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Original Articles

Letters to medical devices: a case study on the medical device user requirements of adolescents with type 1 diabetes

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Pages 39-48 | Received 03 Sep 2018, Accepted 07 Apr 2019, Published online: 22 Apr 2019

References

  • Boehner, Kirsten, Janet Vertesi, and Phoebe Sengers. 2007. “How HCI Interprets the Probes.” In Proceedings of theSIGCHI Conference on Human Factors in Computing Systems, CHI ’07, 1077–1086. New York, NY: ACM. https://doi.org/10.1145/1240624.1240789.
  • Borus, Joshua S., and Lori Laffel. 2010. “Adherence Challenges in the Management of Type 1 Diabetes in Adolescents: Prevention and Intervention.” Current Opinion in Pediatrics 22 (4): 405–411. doi:10.1097/MOP.0b013e32833a46a7.
  • Burrows, Alison, Val Mitchell, and Colette Nicolle. 2015. “Cultural Probes and Levels of Creativity.” In Proceedings of the 17th International Conference on Human-Computer Interaction with Mobile Devices and Services Adjunct, 920–923. Copenhagen: ACM.
  • Cameron, F. 2006. “Teenagers with Diabetes: Management Challenges.” Australian Family Physician 35 (6): 386–390.
  • Carroll, Aaron E., Stephen M. Downs, and David G. Marrero. 2007. “What Adolescents With Type I Diabetes and Their Parents Want From Testing Technology: A Qualitative Study.” CIN: Computers, Informatics, Nursing 25 (1): 23–29.
  • Carter, B. 2009. “Tick Box for Child? The Ethical Positioning of Children as Vulnerable, Researchers as Barbarians and Reviewers as Overly Cautious.” International Journal of Nursing Studies 46 (6): 858–864. doi:10.1016/j.ijnurstu.2009.01.003.
  • Charmaz, K. 2006. Constructing Grounded Theory: A Practical Guide Through Qualitative Analysis. 1st ed. London: Sage.
  • Craig, M. E., S. M. Twigg, K. C. Donaghue, N. W. Cheung, F. J. Cameron, J. Conn, A. J. Jenkins, and M. Silink. 2011. National Evidence-Based Clinical Care Guidelines for Type 1 Diabetes in Children, Adolescents and Adults. Canberra: Australian Government Department of Health and Ageing. http://www.apeg.org.au/portals/0/guidelines1.pdf.
  • Croom, Andrea, Deborah J. Wiebe, Cynthia A. Berg, Rob Lindsay, David Donaldson, Carol Foster, Mary Murray, and Michael T. Swinyard. 2010. “Adolescent and Parent Perceptions of Patient-centered Communication While Managing Type 1 Diabetes.” Journal of Pediatric Psychology 36 (2): 206–215. doi: 10.1093/jpepsy/jsq072
  • Davis, Janet. 2012. “Early Experiences with Participation in Persuasive Technology Design.” In Proceedings of the 12th Participatory Design Conference: Research Papers – Volume 1, 119–128. PDC ‘12. New York: ACM. doi:10.1145/2347635.2347653.
  • Diabetes Control and Complications Trial Research Group. 1994. “Effect of Intensive Diabetes Treatment on the Development and Progression of Long-term Complications in Adolescents with Insulin-dependent Diabetes Mellitus: Diabetes Control and Complications Trial.” The Journal of Pediatrics 125 (2): 177–188. doi:10.1016/S0022-3476(94)70190-3.
  • Elkind, David. 1998. All Grown up and No Place to Go: Teenagers in Crisis. Revised. Cambridge, MA: Da Capo Press.
  • Fogg, B. J., and Jason Hreha. 2010. “Behavior Wizard: A Method for Matching Target Behaviors with Solutions.” In Persuasive Technology, 117–131. Springer. http://link.springer.com/chapter/10.1007/978-3-642-13226-1_13.
  • Gaver, William, and Anthony Dunne. 1999. “Projected Realities: Conceptual Design for Cultural Effect.” In Proceedings of the SIGCHI Conference on Human Factors in Computing Systems, 600–607. Pittsburgh: ACM. doi:10.1145/302979.303168.
  • Gaver, Bill, Tony Dunne, and Elena Pacenti. 1999. “Design: Cultural Probes.” Interactions 6 (1): 21–29. doi:10.1145/291224.291235.
  • Gerber, Elizabeth. 2011. “Tech Break Up: A Research Method for Understanding People’s Attachment to Their Technology.” In Proceedings of the 8th ACM Conference on Creativity and Cognition, Atlanta, 137–146.
  • Hassling, Linda, Sam Nordfeldt, Henrik Eriksson, and Toomas Timpka. 2005. “Use of Cultural Probes for Representation of Chronic Disease Experience: Exploration of an Innovative Method for Design of Supportive Technologies.” Technology & Health Care 13 (2): 87–95. doi: 10.3233/THC-2005-13202
  • Hilliard, Marisa E., Yelena P. Wu, Joseph Rausch, Lawrence M. Dolan, and Korey K. Hood. 2013. “Predictors of Deteriorations in Diabetes Management and Control in Adolescents With Type 1 Diabetes.” Journal of Adolescent Health 52 (1): 28–34. doi:10.1016/j.jadohealth.2012.05.009.
  • Irwin, J., and E. Charles. 2003. “Adolescent Health at the Crossroads: Where Do We Go From Here?” Journal of Adolescent Health 33 (1): 51–56. doi:10.1016/S1054-139X(03)00143-5.
  • Lang, Alexandra R. 2012. “Medical Device Design for Adolescents.” EThesis. http://eprints.nottingham.ac.uk/12501/.
  • Lang, Alexandra R., Jennifer L. Martin, Sarah Sharples, and John A. Crowe. 2013. “The Effect of Design on the Usability and Real World Effectiveness of Medical Devices: A Case Study with Adolescent Users.” Applied Ergonomics 44 (5): 799–810. doi:10.1016/j.apergo.2013.02.001.
  • Lang, Alexandra R., Jennifer L. Martin, Sarah Sharples, John A. Crowe, and Elizabeth Murphy. 2012. “Not a Minor Problem: Involving Adolescents in Medical Device Design Research.” Theoretical Issues in Ergonomics Science 15 (2): 181–192. doi:10.1080/1463922X.2012.678910.
  • Marshall, David, and A. Priestner. 2016. Snapshot: A Cultural Probe Study Exploring the Research and Information Behaviour of Postdocs and PhD Students at the University of Cambridge. Cambridge: University of Cambridge.
  • Mattelmäki, Tuuli. 2006. Design Probes. Helsinki: University of Art and Design Helsinki. http://urn.fi/URN:ISBN:951-558-212-1.
  • Mawson, Susan, Nasrin Nasr, Jack Parker, Huiru Zheng, Richard Davies, and Gail Mountain. 2014. “Developing a Personalised Self-Management System for Post Stroke Rehabilitation; Utilising a User-Centred Design Methodology.” Disability and Rehabilitation: Assistive Technology 9 (6): 521–528.
  • McCarthy, Gillian M. 2018. Dear My Very Problematic Blood Glucose Meter: Adolescents’ Experiences Self-Managing Type 1 Diabetes and Their Psychosocial User Requirements of Medical Technologies. Wellington: Victoria University of Wellington. http://researcharchive.vuw.ac.nz/handle/10063/6975.
  • McCarthy, G. M., E. R. Rodríguez Ramírez, and B. J. Robinson. 2016. "Dissonant Technologies: Health Professionals’ Impressions of Adolescents’ Interactions with Medical Technologies for Managing Type 1 Diabetes." In Well-Being 2016: Co-Creating Pathways to Well-Being, 36–39. Birmingham: Birmingham City University.
  • McCarthy, Gillian M., Edgar R. Rodríguez Ramírez, and Brian J. Robinson. 2016. “Dissonant Technologies: Health Professionals’ Impressions of Adolescents’ Interactions with Medical Technologies for Managing Type 1 Diabetes.” In Well-Being 2016: Co-creating Pathways to Well-being, 36–39. Birmingham: Birmingham City University.
  • Melles, Marijke, and Adinda Freudenthal. 2017. “Next Generation Equipment in the Intensive Care Unit: Data Collection for Design Guidelines.” Conference on Human Decision Making and Manual Control, Linköping University, June 2-4, 2003. http://repository.tudelft.nl/islandora/object/uuid:ce4adccc-c550-4595-9953-30148c3f4d0a/datastream/OBJ/view.
  • Milewski, Jim, and Hector Parra. 2010. “Gathering Requirements for a Personal Health Management System.” In Proceedings of the 12th ACM International Conference Adjunct Papers on Ubiquitous Computing – Adjunct, 415–416. UbiComp ‘10 Adjunct. New York: ACM. doi:10.1145/1864431.1864464.
  • Millstein, Susan G, and Bonnie L Halpern-Felsher. 2002. “Perceptions of Risk and Vulnerability.” Journal of Adolescent Health Adolescent Risk and Vulnerability 31 (1, Suppl. 1): 10–27. doi:10.1016/S1054-139X(02)00412-3.
  • Money, Arthur G., Julie Barnett, Jasna Kuljis, Michael P. Craven, Jennifer L. Martin, and Terry Young. 2011. “The Role of the User Within the Medical Device Design and Development Process: Medical Device Manufacturers’ Perspectives.” BMC Medical Informatics and Decision Making 11 (1): 15. doi:10.1186/1472-6947-11-15.
  • Norman, Donald A. 2004. Emotional Design Why We Love (or Hate) Everyday Things. New York: Basic Books.
  • Owen, Tom, George Buchanan, and Harold Thimbleby. 2012. “Understanding User Requirements in Take-Home Diabetes Management Technologies.” In Proceedings of the 26th Annual BCS Interaction Specialist Group Conference on People and Computers, 268–273. British Computer Society. http://dl.acm.org/citation.cfm?id = 2377950.
  • Polgar, Jan Miller. 2010. “The Myth of Neutral Technology.” In Design and Use of Assistive Technology, edited by Meeko Mitsuko K. Oishi, Ian M. Mitchell, and H. F. Ven der Loos, 17–23. New York: Springer.
  • Pyatak, Elizabeth A., Daniella Florindez, and Marc J. Weigensberg. 2013. “Adherence Decision Making in the Everyday Lives of Emerging Adults with Type 1 Diabetes.” Patient Preference and Adherence 7: 709. doi: 10.2147/PPA.S47577
  • Rich, Michael, Steven Lamola, Jason Gordon, and Richard Chalfen. 2000. “Video Intervention/Prevention Assessment: A Patient-Centered Methodology for Understanding the Adolescent Illness Experience.” Journal of Adolescent Health 27 (3): 155–165. doi: 10.1016/S1054-139X(00)00114-2
  • Seereiner, Sabine, Kurt Neeser, Christian Weber, Karsten Schreiber, Wolfgang Habacher, Ivo Rakovac, Peter Beck, Louise Schmidt, and Thomas R. Pieber. 2010. “Attitudes Towards Insulin Pump Therapy among Adolescents and Young People.” Diabetes Technology & Therapeutics 12 (1): 89. doi: 10.1089/dia.2009.0080
  • Smart Design. 2010. “Breakup Letter Creative Meeting.” Presented at the IIT Design Research Conference, IIt Institute of Design, Chicago, May 11
  • Strawhacker, Mt. 2001. “Multidisciplinary Teaming to Promote Effective Management of Type 1 Diabetes for Adolescents.” Journal of School Health 71 (6): 213–217. doi:10.1111/j.1746-1561.2001.tb01318.x.
  • Suris, J.-C., P.-A. Michaud, and R. Viner. 2004. “The Adolescent with a Chronic Condition. Part I: Developmental Issues.” Archives of Disease in Childhood 89 (10): 938–942. doi:10.1136/adc.2003.045369.
  • Tatara, Naoe. 2009. “Designing Mobile Patient-Centric Self-Help Terminals for People with Diabetes.” In Proceedings of the 11th International Conference on Human-computer Interaction with Mobile Devices and Services, 97. ACM. http://dl.acm.org/citation.cfm?id = 1613970.
  • Thoring, Katja, Carmen Luippold, and Roland M. Mueller. 2013. “Opening the Cultural Probes Box: A Critical Reflection and Analysis of the Cultural Probes Method.” In 5th International Congress of International Association of Societies of Design Research, 597–603. Tokyo.
  • Tsvyatkova, Damyanka, and Cristiano Storni. 2014. “Investigating Issues Related to Pediatric Diabetes Education: Problems and Barriers.” In Proceedings of the 8th International Conference on Pervasive Computing Technologies for Healthcare, PervasiveHealth’14, 191–194. Brussels, Belgium: ICST (Institute for Computer Sciences, Social-Informatics and Telecommunications Engineering). https://eudl.eu/doi/10.4108/icst.pervasivehealth.2014.254935.
  • van der Bijl-Brouwer, Mieke. 2016. “The Challenges of Human-centred Design in a Public Sector Innovation Context.” In DRS 2016 International Conference: Future-Focused Thinking. The Design Research Society. http://www.drs2016.org/s/294-van-der-Bijl-Brouwer.pdf.
  • van der Bijl Brouwer, Mieke, and Kees Dorst. 2014. “How Deep Is Deep? A Four-layer Model of Insights into Human Needs for Design Innovation.” In Design and Emotion. Ediciones Uniandes. https://opus.lib.uts.edu.au/handle/10453/33538.
  • van der Velden, Maja, and A. Culén. 2013. “Designing Privacy with Teenage Patients: Methodological Challenges.” In Submitted to CHI 2013 Workshop on Designing for and with Teenagers. http://www.kulu.no/pubs/velden_culen_chi13_2013.pdf.
  • Warner, Dorothy E., and Stuart T. Hauser. 2009. “Unique Considerations When Treating Adolescents with Chronic Illness.” In Behavioral Approaches to Chronic Disease in Adolescence, edited by William T. O’Donohue, 15–28. New York: Springer. http://link.springer.com/chapter/10.1007/978-0-387-87687-0_3.
  • Wysocki, Tim, and Peggy Greco. 2006. “Social Support and Diabetes Management in Childhood and Adolescence: Influence of Parents and Friends.” Current Diabetes Reports 6 (2): 117–122. doi:10.1007/s11892-006-0022-y.

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