“That Heart Sickness”: Young Aboriginal People’s Understanding of Rheumatic Fever

References

• ABS (Australian Bureau of Statistics) 2016 Census of population and housing: Reflecting Australia - stories from the census, 2016. Accessed from: http://www.abs.gov.au/ausstats/[email protected]/Lookup/by%20Subject/2071.0~2016~Main%20Features~Aboriginal%20and%20Torres%20Strait%20Islander%20Population%20Data%20Summary~10
   Google Scholar
• AMA (Australian Medical Association) 2016 AMA Report Card on Indigenous Health: A call to action to prevent new cases of rheumatic heart disease in Indigenous Australia by 2031. Canberra, Australia: Australian Medical Association.
   Google Scholar
• Anderson, K., J. Devitt, J. Cunningham, C. Preece, and A. Cass 2008 “All they said was my kidneys were dead”: Indigenous Australian patients’ understanding of their chronic kidney disease. Medical Journal of Australia 189(9):499–503.
   PubMed Web of Science ®Google Scholar
• Bartlett, B. 1998 Origins of persisting poor Aboriginal health. Masters thesis, Department of Public Health & Community Medicine, University of Sydney.
   Google Scholar
• Baum, F. E., M. Bégin, T. A. J. Houweling, and S. Taylor 2009 Changes not for the fainthearted: Reorienting health care systems toward health equity through action on the social determinants of health. American Journal of Public Health 99(11):1967–1974.
   PubMed Web of Science ®Google Scholar
• Bird-Rose, D. 1996 Land rights and deep colonizing: The erasure of women. Aboriginal Law Bulletin 3(85):6–13.
   Google Scholar
• Bowen, A. C., D. Harris, D. C. Holt, P. M. Giffard, J. R. Carapetis, P. T. Campbell, J. McVernon, et al. 2016 Whole genome sequencing reveals extensive community-level transmission of group A Streptococcus in remote communities. Epidemiology and Infection 144(9):1991–1998.
   PubMed Web of Science ®Google Scholar
• Bowen, A. C., S. Y. C. Tong, R. M. Andrews, I. M. O’Meara, M. I. McDonald, M. D. Chatfield, B. J. Currie, et al. 2014 Short-course oral co-trimoxazole versus intramuscular benzathine benzylpenicillin for impetigo in a highly endemic region: An open-label, randomised, controlled, non-inferiority trial. The Lancet, published online August 27.
   Google Scholar
• Brown, A., M. I. McDonald, and T. Calma 2007 Rheumatic fever and social justice. Medical Journal of Australia 186(11):557.
   PubMed Web of Science ®Google Scholar
• Brown, H. D. 2007 Principles of Language Learning and Teaching. New York: Pearson Longman.
   Google Scholar
• Cass, A., A. Lowell, M. Christie, P. Snelling, M. Flack, B. Marrnganyin, and I. Brown 2002 Sharing the true stories: Improving communication between Aboriginal patients and healthcare workers. Medical Journal of Australia 176:466–470.
   PubMed Web of Science ®Google Scholar
• Cruz, E. V. and G. Higginbottom 2013 The use of focused ethnography in nursing research. Nurse Researcher 20(4):36–43.
   PubMedGoogle Scholar
• de Dassel, J. L., A. P. Ralph, and J. R. Carapetis 2015 Controlling acute rheumatic fever and rheumatic heart disease in developing countries: Are we getting closer? Current Opinion in Pediatrics 27(1):116–123.
   PubMed Web of Science ®Google Scholar
• DeSouza, R. 2008 Wellness for all: The possibilities of cultural safety and cultual competence in New Zealand. Journal of Research in Nursing 13(2):125–135.
   Google Scholar
• Devlin, B., S. Disbray, and N. Devlin 2017 History of Bilingual Education in the Northern Territory: People, Programs and Policies. Singapore: Springer.
   Google Scholar
• Durey, A. 2010 Reducing racism in Aborignal health care in Australia: Where does cultural education fit? Australian and New Zealand Journal of Public Health 34(s1):S87–92.
   PubMedGoogle Scholar
• Durey, A. and S. C. Thompson 2012 Reducing the health disparities of Indigenous Australians: Time to change focus. BMC Health Services Research 12(151):1–11.
   PubMedGoogle Scholar
• Gracey, M. and M. King 2009 Indigenous health part 1: Determinants and disease patterns. The Lancet 374(9683):65–75.
   PubMed Web of Science ®Google Scholar
• Grbich, C. 2007 Qualitative Data Analysis: An Introduction. London: Sage Publications.
   Google Scholar
• Hale, M. and N. Sharpe 2011 Persistent rheumatic fever in New Zealand – A shameful indicator of child health. New Zealand Medical Journal 124(1329):6–8.
   PubMedGoogle Scholar
• Hansen, H. and J. Metzyl 2016 Structural competency in the U.S. healthcare crisis: Putting social and policy interventions into clinical practice. Journal of Bioethical Inquiry 13(2):179–183.
   PubMed Web of Science ®Google Scholar
• Harris, R., M. Tobias, M. Jeffreys, K. Waldegrave, S. Saffron, and J. Nazroo 2006 Effects of self-reported racial discrimination and deprivation on Maori health inequalities in New Zealand: Cross-sectional study. The Lancet 367(9527):2005–2009.
   PubMed Web of Science ®Google Scholar
• He, V. Y. F., J. R. Condon, A. P. Ralph, Y. Zhao, K. Roberts, M. Fittock, and J. R. Carapetis 2016 Long term outcomes from acure rheumatic fever and rheumatic heart disease: A data linkage and survival analysis approach. Circulation 134(3):222–232.
   PubMed Web of Science ®Google Scholar
• Henze, R. C. and L. Vanett 1993 To walk in two worlds: Or more? Challenging a common metaphor of native education. Anthropology and Education Quarterly 24(2):116–134.
   Web of Science ®Google Scholar
• Houghton, F. 2002 Medical dominance in public health: Necessity or legacy? Irish Journal of Medical Science 171(1):52.
   PubMed Web of Science ®Google Scholar
• Humphery, K. 2001 Dirty questions: Indigenous health and ‘western research’. Australian and New Zealand Journal of Public Health 25(3):197–202.
   PubMed Web of Science ®Google Scholar
• Ka’ai-Mahuta, R. 2011 The impact of colonisation on te reo Mᾱori: A critical review of the state education system. Te Kaharoa 4:195–225.
   Google Scholar
• Karidakis, M. and B. Kelly 2018 Trends in indigenous language usage. Australian Journal of Linguistics 38(1):105–126.
   Web of Science ®Google Scholar
• Kennedy, T. M., J. I. Middleton, and K. Ratcliffe 2005 Whiteness studies. Rhetoric Review 24(4):359.
   Google Scholar
• Kenny, A. and S. Duckett 2004 A question of place: Medical power in rural Australia. Social Science & Medicine 58(6):1059–1073.
   PubMed Web of Science ®Google Scholar
• Kowal, E. 2015 Trapped in the Gap: Doing Good in Indigenous Australia. Oxford, UK: Berghahn Books.
   Google Scholar
• Lawrence, J. G., J. Carapetis, K. Griffiths, K. Edwards, and J. R. Condon 2013 Acute rheumatic fever and rheumatic heart disease: Incidence and progression in the Northern Territory of Australia, 1997 to 2010. Circulation 128(5):492–501.
   PubMed Web of Science ®Google Scholar
• Liamputtong, P. 2009 Qualitative Research Methods. Melbourne, Australia: Oxford University Press.
   Google Scholar
• MacNeil, S. K. and J. Marsh 2015 Indigenous research across continents: A comparison of ethically and culturally sound approaches to research in Australia and Sweden. In Finding Common Ground: Narratives, Provocations and Reflections from the 40 Year Celebration of Batchelor Institute. H. Huijser, R. Ober, S. O’Sullivan, R. McRai-Williams, and R. Elvin, eds. Pp. 119–126. Batchelor, Australia: Batchelor Press.
   Google Scholar
• Manyemba, J. and B. M. Mayosi 2002 Penicillin for secondary prevention of rheumatic fever. Cochrane Database of Systematic Reviews 3:CD002227.
   Google Scholar
• McCoy, B. 2009 ‘Living between two worlds’: Who is living in whose worlds? Australasian Psychiatry: Bulletin of Royal Australian and New Zealand College of Psychiatrists 17(Suppl 1):S20–S23.
   PubMedGoogle Scholar
• McDonald, M., B. J. Currie, and J. R. Carapetis 2004 Acute rheumatic fever: A chink in the chain that links the throat to the heart? The Lancet Infectious Diseases 4(4):240–245.
   PubMed Web of Science ®Google Scholar
• McDonald, M. I., R. J. Towers, R. M. Andrews, N. Benger, B. J. Currie, and J. R. Carapetis 2006 Low rates of streptococcal pharyngitis and high rates of pyoderma in Australian aboriginal communities where acute rheumatic fever is hyperendemic. Clinical Infectious Diseases 43(6):683–689.
   PubMed Web of Science ®Google Scholar
• Munro, J. M. 2000 Kriol on the move: A case of language spread and shift in Northern Australia. In Processes of Language Contact: Studies from Australia and the South Pacific. J. Siegel, ed. Pp. 245–270. Saint-Laurent, Canada: Editions Fides.
   Google Scholar
• Nulu, S. 2017 Neglected chronic disease: The WHO framework on non-communicable diseases and implications for the global poor. Global Public Health 12(4):396–415.
   PubMed Web of Science ®Google Scholar
• Papps, E., and I. Ramsden 1996 Cultural Safety in Nursing: The New Zealand Experience. International Journal for Quality in Health Care 8(5):491–497.
   PubMed Web of Science ®Google Scholar
• Paradies, Y. 2005 Affirmative action and equity in Aboriginal and Torres Strait Islander health. Medical Journal of Australia 183(5):269–270.
   PubMed Web of Science ®Google Scholar
• Paradies, Y. 2016 Racism and health. In International Encyclopedia of Public Health, 2nd ed. W. Cockerham and S. Quah, eds. Pp. 249–259. London: Academic Press.
   Google Scholar
• Parnaby, M. G. and J. R. Carapetis 2010 Rheumatic fever in Indigenous Australian children. Journal of Paediatric and Child Health 46(9):527–533.
   PubMed Web of Science ®Google Scholar
• Pea, R. D. 2004 The social and technological dimensions of scaffolding and related theoretical concepts for learning, education, and human activity. The Journal of the Learning Sciences 13(3):423–451.
   Web of Science ®Google Scholar
• Ralph, A. P., C. Read, V. Johnston, J. L. De Dassel, K. Bycroft, A. Mitchell, R. S. Bailie, et al. 2016 Improving delivery of secondary prophylaxis for rheumatic heart disease in remote Indigenous communities: Study protocol for a stepped-wedge randomized trial. Trials 17(1):1–12.
   PubMedGoogle Scholar
• Ralph, A. P., M. Fittock, R. Schultz, D. Thompson, M. Dowden, T. Clemens, M. G. Parnaby, et al. 2013 Improvement in rheumatic fever and rheumatic heart disease management and prevention using a health centre-based continuous quality improvement approach. BMC Health Services Research 13:525.
   PubMed Web of Science ®Google Scholar
• Remenyi, B., J. Carapetis, R. Wyber, K. Taubert, and B. M. Mayosi 2013 Position statement of the world heart federation on the prevention and control of rheumatic heart disease. Nature Reviews Cardiology 34(2):1–9.
   Google Scholar
• RHDAustralia (ARF/RHD writing group) 2012 The Australian Guideline for Prevention, Diagnosis and Management of Acute Rheumatic Fever and Rheumatic Heart Disease. Darwin, Australia: National Heart Foundation and the Cardiac Society of Australia and New Zealand.
   Google Scholar
• Saethre, E. 2013 Illness Is a Weapon: Indigenous Identity and Enduring Afflictions. Nashville, TN: Vanderbilt University Press.
   Google Scholar
• Simpson, J., J. Caffery, and P. McConvell 2009 Gaps in Australia’s Indigenous Language Policy: Dismantling bilingual education in the Northern Territory. Discussion Paper Number 24. Canberra, Australia: Australian Institute of Aboriginal and Torres Strait Islander Studies.
   Google Scholar
• Smith, L. T. 1999 Decolonizing Methodologies: Research and Indigenous Peoples. Dunedin, New Zealand: University of Otago Press and London: Zed Books Ltd.
   Google Scholar
• Tesoriero, F. 2010 Community Development: Community-Based Alternatives in an Age of Globalisation. Frenchs Forest, Australia: Pearson Australia.
   Google Scholar
• Thomas, S., K. Crooks, K. Taylor, P. D. Massey, R. Williams, and G. Pearce 2017 Reducing recurrence of bacterial skin infections in Aboriginal children in rural communities: New ways of thinking, new ways of working. Australian Journal of Primary Health 23(3):229–235.
   PubMed Web of Science ®Google Scholar
• Vass, A., A. Mitchell, and Y. Dhurrkay 2011 Health literacy and Australian Indigenous peoples: An analysis of the role of language and worldview. Health Promotion Journal of Australia 22(1):33–37.
   PubMed Web of Science ®Google Scholar