(5):532–537.
  • Shrestha S, Olén O, Eriksson C, et al. The use of ICD codes to identify IBD subtypes and phenotypes of the Montreal Classification in the Swedish National Patient Register. Scand J Gastroenterol. 2020;55:430–435.
  • Kappelman MD, Farkas DK, Long MD, et al. Risk of cancer in patients with inflammatory bowel diseases: a nationwide population-based cohort study with 30 years of follow-up evaluation. Clin Gastroenterol Hepatol. 2014;12(2):265–273.e1.
  • Malham M, Jakobsen C, Paerregaard A, et al. The incidence of cancer and mortality in paediatric onset inflammatory bowel disease in Denmark and Finland during a 23-year period: a population-based study. Aliment Pharmacol Ther. 2019;50(1):33–39.
  • Mellemkjaer L, Olsen JH, Frisch M, et al. Cancer in patients with ulcerative colitis. Int J Cancer. 1995;60(3):330–333.
  • Andersen NN, Pasternak B, Basit S, et al. Association between tumor necrosis factor-alpha antagonists and risk of cancer in patients with inflammatory bowel disease. JAMA. 2014;311(23):2406–2413.
  • Rungoe C, Langholz E, Andersson M, et al. Changes in medical treatment and surgery rates in inflammatory bowel disease: a nationwide cohort study 1979–2011. Gut. 2014;63(10):1607–1616.
  • Lo B, Vind I, Vester-Andersen MK, et al. Direct and indirect costs of inflammatory bowel disease: ten years of follow up in a Danish Population-Based Inception Cohort. J Crohn’s Colitis. 2019;14(1):53–63.
  • Weimers P, Halfvarson J, Sachs MC, et al. Inflammatory bowel disease and Parkinson's disease: a Nationwide Swedish Cohort Study. Inflamm Bowel Dis. 2019;25(1):111–123.
  • Ludvigsson JF, Mahl M, Sachs MC, et al. Fracture risk in patients with inflammatory bowel disease: a Nationwide Population-Based Cohort Study from 1964 to 2014. Am J Gastroenterol. 2019;114(2):291–304.
  • Olén O, Askling J, Sachs MC, et al. Childhood onset inflammatory bowel disease and risk of cancer: a Swedish nationwide cohort study 1964–2014. BMJ. 2017;358:j3951.
  • Wewer M, Zhao M, Nordholm-Carstensen A, et al. OP12 The incidence and disease course of perianal Crohn’s disease: a Danish Nationwide Cohort Study. J Crohn Colitis. 2020;14(Suppl. 1):S012.

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