832
Views
11
CrossRef citations to date
0
Altmetric
Original Articles

Crohn’s Colitis Care (CCCare): bespoke cloud-based clinical management software for inflammatory bowel disease

ORCID Icon, , , , , , , , , , , & ANZIBDC) and Crohn’s Colitis Cure (CCC) show all
Pages 1419-1426 | Received 02 Jul 2020, Accepted 14 Sep 2020, Published online: 08 Nov 2020

References

  • Studd C, Cameron G, Beswick L, et al. Never underestimate inflammatory bowel disease: high prevalence rates and confirmation of high incidence rates in Australia. J Gastroenterol Hepatol. 2016;31(1):81–86.
  • Crohn’s and Colitis Australia. Inflammatory Bowel Disease Quality of Care Program – Final report of the first audit of the organisation and provision of IBD services in Australia 2016.  Available from: https://www.crohnsandcolitis.com.au/site/wp-content/uploads/Final_Web_Audit_17-Updated-3-Feb-2.pdf
  • Montgomery SM, Morris DL, Thompson NP, et al. Prevalence of inflammatory bowel disease in British 26 year olds: national longitudinal birth cohort. BMJ. 1998;316(7137):1058–1059.
  • Access Economics. ‘The Economic Costs of Crohn’s Disease and Ulcerative Colitis’, 2007. p. 4. Available from: https://www.crohnsandcolitis.com.au/site/wp-content/uploads/Deloitte-Access-Economics-Report.pdf
  • Burisch J, Jess T, Martinato M, et al. The burden of inflammatory bowel disease in Europe. J Crohns Colitis. 2013;7(4):322–337.
  • Crohn’s & Colitis Australia. Australian IBD Standards. Standards of healthcare for people with inflammatory bowel disease in Australia. 2016. Available from: https://www.crohnsandcolitis.com.au/site/wp-content/uploads/IBD-Standards-Final.pdf
  • Alrubaiy L, Arnott I, Protheroe A, et al. Inflammatory bowel disease in the UK: is quality of care improving? Frontline Gastroenterol. 2013;4(4):296–301.
  • UK IBD Audit. National report of the results of the UK IBD audit 3rd round inpatient experience questionnaire responses. 2012. Available from: https://www.rcplondon.ac.uk/file/1082/download
  • Cassinotti A, Keshav S, Ardizzone S, et al. IBD care in Europe: a comparative audit of the inpatient management of Crohn's disease and ulcerative colitis using the national UK IBD audit tool. J Crohns Colitis. 2009;3(4):291–301.
  • Mikocka-Walus A, Andrews JM, Rampton D, et al. How can we improve models of care in inflammatory bowel disease? An international survey of IBD health professionals. J Crohns Colitis. 2014;8(12):1668–1674.
  • De Cruz P. New models of care in IBD in changing times. J Gastroenterol Hepatol. 2016;31(Suppl 1):40–41.
  • Mikocka-Walus AA, Andrews JM, Bernstein CN, et al. Integrated models of care in managing inflammatory bowel disease: a discussion. Inflamm Bowel Dis. 2012;18(8):1582–1587.
  • Love JR, Irvine EJ, Fedorak RN. Quality of life in inflammatory bowel dis. J Clin Gastroent. 1992;14:15–19.
  • van Langenberg DR, Andrews JM. Satisfaction with patient-doctor relationships in inflammatory bowel diseases: examining patient-initiated change of specialist. WJG. 2012;18(18):2212–2218.
  • van Langenberg DR, Simon SB, Holtmann GJ, et al. The burden of inpatient costs in inflammatory bowel disease and opportunities to optimize care: a single metropolitan Australian center experience. J Crohns Colitis. 2010;4(4):413–421.
  • Sack C, Phan VA, Grafton R, et al. A chronic care model significantly decreases costs and healthcare utilisation in patients with inflammatory bowel disease. J Crohn’s Colitis. 2012;6(3):302–310.
  • Andrews JM, Mountifield RE, Van Langenberg DR, et al. Un-promoted issues in inflammatory bowel disease: opportunities to optimize care. Intern Med J. 2010;40(3):173–182.
  • Jackson BD, Gray K, Knowles SR, et al. EHealth technologies in inflammatory bowel disease: a systematic review. J Crohn’s Colitis. 2016;10(9):1103–1121.
  • Ghazi, Leyla J, Cross, Raymond K. The role of telemedicine and e-health in the management of inflammatory bowel disease: improving patient outcomes. Smart Homecare Technol TeleHealth. 2015;3:17.
  • Elkjaer M, Shuhaibar M, Burisch J, et al. E-health empowers patients with ulcerative colitis: a randomised controlled trial of the web-guided 'Constant-care' approach. Gut. 2010;59(12):1652–1661.
  • Jackson BD, Con D, De Cruz P. Design considerations for an eHealth decision support tool in inflammatory bowel disease self-management. Intern Med J. 2018;48(6):674–681.
  • de Jong MJ, van der Meulen-de Jong AE, Romberg-Camps MJ, et al. Telemedicine for management of inflammatory bowel disease (myIBDcoach): a pragmatic, multicentre, randomised controlled trial. Lancet. 2017;390(10098):959–968.
  • George L, Cross R. Telemedicine platform myIBDcoach reduces hospitalisations and outpatient gastroenterology visits in patients with IBD. BMJ Evid Based Med. 2019;24:37–38.
  • Bangor A, Kortum PT, Miller JT. An empirical evaluation of the system usability scale. Int J Hum Comput Interact. 2008;24(6):574–594.
  • Con D, De Cruz P. Mobile phone apps for inflammatory bowel disease self-management: a systematic assessment of content and tools. JMIR Mhealth Uhealth. 2016;4(1):e13.
  • Kappelman MD, Palmer L, Boyle BM, et al. Quality of care in inflammatory bowel disease: a review and discussion. Inflamm Bowel Dis. 2010;16(1):125–133.
  • Reddy SI, Friedman S, Telford JJ, et al. Are patients with inflammatory bowel disease receiving optimal care? Am J Gastroenterol. 2005;100(6):1357–1361.
  • Walsh A, Travis S. What's app? Electronic health technology in inflammatory bowel disease. Intest Res. 2018;16(3):366–373.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.