Preferences and Expectations for Delivering Bad News Among Korean Older Adults

REFERENCES

• Ahrens, T., Yancey, V., & Kollef, M. (2003). Improving family communications at the end of life: Implications for length of stay in the intensive care unit and resource use. American Journal of Critical Care, 12, 317–324.
   PubMed Web of Science ®Google Scholar
• Beauchamp, T.L., & Childress, J.F. (1994). Principles of biomedical ethics. New York, NY: Oxford University Press.
   Google Scholar
• Berkman, C.S., & Ko, E. (2009). Preferences for disclosure of information about serious illness among older Korean American immigrants in New York City. Journal of Palliative Medicine, 12, 351–357.
   PubMed Web of Science ®Google Scholar
• Berkman, C.S., & Ko, E. (2010). What and when Korean American older adults want to know about serious illness. Journal of Psychosocial Oncology, 28, 244–259.
   PubMed Web of Science ®Google Scholar
• Blackhall, L., Frank, G., Murphy, S., & Michel, V. (2001). Bioethics in a different tongue: The case of truth-telling. Journal of Urban Health, 78, 59–71.
   PubMed Web of Science ®Google Scholar
• Blackhall, L.J., Frank, G., Murphy, S.T., Michel, V., Palmer, J.M., & Azen, S.P. (1999). Ethnicity and attitudes towards life sustaining technology. Social Science & Medicine, 48, 1779–1789.
   PubMed Web of Science ®Google Scholar
• Carrese, J.A., & Rhodes, L.A. (1995). Western bioethics on the Navajo reservation. Benefit or harm? Journal of the American Medical Association, 274, 826–829.
   PubMed Web of Science ®Google Scholar
• Clayton, J.M., Butow, P.N., & Tattersall, M.H. N. (2005). When and how to initiate discussion about prognosis and end-of-life issues with terminally ill patients. Journal of Pain and Symptom Management, 30, 132–144.
   PubMed Web of Science ®Google Scholar
• Creswell, J., & Clark, V.L. P. (2007). Designing and conducting mixed methods research. Thousand Oaks, CA: Sage.
   Google Scholar
• Crow, K., Matheson, L., & Steed, A. (2000). Informed consent and truth-telling: Cultural directions for healthcare providers. The Journal of Nursing Administration, 30, 148–152.
   PubMed Web of Science ®Google Scholar
• Denzin, N.K., & Lincoln, Y.S. (2000). Handbook of qualitative research (2nd ed.). Thousand Oaks, CA: Sage.
   Google Scholar
• Elwyn, T.S., Fetters, M.D., Sasaki, H., & Tsuda, T. (2002). Responsibility and cancer disclosure in Japan. Social Science & Medicine, 54, 281–293.
   PubMed Web of Science ®Google Scholar
• Fielding, R., Wong, L., & Ko, L. (1998). Strategies of information disclosure to Chinese cancer patients in an Asian community. Psycho-Oncology, 7, 240–251.
   PubMed Web of Science ®Google Scholar
• Fujimori, M., Akechi, T., Akizuki, N., Okamura, M., Oba, A., Sakano, Y., & Uchitomi, Y. (2005). Good communication with patients receiving bad news about cancer in Japan. Psycho-Oncology, 14, 1043–1051.
   PubMed Web of Science ®Google Scholar
• Gold, M. (2004). Is honesty always the best policy? Ethical aspects of truth telling. Internal Medicine Journal, 34, 578–580.
   PubMed Web of Science ®Google Scholar
• Gongal, R.P. R. O. M. (2006). Informing patients about cancer in Nepal: What do people prefer? Palliative Medicine, 20, 471–476.
   PubMed Web of Science ®Google Scholar
• Gutheil, I.A., & Heyman, J.C. (2006). They don't want to hear us: Hispanic elders and adult children speak about end-of-life planning. Journal of Social Work in End-of-Life & Palliative Care, 2(1), 55–70.
   PubMedGoogle Scholar
• Gwyther, L.P., Altilio, T., Blacker, S., Christ, G., Csikai, E.L., Hooyman, N., … Howe, J. (2005). Social work competencies in palliative and end-of-life care. Journal of Social Work in End of-Life & Palliative Care, 1(1), 87–120.
   PubMedGoogle Scholar
• Hall, E.T. (1976). Beyond culture. New York, NY: Random House.
   Google Scholar
• Jiang, Y., Liu, C., Li, J.Y., Huang, M.J., Yao, W.X., Zhang, R., … Wei, Y.Q. (2007). Different attitudes of Chinese patients and their families toward truth telling of different stages of cancer. Psycho-Oncology, 16, 928–936.
   PubMed Web of Science ®Google Scholar
• Jonsen, A.R., Siegler, M., & Winslade, W.J. (2010). Clinical ethics: A practical approach to ethical decisions in clinical medicine (7th ed.). New York, NY: McGraw Hill.
   Google Scholar
• Jotkowitz, A., Glick, S., & Gezundheit, B. (2006). Truth-telling in a culturally diverse world. Cancer Investigation, 24, 786–789.
   PubMed Web of Science ®Google Scholar
• Kai, J., Beavan, J., & Faull, C. (2011). Challenges of mediated communication, disclosure and patient autonomy in cross-cultural cancer care. British Journal of Cancer, 105, 918–924.
   PubMed Web of Science ®Google Scholar
• Kim, I.J., Kim, L.I. C., & Kelly, J.G. (2006). Developing cultural competence in working with Korean immigrant families. Journal of Community Psychology, 34, 149–165.
   Web of Science ®Google Scholar
• Kirk, P., Kirk, I., & Kristjanson, L.J. (2004). What do patients receiving palliative care for cancer and their families want to be told? A Canadian and Australian qualitative study. British Medical Journal, 328, 1343–1349.
   PubMed Web of Science ®Google Scholar
• Ko, E. J., Nelson-Becker, H., Park, Y. J., & Shin, M. (2013). End-of-life decision making in older Korean adults: Concerns, preferences, and expectations. Educational Gerontology, 39(2), 71–81.
   Web of Science ®Google Scholar
• Kwak, J., & Salmon, J.R. (2007). Attitudes and preferences of Korean-American older adults and caregivers on end-of-life care. Journal of the American Geriatrics Society, 55, 1867–1872.
   PubMed Web of Science ®Google Scholar
• Lee, J., Keam, B., An, A., Kim, T., Lee, S.H., Kim, D.W., & Heo, D.S. (2013). Surrogate decision-making in Korean patients with advanced cancer: A longitudinal study. Supportive Care in Cancer, 21, 183–190.
   PubMed Web of Science ®Google Scholar
• Lincoln, Y., & Guba, E. (1985). Naturalistic inquiry. New York, NY: Sage.
   Google Scholar
• Mauri, E., Vegni, E., Lozza, E., Parker, P., & Moja, E. (2009). An exploratory study on the Italian patients’ preferences regarding how they would like to be told about their cancer. Supportive Care in Cancer, 17, 1523–1530.
   PubMed Web of Science ®Google Scholar
• Mitchell, J.L. (1998). Cross-cultural issues in the disclosure of cancer. Cancer Practice, 6, 153–160.
   PubMedGoogle Scholar
• Miyata, H., Takahashi, M., Saito, T., Tachimori, H., & Kai, I. (2005). Disclosure preferences regarding cancer diagnosis and prognosis: To tell or not to tell? Journal of Medical Ethics, 31, 447–451.
   PubMed Web of Science ®Google Scholar
• Mo, H.N., Shin, D.W., Woo, J.H., Choi, J.Y., Kang, J., Baik, Y.J., & Cho, S.H. (2012). Is patient autonomy a critical determinant of quality of life in Korea? End-of-life decision making from the perspective of the patient. Palliative Medicine, 26, 222–231.
   PubMed Web of Science ®Google Scholar
• National Association of Social Workers. (2013). NASW standards for social work practice in palliative and end of life care. Retrieved from http://www.naswdc.org/practice/bereavement/standards/default.asp
   Google Scholar
• Oh, D.-Y., Kim, J.E., Lee, C.H., Lim, J.S., Jung, K.H., Heo, D.S.,. .., & Kim, N.K. (2004). Discrepancies among patients, family members, and physicians in Korea in terms of values regarding the withholding of treatment from patients with terminal malignancies. Cancer, 100, 1961–1966.
   PubMed Web of Science ®Google Scholar
• Oliffe, J., Thorne, S., Hislop, T.G., & Armstrong, E.A. (2007). ‘Truth telling’ and cultural assumptions in an era of informed consent. Family & Community Health, 30, 5–15.
   PubMed Web of Science ®Google Scholar
• Patton, M.Q. (2002). Qualitative research and evaluation methods. Thousand Oaks, CA: Sage.
   Google Scholar
• Shahidi, J. (2010). Not telling the truth: Circumstances leading to concealment of diagnosis and prognosis from cancer patients. European Journal of Cancer Care, 19, 589–593.
   PubMed Web of Science ®Google Scholar
• Shenton, A.K. (2004). Strategies for ensuring trustworthiness in qualitative research projects. Education for Information, 22, 63–75.
   Google Scholar
• Strauss, A.L., & Corbin, J.M. (1990). Basics of qualitative research: Ground theory procedures and techniques. Newbury, CA: Sage.
   Google Scholar
• Sung, K.T. (1995). Measures and dimensions of filial piety in Korea. Gerontologist, 35, 240–247.
   PubMed Web of Science ®Google Scholar
• Surbone, A., Ritossa, C., & Spagnolo, A.G. (2004). Evolution of truth-telling attitudes and practices in Italy. Critical Reviews in Oncology /Hematology, 52, 165–172.
   PubMed Web of Science ®Google Scholar
• Tse, C.Y., Chong, A., & Fok, S.Y. (2003). Breaking bad news: A Chinese perspective. Palliative Medicine, 17, 339–343.
   PubMed Web of Science ®Google Scholar
• Windsor, J.A., Rossaak, J.I., Chaung, D., Ng, A., Bissett, I.P., & Johnson, M.H. (2008). Telling the truth to Asian patients in the hospital setting. The New Zealand Medical Journal, 121(1286), 92–99.
   Google Scholar
• Yun, Y.H., Han, K.H., Park, S., Park, B.W., Cho, C.-H., Kim, S., .., & Chun, M. (2011). Attitudes of cancer patients, family caregivers, oncologists and members of the general public toward critical interventions at the end of life of terminally ill patients. Canadian Medical Association Journal, 183, E673–E679.
   PubMed Web of Science ®Google Scholar
• Yun, Y.H., Kwon, Y.C., Lee, M.K., Lee, W.J., Jung, K.H., Do, Y.R., … Park, S.Y. (2010). Experiences and attitudes of patients with terminal cancer and their family caregivers toward the disclosure of terminal illness. Journal of Clinical Oncology, 28, 1950–1957.
   PubMed Web of Science ®Google Scholar
• Yun, Y.H., Lee, C.G., Kim, S.Y., Lee, S.W., Heo, D.S., Kim, J.S., … You, C.H. (2004). The attitudes of cancer patients and their families toward the disclosure of terminal illness. Journal of Clinical Oncology, 22, 307–314.
   PubMed Web of Science ®Google Scholar