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Articles

Patients as health influencers: motivations and consequences of following cancer patients on Instagram

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Pages 806-815 | Received 24 May 2020, Accepted 17 Feb 2022, Published online: 03 Mar 2022

References

  • Abidin, C. 2015. “Communicative Intimacies: Influencers and Perceived Interconnectedness.” Ada: A Journal of Gender, New Media, and Technology 8. doi:10.7264/N3MW2FFG.
  • Badreddine, B. M., and Y. Blount. 2019. “Understanding Influential Factors Behind Lurking Behaviour in Online Cancer Communities.” Behaviour & Information Technology, 1–23. doi:10.1080/0144929X.2019.1709545.
  • Bailey, E. R., S. C. Matz, W. Youyou, and S. S. Iyengar. 2020. “Authentic Self-Expression on Social Media is Associated with Greater Subjective Well-Being.” Nature Communications 11 (4889), doi:10.1038/s41467-020-18539-w.
  • Baker, L., T. H. Wagner, S. Singer, and M. K. Bundorf. 2003. “Use of the Internet and E-Mail for Health Care Information: Results from a National Survey.” JAMA 289 (18): 2400. doi:10.1001/jama.289.18.2400.
  • Bandura, A. 2009. “Social Cognitive Theory of Mass Communications.” In Media Effects: Advances in Theory and Research, edited by J. Bryant, and M. B. Oliver, 3rd ed., 94–124. New York: Routledge.
  • Bode, L., and E. K. Vraga. 2018. “See Something, Say Something: Correction of Global Health Misinformation on Social Media.” Health Communication 33 (9): 1131–1140. doi:10.1080/10410236.2017.1331312.
  • Byrne, B. M. 1989. A Primer of LISREL: Basic Applications and Programming for Confirmatory Factor Analytic Models. Springer New York. http://public.ebookcentral.proquest.com/choice/publicfullrecord.aspx?p = 3079620.
  • Byrne, E., J. Kearney, and C. MacEvilly. 2017. “The Role of Influencer Marketing and Social Influencers in Public Health.” Proceedings of the Nutrition Society 76 (OCE3): E103. doi:10.1017/S0029665117001768.
  • Champion, V. L., and C. S. Skinner. 2002. “The Health Belief Model.” In Health Behavior and Health Education: Theory, Research, and Practice, 3rd ed., edited by K. Glanz, B. K. Rimer, and F. M. Lewis, 45–65. San Francisco, CA: Jossey-Bass.
  • Chou, W. S., Y. M. Hunt, E. B. Beckjord, R. P. Moser, and B. W. Hesse. 2009. “Social Media Use in the United States: Implications for Health Communication.” Journal of Medical Internet Research 11 (4): e48. doi:10.2196/jmir.1249.
  • Coates, A. E., C. A. Hardman, J. C. G. Halford, P. Christiansen, and E. J. Boyland. 2019. “Social Media Influencer Marketing and Children’s Food Intake: A Randomized Trial.” Pediatrics 143 (4): e20182554. doi:10.1542/peds.2018-2554.
  • Cotter, K. 2019. “Playing the Visibility Game: How Digital Influencers and Algorithms Negotiate Influence on Instagram.” New Media & Society 21 (4): 895–913. doi:10.1177/1461444818815684.
  • Czaja, R., C. Manfredi, and J. Price. 2003. “The Determinants and Consequences of Information Seeking Among Cancer Patients.” Journal of Health Communication 8 (6): 529–562. doi:10.1080/716100418.
  • Deborah, A., A. Michela, and C. Anna. 2019. “How to Quantify Social Media Influencers: An Empirical Application at the Teatro Alla Scala.” Heliyon 5 (5): e01677. doi:10.1016/j.heliyon.2019.e01677.
  • de Veirman, M., V. Cauberghe, and L. Hudders. 2017. “Marketing Through Instagram Influencers: The Impact of Number of Followers and Product Divergence on Brand Attitude.” International Journal of Advertising 36 (5): 798–828. doi:10.1080/02650487.2017.1348035.
  • Folkman, S. 2013. “Stress: Appraisal and Coping.” In Encyclopedia of Behavioral Medicine, edited by M. D. Gellman, and J. R. Turner, 1913–1915. Springer.
  • Folkman, S., and R. S. Lazarus. 1990. “Coping and Emotion.” In Psychological and Biological Approaches to Emotion, edited by N. L. Stein, B. Leventhal, and T. Trabasso, 313–332. Hillsdale, NJ: L. Erlbaum Associates.
  • Hamm, M. P., A. Chisholm, J. Shulhan, A. Milne, S. D. Scott, L. M. Given, and L. Hartling. 2013. “Social Media use among Patients and Caregivers: A Scoping Review.” BMJ Open 3 (5): e002819. doi:10.1136/bmjopen-2013-002819.
  • Hawkins, N. A., T. Smith, L. Zhao, J. Rodriguez, Z. Berkowitz, and K. D. Stein. 2010. “Health-related Behavior Change After Cancer: Results of the American Cancer Society’s Studies of Cancer Survivors (SCS).” Journal of Cancer Survivorship 4 (1): 20–32. doi:10.1007/s11764-009-0104-3.
  • Heiss, R. 2020. “Fighting Health Infodemics: The Role of Citizen Empowerment.” Eurohealth 26 (3): 23–25. https://apps.who.int/iris/handle/10665/338919.
  • Hu, L., and P. M. Bentler. 1999. “Cutoff Criteria for fit Indexes in Covariance Structure Analysis: Conventional Criteria Versus new Alternatives.” Structural Equation Modeling: A Multidisciplinary Journal 6 (1): 1–55. doi:10.1080/10705519909540118.
  • Hwang, K., and Q. Zhang. 2018. “Influence of Parasocial Relationship Between Digital Celebrities and Their Followers on Followers’ Purchase and Electronic Word-of-Mouth Intentions, and Persuasion Knowledge.” Computers in Human Behavior 87: 155–173. doi:10.1016/j.chb.2018.05.029.
  • Jin, S. V. 2018. “Interactive Effects of Instagram Foodies’ Hashtagged# Foodporn and Peer Users’ Eating Disorder on Eating Intention, Envy, Parasocial Interaction, and Online Friendship.” Cyberpsychology, Behavior, and Social Networking 21 (3): 157–167. doi:10.1089/cyber.2017.0476.
  • Lewis, N., L. S. Martinez, D. R. Freres, J. S. Schwartz, K. Armstrong, S. W. Gray, T. Fraze, R. H. Nagler, A. Bourgoin, and R. C. Hornik. 2012. “Seeking Cancer-Related Information from Media and Family/Friends Increases Fruit and Vegetable Consumption Among Cancer Patients.” Health Communication 27 (4): 380–388. doi:10.1080/10410236.2011.586990.
  • Lutkenhaus, R. O., J. Jansz, and M. P. Bouman. 2019. “Tailoring in the Digital era: Stimulating Dialogues on Health Topics in Collaboration with Social Media Influencers.” Digital Health 5: 205520761882152. doi:10.1177/2055207618821521.
  • Mayrhofer, M., and B. Naderer. 2019. “Mass Media as Alcohol Educator for Everyone? Effects of Portrayed Alcohol Consequences and the Influence of Viewers’ Characteristics.” Media Psychology 22 (2): 217–243. doi:10.1080/15213269.2017.1378112.
  • McCosker, A. 2018. “Engaging Mental Health Online: Insights from Beyondblue ‘s Forum Influencers.” New Media & Society 20 (12): 4748–4764. doi:10.1177/1461444818784303.
  • Mikal, J. P., M. J. Beckstrand, S. W. Grande, E. Parks, M. Oyenuga, T. Odebunmi, O. Okedele, B. Uchino, and K. Horvath. 2021. “Online Support Seeking and Breast Cancer Patients: Changes in Support Seeking Behavior Following Diagnosis and Transition off Cancer Therapy.” Health Communication 36 (6): 731–740. doi:10.1080/10410236.2020.1712519.
  • Namkoong, K., D. V. Shah, and D. H. Gustafson. 2017. “Offline Social Relationships and Online Cancer Communication: Effects of Social and Family Support on Online Social Network Building.” Health Communication 32 (11): 1422–1429. doi:10.1080/10410236.2016.1230808.
  • Park, N., K. F. Kee, and S. Valenzuela. 2009. “Being Immersed in Social Networking Environment: Facebook Groups, Uses and Gratifications, and Social Outcomes.” CyberPsychology & Behavior 12 (6): 729–733. doi:10.1089/cpb.2009.0003.
  • Peng, C.-T., T.-Y. Wu, Y. Chen, and D. J. Atkin. 2019. “Comparing and modeling via social media: The social influences of fitspiration on male instagram users’ work out intention.” Computers in Human Behavior 99: 156–167. http://doi.org/10.1016/j.chb.2019.05.011.
  • Petty, R. E., J. Barden, and C. S. Wheeler. 2009. “The Elaboration Likelihood Model of Persuasion: Developing Health Promotions for Sustained Behavioral Change.” In Emerging Theories in Health Promotion Practice and Research, 2nd ed., edited by R. J. DiClemente, R. A. Crosby, and M. C. Kegler, 185–214. San Francisco, CA: Jossey-Bass.
  • Petty, R. E., and J. T. Cacioppo. 1986. “The Elaboration Likelihood Model of Persuasion.” In Communication and Persuasion, edited by R. E. Petty, and J. T. Cacioppo, 1–24. Springer New York. doi:10.1007/978-1-4612-4964-1_1.
  • Pew Research Center. 2016, February 4. The 2016 Presidential Campaign: A News Event that’s Hard to Miss. https://www.pewresearch.org/journalism/2016/02/04/the-2016-presidential-campaign-a-news-event-thats-hard-to-miss/.
  • Pew Research Center. 2021, August 24. About Four-in-ten Americans say Social Media is an Important Way of Following COVID-19 Vaccine News. https://www.pewresearch.org/fact-tank/2021/08/24/about-four-in-ten-americans-say-social-media-is-an-important-way-of-following-covid-19-vaccine-news/.
  • Pilgrim, K., and S. Bohnet-Joschko. 2019. “Selling Health and Happiness: How Influencers Communicate on Instagram About Dieting and Exercise: Mixed Methods Research.” BMC Public Health 19 (1): 1054. doi:10.1186/s12889-019-7387-8.
  • Pingree, R. J. 2007. “How Messages Affect Their Senders: A More General Model of Message Effects and Implications for Deliberation.” Communication Theory 17 (4): 439–461. doi:10.1111/j.1468-2885.2007.00306.x.
  • Quan-Haase, A., and A. L. Young. 2010. “Uses and Gratifications of Social Media: A Comparison of Facebook and Instant Messaging.” Bulletin of Science, Technology & Society 30 (5): 350–361. doi:10.1177/0270467610380009.
  • Rice, R. E. 2006. “Influences, Usage, and Outcomes of Internet Health Information Searching: Multivariate Results from the Pew Surveys.” International Journal of Medical Informatics 75 (1): 8–28. doi:10.1016/j.ijmedinf.2005.07.032.
  • Rihl, A., and C. Wegener. 2019. “YouTube Celebrities and Parasocial Interaction: Using Feedback Channels in Mediatized Relationships.” Convergence 25 (3): 554–566. doi:10.1177/1354856517736976.
  • Rosengren, K. E. 1974. “Uses and Gratifications: A Paradigm Outlined.” In The Uses of Mass Communications: Current Perspectives on Gratifications Research, edited by J. G. Blumler, and E. Katz, 269–286. Beverly Hills, CA: Sage Publications.
  • Rosenstock, I. M., V. J. Strecher, and M. H. Becker. 1988. “Social Learning Theory and the Health Belief Model.” Health Education Quarterly 15 (2): 175–183. doi:10.1177/109019818801500203.
  • Rosseel, Y. 2012. “lavaan: An R Package for Structural Equation Modeling.” Journal of Statistical Software 48: 2. doi:10.18637/jss.v048.i02.
  • Schmuck, D. 2021. “Following Social Media Influencers in Early Adolescence: Fear of Missing out, Social Well-Being and Supportive Communication with Parents.” Journal of Computer-Mediated Communication 26 (5): 245–264. doi:10.1093/jcmc/zmab008.
  • Seçkin, G. 2013. “Satisfaction with Health Status among Cyber Patients: Testing a Mediation Model of Electronic Coping Support.” Behaviour & Information Technology 32 (1): 91–101. doi:10.1080/0144929X.2011.603359.
  • Sokolova, K., and H. Kefi. 2020. “Instagram and YouTube Bloggers Promote it, why Should I buy? How Credibility and Parasocial Interaction Influence Purchase Intentions.” Journal of Retailing and Consumer Services 53: 1–9. doi:10.1016/j.jretconser.2019.01.011.
  • Sugawara, Y., H. Narimatsu, A. Hozawa, L. Shao, K. Otani, and A. Fukao. 2012. “Cancer Patients on Twitter: A Novel Patient Community on Social Media.” BMC Research Notes 5 (1): 699. doi:10.1186/1756-0500-5-699.
  • Tian, L., R. An, J. Zhang, Y. Sun, R. Zhao, and M. Liu. 2017. “Effect of the Patient-to-Patient Communication Model on Dysphagia Caused by Total Laryngectomy.” The Journal of Laryngology & Otology 131 (3): 253–258. doi:10.1017/S0022215116009968.
  • Van Stee, S. K., and Q. Yang. 2018. “Online Cancer Information Seeking: Applying and Extending the Comprehensive Model of Information Seeking.” Health Communication 33 (12): 1583–1592. doi:10.1080/10410236.2017.1384350.

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