1,237
Views
6
CrossRef citations to date
0
Altmetric
Research Article

Impact of the Guided Self-Determination Intervention among Adolescents with Co-Existing ADHD and Medical Disorder: A Mixed Methods Study

, PhD student, RNORCID Icon, , PhD, RNORCID Icon, , PhDORCID Icon, , MDORCID Icon, , MScORCID Icon, , MDORCID Icon, , RNORCID Icon & , PhD, RNORCID Icon show all

References

  • Bjorgaas, H. M., Elgen, I., Boe, T., & Hysing, M. (2013). Mental health in children with cerebral palsy: Does screening capture the complexity? The Scientific World Journal, 2013, 468402–468407. https://doi.org/10.1155/2013/468402
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/10.1191/1478088706qp063oa
  • Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. SAGE.
  • Brorsson, A. L., Leksell, J., Andersson Franko, M., & Lindholm Olinder, A. (2019). A person-centered education for adolescents with type 1 diabetes—A randomized controlled trial. Pediatric Diabetes, 20(7), 986–996. https://doi.org/10.1111/pedi.12888
  • Brorsson, A. L., Lindholm Olinder, A., Viklund, G., Granström, T., & Leksell, J. (2017). Adolescents' perceptions of participation in group education using the Guided Self-Determination-Young method: A qualitative study. BMJ Open Diabetes Research & Care, 5(1), e000432. https://doi.org/10.1136/bmjdrc-2017-000432
  • Center for Self-Determination Theory. (2020a). Perceptions of Parents Scales. Retrieved March 24, 2020, from https://selfdeterminationtheory.org/perceptions-of-parents-scales/
  • Center for Self-Determination Theory. (2020b). The Health Care Climate Questionnaire. Retrieved February 28, 2020, from https://selfdeterminationtheory.org/?page_id=324
  • Chen, H. -J., Lee, Y. -J., Yeh, G. C., & Lin, H. -C. (2013). Association of attention-deficit/hyperactivity disorder with diabetes: A population-based study. Pediatric Research, 73(1-4), 492–496. https://doi.org/10.1038/pr.2013.5
  • Clabby, J., & O'Connor, R. (2004). Teaching learners to use mirroring: Rapport lessons from neurolinguistic programming. Family Medicine, 36(8), 541–543.
  • Constand, M. K., MacDermid, J. C., Dal Bello-Haas, V., & Law, M. (2014). Scoping review of patient-centered care approaches in healthcare. BMC Health Services Research, 14(1), 271–279. https://doi.org/10.1186/1472-6963-14-271
  • Cortese, S., & Tessari, L. (2017). Attention-Deficit/Hyperactivity Disorder (ADHD) and obesity: Update 2016. Current Psychiatry Reports, 19(1), 4. https://doi.org/10.1007/s11920-017-0754-1
  • Creswell, J. W., & Plano Clark, V. L. (2018). Designing and conducting mixed methods research. SAGE.
  • Danish Health Authority. (2019a). Specialevejledning for Børne-og ungdomspsykiatri. Retrieved February 24, 2020, from https://www.sst.dk/-/media/Viden/Specialplaner/Specialeplan-for-børne–og-ungdomspsykiatri/SST_Specialevejledning-for-boeerne-og-ungdomspsykiatri-11-april-2019.ashx?la=da&hash=BCF7C83B6D6DB5291B621A6805C841CADD2EA137 [Danish]
  • Danish Health Authority. (2019b). Specialevejledning for Paediatri. Retrieved February 24, 2020, from https://www.sst.dk/-/media/Viden/Specialplaner/Specialeplan-for-paediatri/SST_Specialevejledning_for_Paediatri-06-08-2019.ashx?la=da&hash=7CCD91F705ABAE6180BA83392EB7CEF7DC129936 [Danish]
  • Deci, E. L., & Ryan, R. M. (1985). Intrinsic motivation and self-determination in human behavior. Plenum Press.
  • DHMA. (2015). Specialised Hospital services-principles of national planning in Denmark. Retrieved January 20, 2020, from https://www.sst.dk/-/media/Udgivelser/2015/Speciality-planning—concepts-principles-and-requirements.ashx?la=da&hash=9AC585E5775E3B23D359646470535BE3F18BB69C [Danish]
  • Edhlund, B., & McDougall, A. (2019). Nvivo 12 Essentials. Your guide to leading qualitative data analysis software. Form & Kunskap.
  • Enggaard, H., Laugesen, B., Zoffmann, V., Lauritsen, M. B., & Jørgensen, R. (2020). Adolescents’ perceptions of living with co-existing ADHD and medical disorder in Denmark. Journal of Pediatric Nursing. 53, e129–e135. https://doi.org/10.1016/j.pedn.2020.03.004
  • Enggaard, H., Laugesen, B., DeJonckheere, M., Fetters, M. D., Lauritsen, M. B., Zoffmann, B., & Jørgensen, R. Feasibility and acceptability of the guided self-determination intervention for adolescents with co-existing ADHD and medical disorder. (Manuscript in preparation).
  • Fetters, M. D. (2020). The mixed methods research workbook : Activities for designing, implementing, and publishing projects. SAGE.
  • Fetters, M. D., Curry, L. A., & Creswell, J. W. (2013). Achieving integration in mixed methods designs-principles and practices. BMC Health Services Research, 48(6 Pt 2), 2134–2156. https://doi.org/10.1111/1475-6773.12117
  • Finderup, J., Bjerre, T., Soendergaard, A., Nielsen, M. E., & Zoffmann, V. (2016). Developing life skills in haemodialysis using the guided self-determination method: A qualitative STUDY. Journal of Renal Care, 42(2), 83–92. https://doi.org/10.1111/jorc.12146
  • Funnell, M. M., & Anderson, R. M. (2003). Patient empowerment: A look back, a look ahead. The Diabetes Educator, 29(3), 454–458. https://doi.org/10.1177/014572170302900310
  • Gillberg, C., Gillberg, I. C., Rasmussen, P., Kadesjö, B., Söderström, H., Råstam, M., Johnson, M., Rothenberger, A., Niklasson, L. (2004). Co–existing disorders in ADHD – Implications for diagnosis and intervention. European Child & Adolescent Psychiatry, 13(1), i92. https://doi.org/10.1007/s00787-004-1008-4
  • Guetterman, T. C., Fetters, M. D., & Creswell, J. W. (2015). Integrating quantitative and qualitative results in health science mixed methods research through joint displays. Annals of Family Medicine, 13(6), 554–561. https://doi.org/10.1370/afm.1865
  • Hibbard, J. H., Mahoney, E. R., Stockard, J., & Tusler, M. (2005). Development and testing of a short form of the patient activation measure. Health Services Research, 40(6 Pt 1), 1918–1930. https://doi.org/10.1111/j.1475-6773.2005.00438.x
  • Hilgard, D., Konrad, K., Meusers, M., Bartus, B., Otto, K.-P., Lepler, R., Schober, E., Bollow, E., & Holl, R. W. (2017). Comorbidity of attention deficit hyperactivity disorder and type 1 diabetes in children and adolescents: Analysis based on the multicentre DPV registry. Pediatric Diabetes, 18(8), 706–713. https://doi.org/10.1111/pedi.12431
  • Husted, G. R., Esbensen, B. A., Hommel, E., Thorsteinsson, B., & Zoffmann, V. (2014). Adolescents developing life skills for managing type 1 diabetes: A qualitative, realistic evaluation of a guided self-determination-youth intervention. Journal of Advanced Nursing, 70(11), 2634–2650. https://doi.org/10.1111/jan.12413
  • Husted, G. R., Thorsteinsson, B., Esbensen, B. A., Gluud, C., Winkel, P., Hommel, E., & Zoffmann, V. (2014). Effect of guided self-determination youth intervention integrated into outpatient visits versus treatment as usual on glycemic control and life skills: A randomized clinical trial in adolescents with type 1 diabetes. Trials, 15(1), 321. https://doi.org/10.1186/1745-6215-15-321
  • Husted, G. R., Thorsteinsson, B., Esbensen, B. A., Hommel, E., & Zoffmann, V. (2011). Improving glycaemic control and life skills in adolescents with type 1 diabetes: A randomised, controlled intervention study using the Guided Self-Determination-Young method in triads of adolescents, parents and health care providers integrated into routine paediatric outpatient clinics. BMC Pediatrics, 11(1), 55. https://doi.org/10.1186/1471-2431-11-55
  • Jameson, N. D., Sheppard, B. K., Lateef, T. M., Vande Voort, J. L., He, J.-P., & Merikangas, K. R. (2016). Medical comorbidity of Attention-Deficit/Hyperactivity Disorder in US adolescents. Journal of Child Neurology, 31(11), 1282–1289. https://doi.org/10.1177/0883073816653782
  • Jørgensen, R., Licht, R. W., Lysaker, P. H., Munk-Jørgensen, P., Buck, K. D., Jensen, S. O. W., Hansson, L., & Zoffmann, V. (2015). Effects on cognitive and clinical insight with the use of Guided Self-Determination in outpatients with schizophrenia: A randomized open trial. European Psychiatry: The Journal of the Association of European Psychiatrists, 30(5), 655–663. https://doi.org/10.1016/j.eurpsy.2014.12.007
  • Kasper, L. J., Alderson, R. M., & Hudec, K. L. (2012). Moderators of working memory deficits in children with attention-deficit/hyperactivity disorder (ADHD): A meta-analytic review. Clinical Psychology Review, 32(7), 605–617. https://doi.org/10.1016/j.cpr.2012.07.001
  • Keogh, A., Matthews, J., Segurado, R., & Hurley, D. A. (2018). Feasibility of training physical therapists to deliver the theory-based self-management of osteoarthritis and low back pain through activity and skills (SOLAS) intervention within a trial. Physical Therapy, 98(2), 95–107. https://doi.org/10.1093/ptj/pzx105
  • Kofler, M. J., Rapport, M. D., Sarver, D. E., Raiker, J. S., Orban, S. A., Friedman, L. M., & Kolomeyer, E. G. (2013). Reaction time variability in ADHD: A meta-analytic review of 319 studies. Clinical Psychology Review, 33(6), 795–811. https://doi.org/10.1016/j.cpr.2013.06.001
  • Kutuk, M. O., Tufan, A. E., Guler, G., Yalin, O. O., Altintas, E., Bag, H. G., Uluduz, D., Toros, F., Aytan, N., Kutuk, O., & Ozge, A. (2018). Migraine and associated comorbidities are three times more frequent in children with ADHD and their mothers. Brain and Development, 40(10), 857–864. https://doi.org/10.1016/j.braindev.2018.06.001
  • Laugesen, B., Lauritsen, M. B., Jørgensen, R., Sørensen, E. E., Grønkjaer, M., & Rasmussen, P. (2017). ADHD and everyday life: Healthcare as a significant lifeline. Journal of Pediatric Nursing, 35, 105–112. https://doi.org/10.1016/j.pedn.2017.03.001
  • Lin, S. Y., Lin, C. L., Hsu, W. H., Lin, C. C., & Fu, Y. C. (2019). Association of attention deficit hyperactivity disorder with recurrent hypoglycemia in type 1 diabetes mellitus. Pediatric Diabetes, 20(2), 189–196. https://doi.org/10.1111/pedi.12716
  • Maindal, H. T., Sokolowski, I., & Vedsted, P. (2009). Translation, adaptation and validation of the American short form Patient Activation Measure (PAM13) in a Danish version. BMC Public Health, 9(1), 209https://doi.org/10.1186/1471-2458-9-209
  • Mcnaughton, D., Hamlin, D., Mccarthy, J., Head-Reeves, D., & Schreiner, M. (2008). Learning to listen teaching an active listening strategy to preservice education professionals. Topics in Early Childhood Special Education, 27(4), 223–231. https://doi.org/10.1177/0271121407311241
  • Moen, Ø. L., Hall-Lord, M. L., & Hedelin, B. (2014). Living in a family with a child with attention deficit hyperactivity disorder: A phenomenographic study. The Journal of Clinical Nursing, 23(21-22), 3166–3176. https://doi.org/10.1111/jocn.12559
  • Mohn, J., Graue, M., Assmus, J., Zoffmann, V., Thordarson, H., Peyrot, M., & Rokne, B. (2017). The effect of guided self-determination on self-management in persons with type 1 diabetes mellitus and HbA 1c ≥64 mmol/mol: A group-based randomised controlled trial. BMJ Open, 7(6), e013295. https://doi.org/10.1136/bmjopen-2016-013295
  • Morsink, S., Sonuga-Barke, E., Mies, G., Glorie, N., Lemiere, J., Van der Oord, S., & Danckaerts, M. (2017). What motivates individuals with ADHD? A qualitative analysis from the adolescent's point of view. European Child & Adolescent Psychiatry, 26(8), 923–932. https://doi.org/10.1007/s00787-017-0961-7
  • Moseholm, E., & Fetters, M. D. (2017). Conceptual models to guide integration during analysis in convergent mixed methods studies. Methodological Innovations, 10(2), 205979911770311–205979911770311. https://doi.org/10.1177/2059799117703118
  • Ng, J. Y. Y., Ntoumanis, N., Thøgersen-Ntoumani, C., Deci, E. L., Ryan, R. M., Duda, J. L., & Williams, G. C. (2012). Self-determination theory applied to health contexts: A meta-analysis. Perspectives on Psychological Science: A Journal of the Association for Psychological Science, 7(4), 325–340. https://doi.org/10.1177/1745691612447309
  • Olesen, M. L., Duun-Henriksen, A. K., Hansson, H., Ottesen, B., Andersen, K. K., & Zoffmann, V. (2016). A person-centered intervention targeting the psychosocial needs of gynecological cancer survivors: a randomized clinical trial. Journal of Cancer Survivorship: Research and Practice, 10(5), 832–841. https://doi.org/10.1007/s11764-016-0528-5
  • Park, K. J., Lee, J. S., & Kim, H.-W. (2017). Medical and psychiatric comorbidities in Korean children and adolescents with Attention-Deficit/Hyperactivity Disorder. Psychiatry Investigation, 14(6), 817–824. https://doi.org/10.4306/pi.2017.14.6.817
  • Rasmussen, B., Currey, J., Dunning, T., & Zoffmann, V. (2017). Major changes in a young woman’s diabetes self-management by using the guided self-determination online program. Australian Diabetes Educator, 20(2), 1–3.
  • Ryan, R. M., & Deci, E. L. (2000). Self-determination theory and the facilitation of intrinsic motivation, social development, and well-being. The American Psychologist, 55(1), 68–78. https://doi.org/10.1037/0003-066X.55.1.68
  • Sanders, R. A. (2013). Adolescent psychosocial, social, and cognitive development. Pediatrics in Review, 34(8), 354–359. https://doi.org/10.1542/pir.34-8-354
  • Sayal, K., Prasad, V., Daley, D., Ford, T., & Coghill, D. (2018). ADHD in children and young people: Prevalence, care pathways, and service provision. The Lancet Psychiatry, 5(2), 175–186. https://doi.org/10.1016/S2215-0366(17)30167-0
  • Sleath, B., Carpenter, D. M., Sayner, R., Thomas, K., Mann, L., Sage, A., Sulzer, S. H., & Sandler, A. D. (2017). Youth views on communication about ADHD and medication adherence. Community Mental Health Journal, 53(4), 438–444. https://doi.org/10.1007/s10597-016-0078-3
  • StataCorp. (2019). Stata Statistical Software: Release 16. Retrieved April 20, 2020, from https://www.stata.com/support/faqs/resources/citing-software-documentation-faqs/
  • Steinberg, J. (1986). Hvorfor verdi-klargjøring?. Aventura Oslo. [Norwegian]
  • Steinberg, L., & Morris, A. S. (2001). Adolescent development. Annual Review of Psychology, 52(1), 83–110. https://doi.org/10.1146/annurev.psych.52.1.83
  • Sundheds- og AEldreministeriet. (2017). Komitéloven - Bekendtgørelse af lov om videnskabsetisk behandling af sundhedsvidenskabelige forskningsprojekter. LBK nr. 1083 af 15/09/2017. Retrieved December 13, 2019, from https://www.retsinformation.dk/Forms/R0710.aspx?id=192671 [Danish]
  • von Gontard, A., & Equit, M. (2015). Comorbidity of ADHD and incontinence in children. European Child & Adolescent Psychiatry, 24(2), 127–140. https://doi.org/10.1007/s00787-014-0577-0
  • Weis, J., Zoffmann, V., & Egerod, I. (2014). Improved nurse-parent communication in neonatal intensive care unit: Evaluation and adjustment of an implementation strategy. Journal of Clinical Nursing, 23(23-24), 3478–3489. https://doi.org/10.1111/jocn.12599
  • Wenderlich, A. M., Baldwin, C. D., Fagnano, M., Jones, M., & Halterman, J. (2019). Responsibility for asthma management among adolescents with and without attention-deficit/hyperactivity disorder. The Journal of Adolescent Health: Official Publication of the Society for Adolescent Medicine, 65(6), 812–814. https://doi.org/10.1016/j.jadohealth.2019.05.023
  • WHO. (2016). ICD-10 International Classification of Diseases. Retrieved May 21, 2019, from https://icd.who.int/browse10/2016/en
  • WMA. (2013). World Medical Association Declaration of Helsinki. JAMA Network, 310(20), 2191–2194. https://doi.org/10.1001/jama.2013.281053
  • Yazar, A., Akın, F., Akça, Ö. F., Eklioğlu, B. S., Türe, E., Coşkun, F., & Atabek, M. E. (2019). The effect of attention deficit/hyperactivity disorder and other psychiatric disorders on the treatment of pediatric diabetes mellitus. Pediatric Diabetes, 20(3), 345–352. https://doi.org/10.1111/pedi.12819
  • Zoffmann, V., & Kirkevold, M. (2012). Realizing empowerment in difficult diabetes care: A guided self-determination intervention. Qualitative Health Research, 22(1), 103–118. https://doi.org/10.1177/1049732311420735
  • Zoffmann, V., & Lauritzen, T. (2006). Guided self-determination improves life skills with type 1 diabetes and A1C in randomized controlled trial. Patient Education and Counseling, 64(1-3), 78–86. https://doi.org/10.1016/j.pec.2005.11.017
  • Zoffmann, V. (2004). Guided self-determination: A life skills approach developed in difficult type 1 diabetes [doctoral dissertation, Aarhus Universitet].
  • Zoffmann, V., Harder, I., & Kirkevold, M. (2008). A person-centered communication and reflection model: Sharing decision-making in chronic care. Qualitative Health Research, 18(5), 670–685. https://doi.org/10.1177/1049732307311008
  • Zoffmann, V., & Kirkevold, M. (2005). Life versus disease in difficult diabetes care: Conflicting perspectives disempower patients and professionals in problem solving. Qualitative Health Research, 15(6), 750–765. https://doi.org/10.1177/1049732304273888
  • Zoffmann, V., & Kirkevold, M. (2007). Relationships and their potential for change developed in difficult type 1 diabetes. Qualitative Health Research, 17(5), 625–638. https://doi.org/10.1177/1049732307301230

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.