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Health-related quality of life questionnaires used in primary biliary cholangitis: a systematic review

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Pages 333-339 | Received 12 Aug 2021, Accepted 21 Nov 2021, Published online: 02 Feb 2022

References

  • Carey EJ, Ali AH, Lindor KD. Primary biliary cirrhosis. Lancet. 2015;386(10003):1565–1575.
  • de Liso F, Matinato C, Ronchi M, et al. The diagnostic accuracy of biomarkers for diagnosis of primary biliary cholangitis (PBC) in anti-mitochondrial antibody (AMA)-negative PBC patients: a review of literature. Clin Chem Lab Med. 2017;56(1):25–31.
  • Dyson JK, Hirschfield GM, Adams DH, et al. Novel therapeutic targets in primary biliary cirrhosis. Nat Rev Gastroenterol Hepatol. 2015;12(3):147–158.
  • Mattner J. Impact of microbes on the pathogenesis of primary biliary cirrhosis (PBC) and primary sclerosing cholangitis (PSC). Int J Mol Sci. 2016;17(11):1864.
  • Zhang Y, Li S, He L, et al. Combination therapy of fenofibrate and ursodeoxycholic acid in patients with primary biliary cirrhosis who respond incompletely to UDCA monotherapy: a Meta-analysis. Drug Des Devel Ther. 2015;9:2757–2766.
  • Study protocol for the world health organization project to develop a quality of life assessment instrument (WHOQOL). Qual Life Res. 1993;2(2):153–159.
  • Guyatt GH, Feeny DH, Patrick DL. Measuring health-related quality of life. Ann Intern Med. 1993;118(8):622–629.
  • Liberati A, Altman DG, Tetzlaff J, et al. The PRISMA statement for reporting systematic reviews and Meta-analyses of studies that evaluate health care interventions: explanation and elaboration. J Clin Epidemiol. 2009;62(10):e1–34.
  • Sumskiene J, Kupcinskas L, Sumskas L. Health-related quality of life measurement in chronic liver disease patients. Medicina. 2015;51(4):201–208.
  • Hawker S, Payne S, Kerr C, et al. Appraising the evidence: reviewing disparate data systematically. Qual Health Res. 2002;12(9):1284–1299.
  • Cerri G, Cocchi CA, Montagna M, et al. Patients with primary biliary cirrhosis do not show post-exercise depression of cortical excitability. Clin Neurophysiol. 2010;121(8):1321–1328.
  • Montali L, Tanaka A, Riva P, et al. A short version of a HRQoL questionnaire for italian and japanese patients with primary biliary cirrhosis. Dig Liver Dis. 2010;42(10):718–723.
  • Zec S, Popovic D, Matovic V, et al. Translation and validation of the serbian primary biliary cholangitis-40 questionnaire. PLoS One. 2017;12(4):e0175697.
  • Mells GF, Pells G, Newton JL, et al. UK-PBC Consortium. Impact of primary biliary cirrhosis on perceived quality of life: the UK-PBC national study. Hepatology. 2013;58(1):273–283.
  • Alrubaiy L, Mells G, Flack S, et al. on behalf of the UK-PBC Research Consortium. PBC-10: a short quality of life measure for clinical screening in primary biliary cholangitis. Aliment Pharmacol Ther. 2019;50(11-12):1223–1231.
  • Kim WR, Lindor KD, Malinchoc M, et al. Reliability and validity of the NIDDK-QA instrument in the assessment of quality of life in ambulatory patients with cholestatic liver disease. Hepatology. 2000;32(5):924–929.
  • Jacoby A, Rannard A, Buck D, et al. Development, validation, and evaluation of the PBC-40, a disease specific health related quality of life measure for primary biliary cirrhosis. Gut. 2005;54(11):1622–1629.
  • Younossi ZM, Guyatt G, Kiwi M, et al. Development of a disease specific questionnaire to measure health related quality of life in patients with chronic liver disease. Gut. 1999;45(2):295–300.
  • Rucci P, Taliani G, Cirrincione L, et al. Validity and reliability of the italian version of the chronic liver disease questionnaire (CLDQ-I) for the assessment of health-related quality of life. Dig Liver Dis. 2005;37(11):850–860.
  • van der Plas SM, Hansen BE, de Boer JB, et al. The liver disease symptom index 2.0; validation of a disease-specific questionnaire. Qual Life Res. 2004;13(8):1469–1481.
  • Ware J, Snoww K, Kosinski MA, et al. SF-36 Health survey: manual and interpretation guide. Boston (MA): Nimrod Press; 1993.
  • Ware J, Jr., Kosinski M, Keller SD. A 12-Item Short-Form health survey: construction of scales and preliminary tests of reliability and validity. Med Care. 1996;34(3):220–233.
  • Sintonen H. The 15D instrument of health-related quality of life: properties and applications. Ann Med. 2001;33(5):328–336.
  • Belle SH, Porayko MK, Hoofnagle JH, et al. Changes in quality of life after liver transplantation among adults. National institute of diabetes and digestive and kidney diseases (NIDDK) Liver transplantation database (LTD). Liver Transpl. 1997;3(2):93–104.
  • Torrance GW, Feeny DH, Furlong WJ, et al. Multiattribute utility function for a comprehensive health status classification system. Health utilities index mark 2. Med Care. 1996;34(7):702–722.
  • Feeny D, Furlong W, Torrance GW, et al. Multiattribute and single-attribute utility functions for the health utilities index mark 3 system. Med Care. 2002;40(2):113–128.
  • Hunt SM, Mckenna SP, Mcewen J, et al. The nottingham health profile: subjective health status and medical consultations. Soc Sci Med A. 1981;15(3 Pt 1):221–229.
  • Reeve BB, Hays RD, Bjorner JB, et al. PROMIS Cooperative Group. Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported outcomes measurement information system (PROMIS). Med Care. 2007;45(5 Suppl 1):S22–S31.
  • Yagi M, Tanaka A, Namisaki T, et al. Japan PBC Study Group (JPBCSG). Is patient-reported outcome improved by nalfurafine hydrochloride in patients with primary biliary cholangitis and refractory pruritus? A post-marketing, single-arm, prospective study. J Gastroenterol. 2018;53(10):1151–1158.
  • Turco M, Cazzagon N, Franceschet I, et al. Morning bright light treatment for Sleep-Wake disturbances in primary biliary cholangitis: a pilot study. Front Physiol. 2018;9:1530.
  • Raszeja-Wyszomirska J, Wunsch E, Krawczyk M, et al. Assessment of health related quality of life in polish patients with primary biliary cirrhosis. Clin Res Hepatol Gastroenterol. 2016;40(4):471–479.
  • Bondini S, Kallman J, Dan A, et al. Health-related quality of life in patients with chronic hepatitis B. Liver Int. 2007;27(8):1119–1125.
  • Charatcharoenwitthaya P, Talwalkar JA, Angulo P, et al. Moexipril for treatment of primary biliary cirrhosis in patients with an incomplete response to ursodeoxycholic acid. Dig Dis Sci. 2010;55(2):476–483.

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