Support for Siblings of NICU Patients: An Interdisciplinary Approach

REFERENCES

• Ahmann , E. , Abraham , M.R. and Johnson , B.H. 2003 . Changing the Concept of Families as Visitors: Supporting Family Presence and Participation , Bethesda, MD : Institute for Family-Centered Care .
   Google Scholar
• American Academy of Pediatrics/American College of Obstetricians and Gynecol ogists . 2007 . Guidelines for Perinatal Care , 6th Washington, DC
   Google Scholar
• American Academy of Pediatrics Committee on Fetus and Newborn . 1985 . Postpartum (neonatal) sibling visitation . Pediatrics , 76 ( 4 ) : 650
   PubMedGoogle Scholar
• Andrade , T.M. 1998 . Sibling visitation: Research implications for pediatric and neonatal patients . The Online Journal of Knowledge Synthesis for Nursing , 5 ( 6 ) : 1 – 7 .
   PubMedGoogle Scholar
• Bachman , D.H. and Lind , R.F. 1997 . Perinatal social work and the family of the newborn intensive care unit . Social Work in Health Care , 24 ( 3–4 ) : 21 – 37 .
   PubMed Web of Science ®Google Scholar
• Boyd , S. 2004 . Moderating parental stress in the NICU . Journal of Neonatal Nursing , 10 ( 3 ) : 82 – 84 .
   Google Scholar
• Brandon , M. and Maas , A. 2009 . Getting the most out of interdisciplinary teams . NAPSW Forum , 29 ( 4 ) : 1 – 6 .
   Google Scholar
• Browne , J.V. , Sanchez , E. , Langlois , A. and Smith , S. 2004 . From visitation policies to family participation guidelines in the NICU: The experience of the Colorado Consortium of Intensive Care Nurseries . Neonatal, Pediatric and Child Health Nursing , 7 ( 2 ) : 16 – 23 .
   Google Scholar
• Browne , T.A. 2006 . “ Social work roles and health-care settings ” . In Handbook of Health Social Work , Edited by: Gehlert , S. and Browne , T.A. 305 – 334 . Hoboken, NJ : John Wiley & Sons, Inc .
   Google Scholar
• Buarque , V. , Lima , M.C. , Scott , R.P. and Vasconcelos , M.G.L. 2006 . The influence of support groups on the family of risk newborns and on neonatal unit workers . Journal de Pediatria , 82 ( 4 ) : 295 – 301 .
   Google Scholar
• Camhi , C. 2005 . Siblings of premature babies: Thinking about their experience . Infant Observation , 8 ( 3 ) : 209 – 233 .
   Google Scholar
• Consolvo , C.A. 1987 . Siblings in the NICU . Neonatal Network—Journal of Neonatal Nursing , 5 ( 5 ) : 7 – 12 .
   PubMedGoogle Scholar
• Cooper , L.G. , Gooding , J.S. , Gallagher , J. , Sternesky , L. , Ledsky , R. and Berns , S.D. 2007 . Impact of a family-centered care initiative on NICU care, staff and families . Journal of Perinatology , 27 : 32 – 37 .
   PubMed Web of Science ®Google Scholar
• Doak , S. and Wallace , N. 1975 . The doctors wear pajamas . Journal of the Association for the Care of Children in Hospitals , 3 ( 3 ) : 70 – 76 .
   Google Scholar
• Doll-Speck , L. , Miller , B. and Rohrs , K. 1993 . Sibling education: Implementing a program for the NICU . Neonatal Network—Journal of Neonatal Nursing , 12 ( 4 ) : 49 – 52 .
   PubMedGoogle Scholar
• Edi-Osagie , N.E. and Evans , V. 2005 . Bereavement support in neonatal intensive care . Infant , 1 ( 6 ) : 203 – 206 .
   Google Scholar
• Fanos , J.H. , Little , G.A. and Edwards , W.H. 2009 . Candles in the snow: Ritual and memory for siblings of infants who died in the intensive care nursery . Journal of Pediatrics , 154 ( 6 ) : 849 – 853 .
   PubMed Web of Science ®Google Scholar
• Franklin , C. 2006 . The neonatal nurse's role in parental attachment in the NICU . Critical Care Nursing Quarterly , 29 ( 1 ) : 81 – 85 .
   PubMedGoogle Scholar
• Gaynard , L. , Wolfer , J. , Goldberger , J. , Thompson , R. , Redburn , L. and Laidley , L. 1998 . Psychosocial Care of Children in Hospitals: A Clinical Practice Manual from the ACCH Child Life Research Project , Rockville, MD : Child Life Council .
   Google Scholar
• Glasser , S. , Lerner-Geva , L. , Levitski , O. and Reichman , B. 2009 . Parent support activities in neonatal intensive care units: A national survey in Israel . Harefuah , 148 ( 4 ) : 238 – 242 .
   PubMedGoogle Scholar
• Greisen , G. , Mirante , N. , Haumont , D. , Pierrat , V. , Pallas-Alonso , C.R. , Warren , I. , Smit , B.J. , Westrup , B. , Sizun , J. , Maraschini , A. and Cuttini , M. 2009 . Parents, siblings and grandparents in the neonatal intensive care unit: A survey of policies in eight European countries . Acta Paediatrica , 98 ( 11 ) : 1744 – 1750 .
   PubMed Web of Science ®Google Scholar
• Griffin , T. 2009 . Changing the view that families are visitors: Strategies that support family presence in newborn intensive care and pediatric settings . Webinar hosted by The Institute for Family-Centered Care (6/9/09). ,
   Google Scholar
• Hamrick , W.B. and Reilly , L. 1992 . A comparison of infection rates in a newborn intensive care unit before and after adoption of open visitation . Neonatal Network , 11 : 15 – 18 .
   PubMedGoogle Scholar
• Helen DeVos Children's Hospital NICU . 2007 . Family, Approved Person and Visitor Guidelines , Grand Rapids, MI : HDVCH NICU .
   Google Scholar
• Helen DeVos Children's Hospital NICU . 2009a . Brother & Sister Health Screen Form , Grand Rapids, MI : Helen DeVos Children's Hospital NICU .
   Google Scholar
• Helen DeVos Children's Hospital NICU . 2009b . Neonatal Sibling Playtime , Grand Rapids, MI : HDVCH NICU .
   Google Scholar
• Helen DeVos Children's Hospital NICU . 2009c . Parent-to-Parent Partnership Brochure , Grand Rapids, MI : HDVCH NICU . Also available in Spanish
   Google Scholar
• Helen DeVos Children's Hospital, A Member of Spectrum Health, Grand Rapids, MI (2010). Website: devoschildrens.org (http://devoschildrens.org)
   Google Scholar
• Horbar , J.D. 1999 . The Vermont Oxford Network: Evidence-based quality improvement for neonatology . Pediatrics , 103 : 350 – 359 .
   PubMedGoogle Scholar
• Institute for Family Centered Care (IFCC). (2010). Website: familycenteredcare.org (http://familycenteredcare.org) , Bethesda, MD
   Google Scholar
• Johnson , B. 1995 . Newborn intensive care units pioneer family-centered change in hospitals across the country . Zero to Three , 15 ( 6 ) : 11 – 17 .
   Google Scholar
• Johnson , B.H. , Abraham , M.A. and Parrish , R.N. 2004 . Designing the neonatal intensive care unit for optimal family involvement . Clinical Perinatology , 31 ( 2 ) : 353 – 382 .
   PubMed Web of Science ®Google Scholar
• Kitchen , A. and Brook , J. 2005 . Social work at the heart of the medical team . Social Work in Health Care , 40 ( 4 ) : 1 – 18 .
   PubMed Web of Science ®Google Scholar
• Kowba , M.D. and Schwirian , P.M. 1985 . Direct sibling contact and bacterial colonization in newborns . Journal of Obstetric, Gynecologic, and Neonatal Nursing , 14 ( 5 ) : 412 – 417 .
   PubMedGoogle Scholar
• Lam , J. , Spence , K. and Halliday , R. 2007 . Parents' perception of nursing support in the neonatal intensive care unit . Nursing , 10 ( 3 ) : 19 – 25 .
   Google Scholar
• Lavta , R. , Lehtonen , L. , Salmelin , R.K. and Tamminen , T. 2007 . Visits by the family to the neonatal intensive care unit . Acta Paediatrica , 96 : 215 – 220 .
   PubMed Web of Science ®Google Scholar
• Levick , J. 2009 . “I'm Special, Too”: Sibling Support in the NICU information guide , Rev. (Available from Helen DeVos Children's Hospital NICU, Grand Rapids, MI, in English and Spanish)
   Google Scholar
• Lewandowski , L.A. and Tesler , M.D. 2003 . Family-Centered Care: Putting it into Action , Washington, DC : American Nurses Association .
   Google Scholar
• Lindsay , J.K. , Roman , L. , DeWys , M. , Eager , M. , Levick , J. and Quinn , M. 1993 . Creative caring in the NICU: Parent-to-parent support . Neonatal Network , 12 ( 4 ) : 37 – 44 .
   PubMedGoogle Scholar
• Macnab , A.J. , Sheckter , L.A. , Hendry , N.J. , Pendray , M.R. and Macnab , G. 1985 . Group support for parents of high risk neonates: An interdisciplinary approach . Social Work in Health Care , 10 ( 4 ) : 63 – 71 .
   PubMed Web of Science ®Google Scholar
• Maloney , M.J. 1983 . A prospective, controlled study of sibling visits to a newborn intensive care unit . Journal of the American Academy of Child Psychiatry , 22 ( 6 ) : 565 – 570 .
   PubMedGoogle Scholar
• Malusky , S.K. 2005 . A concept analysis of family-centered care in the NICU . Neonatal Network—Journal of Neonatal Nursing , 24 ( 6 ) : 25 – 32 .
   PubMedGoogle Scholar
• March of Dimes Foundation . 2007 . Siblings and the NICU: Helping Your Children Cope White Plains, NY
   Google Scholar
• March of Dimes. (2010). Website: marchofdimes.com (http://marchofdimes.com) . White Plains, NY
   Google Scholar
• McAllister , M. and Dionne , K. 2006 . Partnering with parents: Establishing effective long-term relationships with parents in the NICU . Neonatal Network , 25 ( 5 ) : 329 – 337 .
   PubMedGoogle Scholar
• Meyer , E.C. , Kennally , K.F. , Zika-Beres , E. , Cashore , W.J. and Oh , W. 1996 . Attitudes about sibling visitation in the neonatal intensive care unit . Archives of Pediatrics & Adolescent Medicine , 150 ( 10 ) : 1021 – 1026 .
   PubMedGoogle Scholar
• Moore , K.S. , Coker , K. and DuBusson , A.B. 2003 . Implementing potentially better practices for improving family centered care in the neonatal intensive care unit: Successes and challenges . Pediatrics , 111 ( 4 ) : 450 – 460 .
   Google Scholar
• Munch , S. 2001a . My ME Book (Rev. ed.). Children's workbook, 15 pages , Grand Rapids, MI : Available from Helen DeVos Children's Hospital NICU .
   Google Scholar
• Munch , S. 2001b . My NICU Story (Rev. ed.). Children's workbook, 23 pages , Grand Rapids, MI : Available from HDVCH NICU .
   Google Scholar
• Munch , S. and Levick , J. 2001 . “I'm special, too”: Promoting sibling adjustment in the neonatal intensive care unit . Health and Social Work , 26 ( 1 ) : 58 – 64 .
   PubMed Web of Science ®Google Scholar
• Newman , C.B. and McSweeney , M. 1990 . A descriptive study of sibling visitation in the NICU . Neonatal Network , 9 ( 4 ) : 27 – 31 .
   PubMedGoogle Scholar
• Oehler , J.M. and Vileisis , R.A. 1990 . Effect of early sibling visitation in an intensive care nursery . Journal of Developmental & Behavioral Pediatrics , 11 ( 1 ) : 7 – 12 .
   PubMed Web of Science ®Google Scholar
• Peters , P. 2002 . The Tiniest Gift: A Story for Siblings of Hospitalized Newborns , Grand Rapids, MI : HDVCH NICU .
   Google Scholar
• Rolland , J.S. and Werner-Lin , A. 2006 . “ Families, health, and illness ” . In Handbook of Health Social Work , Edited by: Gehlert , S. and Browne , T.A. 23 – 42 . Hoboken, NJ : John Wiley & Sons, Inc .
   Google Scholar
• Roman , L. , Lindsay , J.K. , Boger , R.P. , DeWys , M. , Beaumont , E.J. , Jones , A.S. and Haas , B. 1995 . Parent-to-parent support initiated in the neonatal intensive care unit . Research in Nursing and Health , 18 : 385 – 394 .
   PubMed Web of Science ®Google Scholar
• Saltz , C.C. and Schaefer , T. 1996 . Interdisciplinary teams in health care: Integration of family caregivers . Social Work in Health Care , 22 ( 3 ) : 59 – 70 .
   PubMed Web of Science ®Google Scholar
• Schwab , F. , Tolbert , B. , Bagnato , S. and Maisels , M.J. 1983 . Sibling visiting in a neonatal intensive care unit . Pediatrics , 71 ( 5 ) : 835 – 838 .
   PubMed Web of Science ®Google Scholar
• Schwarz , B. , Fatzinger , C. and Meier , P. 2004 . Rush specialkare keepsakes: Families celebrating the NICU journey . American Journal of Maternal Child Nursing , 29 ( 6 ) : 1 – 4 .
   Google Scholar
• Soleheim , K. and Spellacy , C. 1988 . Sibling visitation: Effects on newborn infection rates . Journal of Obstetric, Gynecologic, and Neonatal Nursing , 17 ( 1 ) : 43 – 48 .
   PubMedGoogle Scholar
• Umphenour , J.H. 1980 . Bacterial colonization in neonates with sibling visitation . JOGN Nursing , 2 : 73 – 75 .
   Google Scholar
• Wranesh , B.L. 1982 . The effect of sibling visitation on bacterial colonization rates in neonates . JOGN Nursing , 11 ( 4 ) : 211 – 213 .
   PubMedGoogle Scholar