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Original Article

Assessing the quality of bereavement care after perinatal death: development and piloting of a questionnaire to assess parents’ experiences

, , , & ORCID Icon
Pages 931-936 | Received 21 Mar 2016, Accepted 18 Mar 2017, Published online: 21 Jun 2017

References

  • Avelin P, Rådestad I, Säflund K, Wredling R, Erlandsson K. 2013. Parental grief and relationships after the loss of a stillborn baby. Midwifery 29:5.
  • Cacciatore J, Erlandsson K, Rådestad I. 2013. Fatherhood and suffering: a qualitative exploration of Swedish men’s experiences of care after the death of a baby. International Journal of Nursing Studies 50:6.
  • Cole M. 2012. Lactation after perinatal, neonatal, or infant loss. Clinical Lactation 3:94–100.
  • D'Agostino NM, Berlin-Romalis D, Jovcevska V, Barrera M. 2008. Bereaved parents’ perspectives on their needs. Palliative Supportive Care 6:8.
  • Downe S, Schmidt E, Kingdon C, Heazell AE. 2012. Bereaved parents’ experience of stillbirth in UK hospitals: a qualitative interview study. BMJ Open 3:11.
  • Flenady V, Boyle F, Koopmans L, Wilson T, Stones W, Cacciatore J. 2014. Meeting the needs of parents after a stillbirth or neonatal death. BJOG: An International Journal of Obstetrics & Gynaecology 121(Suppl 4):3.
  • Flenady V, Wojcieszek AM, Middleton P, Ellwood D, Erwich JJ, Coory M, et al. 2016. Stillbirths: recall to action in high-income countries. The Lancet 387:691–702.
  • Heazell AE, McLaughlin MJ, Schmidt EB, Cox P, Flenady V, Khong TY, et al. 2012. A difficult conversation? The views and experiences of parents and professionals on the consent process for perinatal postmortem after stillbirth. BJOG: An International Journal of Obstetrics & Gynaecology 119:10.
  • Heazell AE, Siassakos D, Blencowe H, Burden C, Bhutta ZA, Cacciatore J, et al. 2016. Stillbirths: economic and psychosocial consequences. The Lancet 387:604–616.
  • Henley A, Schott J. 2011. The Sands audit tool for maternity services: caring for parents whose baby has died. London. Stillbirth and Neonatal Death Charity.
  • Holland JM, Futterman A, Thompson LW, Moran C, Gallagher-Thompson D. 2013. Difficulties accepting the loss of a spouse: a precursor for intensified grieving among widowed older adults. Death Studies 37:18.
  • Horey D, Flenady V, Conway L, McLeod E, Khong TY. 2014. Decision influences and aftermath: parents, stillbirth and autopsy. Health Expectations 17:10.
  • Kersting A, Wagner B. 2012. Complicated grief after perinatal loss. Dialogues in Clinical Neuroscience 14:7.
  • Kingdon C, Givens JL, O'Donnell E, Turner M. 2015. Seeing and holding baby: systematic review of clinical management and parental outcomes after stillbirth. Birth 42:206–218.
  • Koopmans L, Wilson T, Cacciatore J, Flenady V. 2013. Support for mothers, fathers and families after perinatal death. Cochrane Database of Systematic Review 6:CD000452.
  • Lawn JE, Blencowe H, Oza S, You D, Lee AC, Waiswa P, et al. 2014. Every newborn: progress, priorities, and potential beyond survival. The Lancet 384:189–205.
  • Lawn JE, Blencowe H, Waiswa P, Amouzou A, Mathers C, Hogan D, et al. 2016. Stillbirths: rates, risk factors, and potential for progress towards 2030. The Lancet 387:587–603.
  • Malm MC, Rådestad I, Erlandsson K, Lindgren H. 2011. Waiting in no-man’s-land: mothers’ experiences before the induction of labour after their baby has died in utero. Sexual & Reproductive Healthcare 2:51–55.
  • Mills TA, Ricklesford C, Cooke A, Heazell AE, Whitworth M, Lavender T. 2014. Parents' experiences and expectations of care in pregnancy after stillbirth or neonatal death: a metasynthesis. BJOG: An International Journal of Obstetrics & Gynaecology 121:943–950.
  • Murphy S. 2012. Reclaiming a moral identity: stillbirth, stigma and ‘moral mothers’. Midwifery 28:476–480.
  • O'Connell O, Meaney S, O'Donoghue K. 2016. Caring for parents at the time of stillbirth: How can we do better? Women Birth 29:345–349.
  • Office of National Statistics. 2016. Deaths Registered in England and Wales, 2014. Available from http://www.ons.gov.uk/ons/rel/vsob1/death-reg-sum-tables/2013/sb-deaths-first-release–2013.html#tab-Still-births.
  • Rådestad I, Malm MC, Lindgren H, Pettersson K, Larsson LL. 2014. Being alone in silence: mothers’ experiences upon confirmation of their baby’s death in utero. Midwifery 30:e91–e95.
  • Redshaw M, Rowe R, Henderson J. 2014. Listening to parents after stillbirth or the death of their baby. Oxford: University of Oxford. p. 57.
  • Royal College of Obstetricians and Gynaecologists. 2010. Green-top guideline 55: late intrauterine fetal death and stillbirth. Available from: www.rcog.org.uk/globalassets/documents/guidelines/gtg-55-31072013.pdf.
  • Trulsson O, Rådestad I. 2004. The silent child-mothers’ experiences before, during, and after stillbirth. Birth 31:189–195.

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