Adults with Acquired Traumatic Brain Injury: Experiences of a Changeover Process and Consequences in Everyday Life

REFERENCES

• Andersson , E.H. , Björklund , R. , Emanuelson , I. and Stålhammar , D. 2003 . Epidemiology of traumatic brain injury: A population based study in western Sweden . Acta Neurologica Scandinavica , 107 : 256 – 259 .
   PubMed Web of Science ®Google Scholar
• van Balen , H.G.G. , Mulder , Th. and Keyser , A. 1996 . Towards a disability-oriented epidemiology of traumatic brain injury . Disability and Rehabilitation , 18 ( 4 ) : 181 – 190 .
   PubMed Web of Science ®Google Scholar
• Berner , B. 2005 . “ Att skapa och analysera ett material: erfarenheter från fältet [How to create and analyse a material: Experiences from the field] ” . In Samhällsvetenskapens hantverk [The Art of Social Sciences] , Edited by: Bergman , P. , Berner , B. , Dannefjord , P. , Franssén , A. and Mills , C. W. 117 – 146 . Lund : Arkiv förlag .
   Google Scholar
• Bondanelli , M. , Ambrosio , M.R. , Zatelli , M.C. , De Marinis , L. and degli Uberti , E.C. 2005 . Hypopituitarism after traumatic brain injury . European Journal of Endocrinology , 152 : 679 – 691 .
   PubMed Web of Science ®Google Scholar
• Campbell , M. 2000 . Rehabilitation for Traumatic Brain Injury: Physical Therapy Practice in Context , Edinburgh : Churchill Livingstone .
   Google Scholar
• Chamberlain , D.J. 2006 . The experience of surviving traumatic brain injury . Journal of Advanced Nursing , 54 ( 4 ) : 407 – 417 .
   PubMed Web of Science ®Google Scholar
• Clarke , E. and Dewhurst , K. 1996 . An Illustrated History of Brain Function: Imaging the Brain From Antiquity to the Present , 2nd , San Francisco, CA : Norman Publishing .
   Google Scholar
• Clarke , E. and O'Malley , C.D. 1996 . The Human Brain and Spinal Cord: A Historical Study Illustrated by Writings From Antiquity to the Twentieth Century , 2nd , San Francisco, CA : Norman Publishing .
   Google Scholar
• Corbin , J.M. and Strauss , A. 1988 . Unending Work and Care: Managing Chronic Illness at Home , San Francisco and London : Jossey Bass .
   Google Scholar
• Danermark , B. , Ekström , M. , Jakobsen , L. and Karlsson , J. Ch. 2002 . Explaining Society: Critical Realism in the Social Sciences , London and New York : Routledge .
   Google Scholar
• Dannefjord , P. 2005 . “ Metod och problem—en inledning till sociologisk analys [Method and problem—an introduction to sociological analysis] ” . In Samhällsvetenskapens hantverk , Edited by: Bergman , P. , Berner , B. , Dannefjord , P. , Franssén , A. and Mills , C. W. 13 – 46 . Lund : Arkiv förlag . [The Art of Social Sciences]
   Google Scholar
• Dean , S. , Colantonio , A. , Ratcliff , G. and Chase , S. 2000 . Client's perspectives on problems many years after traumatic brain injury . Psychological Reports , 86 : 653 – 658 .
   PubMed Web of Science ®Google Scholar
• Eriksson , P.S. 2003 . Neurogenesis and its implications for regeneration in the adult brain . Journal of Rehabilitation Medicine, Supplement. , 41 : 17 – 19 .
   Google Scholar
• Eysenck , M.W. and Keane , M.T. 2000 . Cognitive Psychology: A Student's Handbook , 4th , East Sussex, UK : Psychology Press Ltd .
   Google Scholar
• Fine , M. and Glendinning , C. 2005 . Dependence, independence or inter-dependence? Revisiting the concepts of ‘care’ and ‘dependency.’ . Ageing & Society , 25 : 601 – 621 .
   Web of Science ®Google Scholar
• Finset , A. and Krogstad , J.M. 2002 . Hodeskade: virkninger og behandling av ulike typer hodeskade , Oslo : Cappelen akademisk forlag . [Brain Injury: Effects and Treatments of Different Types of Brain Injuries]
   Google Scholar
• Fischer , S. , Gauggel , S. and Trexler , L.E. 2004 . Awareness of activity limitations, goal setting and rehabilitation outcome in patients with brain injuries . Brain Injury , 18 ( 6 ) : 547 – 562 .
   PubMed Web of Science ®Google Scholar
• Freeman , E.A. 1997 . Community-based rehabilitation of the person with a severe brain injury . Brain Injury , 11 ( 2 ) : 143 – 153 .
   PubMed Web of Science ®Google Scholar
• Gerstenbrand , F. and Stepan , Ch.A . 2001 . Mild traumatic brain injury . Brain Injury , 15 ( 2 ) : 95 – 97 .
   PubMed Web of Science ®Google Scholar
• Goldstein , K. 1942 . Aftereffects of Brain Injuries in War: Their Evaluation and Treatment: The Application of Psychologic Methods in the Clinic , New York : Grune & Stratton .
   Google Scholar
• Graham , H. 1983 . “ Caring: A labour of love ” . In A Labour of Love: Women, Work and Caring , Edited by: Finch , J. and Groves , D. 13 – 30 . London : Routledge & Kegan Paul .
   Google Scholar
• Graneheim , U.H. and Lundman , B. 2004 . Qualitative content analysis in nursing research: Concepts, procedures and measures to achieve trustworthiness . Nurse Education Today , 24 : 105 – 112 .
   PubMed Web of Science ®Google Scholar
• Gustavsson , A. 2004 . The role of theory in disability research: Springboard or strait-jacket? . Scandinavian Journal of Disability Research , 6 ( 1 ) : 55 – 70 .
   Google Scholar
• Harrison , C.L. and Dijkers , M. 1992 . Traumatic brain injury registries in the United States: An overview . Brain Injury , 6 ( 3 ) : 203 – 212 .
   PubMedGoogle Scholar
• Hodgkinson , A. , Veerabangsa , A. , Drane , D. and McCluskey , A. 2000 . Service utilization following Traumatic Brain Injury . Journal of Head Trauma Rehabilitation , 15 ( 6 ) : 1208 – 1226 .
   PubMed Web of Science ®Google Scholar
• Honneth , A. 1995 . The Struggle for Recognition: The Moral Grammar of Social Conflicts , Cambridge : Polity Press .
   Google Scholar
• Inkmann , C.M. 2001 . The Sense of Shattered Self Following Mild Traumatic Brain Injury , Dissertation : Pacifica Graduate Institute . (UMI No. 3008493)
   Google Scholar
• Johansson , U. 2004 . Long-Term Outcome After Brain Injury: With a Focus on Return to Work, Life Satisfaction and Participation , Dissertation : Umeå University .
   Google Scholar
• Johnson , B. 1995 . One family's experience with head injury: A phenomenological study . Journal of Neuroscience Nursing , 27 ( 2 ) : 113 – 118 .
   PubMedGoogle Scholar
• Johnson , S. 2003 . The importance of a comprehensive brain injury program . The Case Manager , 14 ( 2 ) : 58 – 63 .
   PubMedGoogle Scholar
• Jumisko , E. 2005 . Being Forced to Live a Different Everyday Life: The Experiences of People with Traumatic Brain Injury and Those of Their Close Relatives , Licentiate Thesis. Luleå University of Technology, Department of Health Sciences .
   Google Scholar
• Krogstad , J.M. 2001 . Vad är förvärvad hjärnskada? , Mölndal : GlaxoSmithKline . [What is Acquired Brain Injury?]
   Google Scholar
• Kvale , S. 1996 . Interviews: An Introduction to Qualitative Research Interviewing , Thousand Oaks, CA : Sage .
   Google Scholar
• Lewington , P. 1996 . What is the Meaning of Recovery as Lived by Persons with Traumatic Brain Injury? (Dissertation abstract) , Canada : The University of British Columbia .
   Google Scholar
• Lippert-Grüner , M. , Wedekind , Ch. and Klug , N. 2002 . Functional and psychosocial outcome one year after severe traumatic brain injury and early-onset rehabilitation therapy . Journal of Rehabilitation Medicine , 34 : 211 – 214 .
   PubMed Web of Science ®Google Scholar
• Luria , A.R. 1973 . The Working Brain: An Introduction to Neuropsychology , New York : Basic Books .
   Google Scholar
• Mazaux , J.-M. , Masson , F. , Levin , H.S. , Alaoui , P. , Maurette , P. and Barat , M. 1997 . Long-term neuropsychological outcome and loss of social autonomy after traumatic brain injury . Archives of Physical Medicine and Rehabilitation , 78 : 1316 – 1320 .
   PubMed Web of Science ®Google Scholar
• Mead , G.H. 1976 . Medvetandet, jaget och samhället: från socialbehavioristisk ståndpunkt , Lund : Argos förlag . [Mind, Self and Society]
   Google Scholar
• Mellergård , P. 1998 . Grundläggande neurokirurgi , Lund : Studentlitteratur . [Basic Neurosurgery]
   Google Scholar
• Morse , J.M. and Richards , L. 2002 . Read Me First for a User's Guide to Qualitative Methods , London : Sage .
   Google Scholar
• Nochi , M. 1997 . Dealing with the ‘Void’: Traumatic brain injury as a story . Disability & Society , 12 ( 4 ) : 533 – 555 .
   Web of Science ®Google Scholar
• Nochi , M. 1998a . ”Loss of self” in the narratives of people with traumatic brain injuries: A qualitative analysis . Social Science & Medicine , 46 ( 7 ) : 869 – 878 .
   PubMed Web of Science ®Google Scholar
• Nochi , M. 1998b . Struggling with the labeled self: People with traumatic brain injuries in social settings . Qualitative Health Research , 8 ( 5 ) : 665 – 681 .
   PubMed Web of Science ®Google Scholar
• Nochi , M. 2000 . Reconstructing self-narratives in coping with traumatic brain injury . Social Science & Medicine , 51 : 1795 – 1804 .
   PubMed Web of Science ®Google Scholar
• Nordenfelt , L. 2003 . Action theory, disability and ICF . Disability & Rehabilitation , 25 ( 18 ) : 1075 – 1079 .
   PubMed Web of Science ®Google Scholar
• Nordgren , C. , Levi , R. , Ljunggren , G. and Seiger , Å. 2003 . Societal services after traumatic spinal cord injury in Sweden . Journal of Rehabilitation Medicine , 35 : 121 – 126 .
   PubMed Web of Science ®Google Scholar
• Oatley , K. and Jenkins , J.M. 1992 . Human emotions: Function and dysfunction . Annual Review of Psychology , 43 : 55 – 85 .
   PubMed Web of Science ®Google Scholar
• Oddy , M. and McMillan , T.M. 2001 . “ Future directions: Brain injury services in 2010 ” . In Neurobehavioural Disability and Social Handicap Following Traumatic Brain Injury , Edited by: Wood , R.L. and McMillan , T.M. 287 – 296 . Hove, East Sussex : Psychology Press .
   Google Scholar
• Ödman , P.-J. 2004 . “ Hermeneutik och forskningspraktik [Hermeneutic and Research Practice] ” . In Kunskapande metoder inom samhällsvetenskapen [Methods and Knowledge in Social Science] , 3rd , Edited by: Gustavsson , B. 71 – 93 . Lund : Studentlitteratur .
   Google Scholar
• O'Leary , C.A. 2000 . Reducing aggression in adults with brain injuries . Behavioral Interventions , 15 : 205 – 216 .
   Web of Science ®Google Scholar
• Peloso , P.M. , von Holst , H. and Borg , J. 2004 . Mild traumatic brain injuries presenting to Swedish hospitals in 1987–2000 . Journal of Rehabilitation Medicine, Supplement , 43 : 22 – 27 .
   Google Scholar
• Rosenthal , M. , Christensen , B.K. and Ross , T.P. 1998 . Depression following traumatic brain injury . Archives of Physical Medicine and Rehabilitation , 79 : 90 – 103 .
   PubMed Web of Science ®Google Scholar
• Sjödén , S. 1998 . Som en bro: att möta och förstå förvärvad hjärnskada , Västerås : Författarhuset . [As a Bridge: To Meet and Understand Acquired Brain Injury]
   Google Scholar
• Strandberg , T. 2006 . Vuxna med förvärvad traumatisk hjärnskada , Dissertation : Örebro University . [Adults with Acquired Traumatic Brain Injury]
   Google Scholar
• Stålnacke, B.-M., Styrke, J., Sojka, P., & Björnstig, U. (2005). Skallskadade i Umeå 2001: Epidemiologi och långtidsuppföljning [Head Injured in Umeå 2001: Epidemiology and Long-Time Follow-Up] (Rapport nr 128). Umeå: Umeå universitet & Norrlands universitetssjukhus http://www.hjarnkraft.nu/Skallskadorrapport128.pdf (Accessed: 18 April 2006 ).
   Google Scholar
• Swedish Research Council . 2002 . Forskningsetiska principer inom humanistisk- samhällsvetenskaplig forskning , Stockholm : Vetenskapsrådet . [Research Ethics Principles in Humanistic- Social Scientific Research]
   Google Scholar
• Söderback , I. and Ekholm , J. 1992 . Medical and social factors affecting behaviour patterns in patients with acquired brain damage: A study of patients living at home three years after the incident . Disability and Rehabilitation , 14 ( 1 ) : 30 – 35 .
   PubMedGoogle Scholar
• Tagliaferri , F. , Compagnone , C. , Korsic , M. , Servadei , F. and Kraus , J. 2006 . A systematic review of brain injury epidemiology in Europe . Acta Neurochirurgica , 148 : 255 – 268 .
   PubMed Web of Science ®Google Scholar
• Tham , K. , Borell , L. and Gustavsson , A. 2000 . The discovery of disability: A phenomenological study of unilateral neglect . The American Journal of Occupational Therapy , 54 : 398 – 406 .
   PubMed Web of Science ®Google Scholar
• Thomsen , I.V. 1992 . Late psychosocial outcome in severe traumatic brain injury . Scandinavian Journal of Rehabilitation Medicine, Supplement , 26 : 142 – 152 .
   PubMedGoogle Scholar
• Toglia , J.P. 2005 . “ A dynamic interactional approach to cognitive rehabilitation ” . In Cognition & Occupation Across the Life Span: Models for Intervention in Occupational Therapy , Edited by: Katz , N. 29 – 72 . Bethesda, MD : American Occupational Therapy Association .
   Google Scholar