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Afterword

Toward Personalized Informed Consent in Cancer Care

References

  • Barry, M.J, and S. Edgman-Levitan. 2012 Shared decision making – Pinnacle of patient-centered care. New England Journal of Medicine 366(9):780–81. doi:10.1056/NEJMp1109283.
  • Bell, K. 2016 Health and Other Unassailable Values: Reconfigurations of Health Evidence and Ethics. London: Routledge.
  • Bernat, J.L., and L.M. Peterson 2006 Patient-centered informed consent in surgical practice. Archives of Surgery 141(1):86–92.
  • Bottomley, A., M. Pe, J. Sloan, E. Basch, F. Bonnetain, C. Calvert, A Campbell, et. al. 2016 Analyzing data from patient-reported outcome and quality of life endpoints for cancer clinical trials: A start in setting international standards. The Lancet Oncology 17(11):e510–e514. doi:10.1016/S1470-2045(16)30510-1.
  • Brown, R.F., P.N. Butowa, D.G. Buttb, A.R. Mooreb, and M.H.N. Tattersalla. 2004 Developing ethical strategies to assist oncologists in seeking informed consent to cancer clinical trials. Social Science & Medicine 58:379–90. doi:10.1016/S0277-9536(03)00204-1.
  • Corrigan, O. 2003 Empty ethics: The problem with informed consent. Sociology of Health & Illness 25(3):768–92. doi:10.1046/j.1467-9566.2003.00369.x.
  • De Vries, A.M., Y. de Roten, C. Meystre, J. Passchier, J.N. Despland, and F. Stiefel. 2014 Clinician characteristics, communication, and patient outcome in oncology: A systematic review. Psycho-oncology 23:375–81. doi:10.1002/pon.3445.
  • Devaney, S., C. Purshouse, E. Cave, R. Heywood, J. Miola, and N. Reinach. 2018 The far-reaching implications of Montgomery for risk disclosure in practice. Journal of Patient Safety and Risk Management 24(1):25–29. doi:10.1177/2516043518811501.
  • Emanuel, R. 2001 A-Void – An exploration of the defences against sensing nothingness. International Journal of Psycho-Analysis 82(6):1069–84. doi:10.1516/KUAM-XNPR-RWGJ-6EDL.
  • Falchook, A. D., S. B. Dusetzina, F. Tian, R. Basak, N. Selvam, and R. C. Chen 2017 Aggressive end-of-life care for metastatic cancer patients younger than age 65 years. Journal of the National Cancer Institute 109(9):djx028. doi:10.1093/jnci/djx028.
  • General Medical Council. 2020 Consent: Patients and Doctors Making Decisions Together. Manchester: General Medical Council.
  • Goldim, J. R., and Gibbon, S. 2015 Between personal and relational privacy: understanding the work of informed consent in cancer genetics in Brazil. Journal of Community Genetics 6:287–93.
  • Hallowell, N. 1999 Doing the right thing: Genetic risk and responsibility. Sociology of Health & Illness 21(5):597–621. doi:10.1111/1467-9566.00175.
  • Jennings, B. 2018 Solidarity and care as relational practices. Bioethics 32(9):553–61. doi:10.1111/bioe.12510.
  • Joffe, S., E.F. Cook, P.D. Cleary, J.W. Clark, and J.C. Weeks. 2001 Quality of informed consent in cancer clinical trials: A cross-sectional survey. The Lancet 358(9295):1772–77. PMID: 11734235. doi:10.1016/S0140-6736(01)06805-2.
  • Kyte, D., A. Retzer, K. Ahmed, T. Keeley, J. Armes, J.M. Brown, L. Calman, et.al. 2019 Systematic evaluation of patient-reported outcome protocol content and reporting in cancer trials. Journal of the National Cancer Institute 111(11):1170–78. doi:10.1093/jnci/djz038.
  • Montgomery v Lanarkshire Health Board. 2015 UKSC 11 UK Supreme Court.
  • Perni, S., K. Hong, T.S. Hong, and R.D. Nipp. 2021 Toward a science of personalized informed consent in cancer clinical trials. JCO Oncology Practice 1–6. doi:10.1200/OP.20.00975.
  • Politi, M.C., M.A. Clark, H. Ombao, and F. Legare. 2011 The impact of physicians’ reactions to uncertainty on patients’ decision satisfaction. Journal of Evaluation in Clinical Practice 17:575–78. doi:10.1111/j.1365-2753.2010.01520.x.
  • Prainsack, B., and A. Buyx 2017 Solidarity in Biomedicine and beyond (Cambridge Bioethics and Law). Cambridge: Cambridge University Press.
  • Rodin, G., C. Lo, M. Mikulincer, A. Donner, L. Gagliese, and C. Zimmermann. 2009 Pathways to distress: The multiple determinants of depression, hopelessness and the desire for hastened death in metastatic cancer patients. Social Science & Medicine 68(3):562–69. doi:10.1016/j.socscimed.2008.10.037.
  • Rogers v Whacker 1992 67 ALJR 47 High Court of Australia.
  • Samuel, G.N., S. Dheensa, B. Farsides, A. Fenwick, and A. Lucassen. 2017 Healthcare professionals’ and patients’ perspectives on consent to clinical genetic testing: Moving towards a more relational approach. BMC Medical Ethics 18(1):47. PMID: 28789658; PMCID. doi:10.1186/s12910-017-0207-8.
  • Smith, S.K., Dixon, A., Trevena, L., Nutbeam, D., McCaffery, K., and J. 2009 Exploring patient involvement in health care decision making across different education and functional health literacy groups. Social Science and Medicine 69(12):1805–12.
  • Step, M.M., J.H. Rose, J.M. Albert, V.K. Cheruvu, and L.A. Siminoff. 2009 Modeling patient-centered communication: Oncologist relational communication and patient communication involvement in breast cancer adjuvant therapy decision-making. Patient Education and Counselling 77(3):369–78. doi:10.1016/j.pec.2009.09.010.

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