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Original Articles

“You Can't Eat WHAT?” Managing the Stigma of Celiac Disease

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Pages 456-474 | Received 01 Apr 2013, Accepted 27 Aug 2013, Published online: 20 Feb 2014

REFERENCES

  • Alaedini , Armin and Peter R. Green . 2005 . “Narrative Review: Celiac Disease: Understanding a Complex Autoimmune Disorder.” Annual Internal Medicine Review 142 : 289 – 298 .
  • Austin , Joan K. , Jessica Macleod , David Dunn , Jianzhao Shen , and Susan M. Perkins . 2004 . “Measuring Stigma in Children with Epilepsy and Their Parents: Instrument Development and Testing.” Epilepsy and Behavior 5 : 472 – 482 .
  • Babbie , Earl. 1995 . The Practice of Social Research () , 7th ed. . Belmont , CA : Wadsworth .
  • Copelton , Denise A. and Giuseppina Valle . 2009 . “‘You Don't Need a Prescription to Go Gluten-Free’: The Scientific Self-Diagnosis of Celiac Disease.” Social Science and Medicine 69 : 623 – 631 .
  • Copes , Heith , Andy Hochstetler , and Craig J. Forsyth . 2013 . “Peaceful Warriors: Codes for Violence among Adult Male Bar Fighters.” Criminology 51 : 761 – 794 .
  • Corbin , Juliet and Anselm Strauss . 1990 . “Grounded Theory Research: Procedures, Canons, and Evaluative Criteria.” Qualitative Sociology 13 : 3 – 21 .
  • Crouch , Mira and Heather McKenzie . 2006 . “The Logic of Small Samples in Interview-Based Qualitative Research.” Social Science Information/Information Sur Les Sciences Sociales 45 ( 4 ): 483 – 499 .
  • Dubé , Catherine , Alaa Rostom , Richmond Sy , Ann Cranney , Navaaz Saloojee , Chantelle Garritty , Margaret Sampson , Li Zhang , Fatemeh Yazdi , Vasil Mamaladze , Irene Pan , Joanne MacNeil , David Mack , Dilip Patel , and David Moher . 2005 . “The Prevalence of Celiac Disease in Average-Risk and At-Risk Western European Populations: A Systematic Review.” Gastroenterology 128 ( 4 ): 57 – 67 .
  • Fasano , Alessio , Irene Berti , Tania Gerarduzzie , Tarcisio Not , Richard Colletti , Sandro Drago , Yoram Elitsur , Peter H. Green , Stefano Guandalini , Ivor D. Hill , Michelle Pietzak , Alessandro Ventura , Mary Thrope , Debbie Kryszak , Fabiola Fornaroli , Steven Wasserman , Joseph Murray , and Karoly Horvath . 2003 . “Prevalence of Celiac Disease in At-Risk and Not-At-Risk Groups in the United States.” Archives of Internal Medicine 163 : 286 – 292 .
  • Frankfort-Nachmias , Chava and David Nachmias . 1996 . Research Methods in the Social Sciences, , 5th edition . New York : St. Martin's Press .
  • Gilbert , Leah and Liz Walker . 2010 . “‘My Biggest Fear was that People would Reject Me if They Knew My Status … ’ Stigma as Experienced by Patients in an HIV/AIDS Clinic in Johannesburg, South Africa.” Health and Social Care in the Community 18 : 139 – 146 .
  • Giordano , Peggy C. , Stephen A. Cernkovich , and Ryan D. Schroeder . 2007 . “Emotions and Crime Over the Life Course: A NeoMedian Perspective on Criminal Continuity and Change.” American Journal of Sociology 112 : 1603 – 1661 .
  • Glass , Thomas A. and Matthew J. McAtee . 2006 . “Behavioral Science at the Crossroads in Public Health: Extending Horizons, Envisioning the Future.” Social Science and Medicine 62 : 1650 – 1671 .
  • Goffman Irving . 1963 . Stigma: Notes on the Management of Spoiled Identity . London : Penguin Books .
  • Green Peter H . and Bana Jabri . 2006 . “Celiac Disease.” Annual Review of Medicine 57 : 207 – 221 .
  • Green Peter H . and Rory Jones . 2006 . Celiac Disease: A Hidden Epidemic . New York : William Morrow .
  • Guest , Greg , Arwen Bunce , and Laura Johnson . 2006 . “How Many Interviews are Enough? An Experiment with Data Saturation and Variability.” Field Methods 24 : 59 – 82 .
  • Hayes , Terrell. 2010 . “Labeling and the Adoption of a Deviant Status.” Deviant Behavior 31 : 274 – 302 .
  • Heckert , Druann M. and Amy Best . 1997 . “Ugly Duckling to Swan: Labeling Theory and the Stigmatization of Red Hair.” Symbolic Interaction 20 : 365 – 384 .
  • Hirschfield , Paul J. 2008 . “The Declining Significance of Delinquent Labels in Disadvantaged Communities.” Sociological Forum 23 : 575 – 601 .
  • Hottle , Elizabeth. 1996 . “Making Myself Understood: The Labeling Theory of Deviance Applied to Stuttering.” Virginia Social Science Journal 31 : 78 – 85 .
  • Lee , James D. and Elizabeth A. Craft . 2002 . “Protecting One's Self from a Stigmatized Disease … Once One has it.” Deviant Behavior 23 : 267 – 299 .
  • Link Bruce G . and Jo C. Phelan . 1999 . “Labeling and Stigma.” Pp. 481 – 494 in The Handbook of the Sociology of Mental Health , edited by Carol Aneshensel and Jo Phelan . New York : Plenum .
  • ——— . 2001 . “Conceptualizing Stigma.” Annual Review of Sociology 27 : 363 – 385 .
  • Link , Bruce G. , Elmer L. Struening , Sheree Neese-Todd , Sara Asmussen , and Jo C. Phelan . 1989 . “A Modified Labeling Theory Approach in the Area of Mental Disorders: An Empirical Assessment.” American Sociological Review 54 : 100 – 123 .
  • Link , Bruce G. , Jerrold Mirotznik , and Francis T. Cullen . 1991. “The Effectiveness of Stigma Coping Orientations: Can Negative Consequences of Mental Illness Labeling be Avoided?” Journal of Health and Social Behavior 32:302–320.
  • Loftus , Conor G. and Joseph A. Murray . 2002 . “Celiac Disease: Diagnosis and Management.” Journal of Clinical Outcomes Management 9 : 341 – 349 .
  • Lohi , S. , K. Mustalahti , K. Kaukinen , K. Laurila , P. Collin , H. Rissanen , O. Lohi , E. Bravi , M. Gasparin , A. Reunanen , and M. Maki . 2007 . “Increasing Prevalence of Coeliac Disease Over Time.” Ailmentary Pharmacology and Therapeutics 26 : 1217 – 1225 .
  • Marzano , Marco and Virginia Romano . 2007 . “‘I Want to be Like before … ’ Chronicity and Normality in the Stories of Sick People with Cancer.” Ressegna Italiana di Sociologia 48 : 57 – 89 .
  • Miller , Eleanor M. 1986 . Street Woman . Philadelphia : Temple University Press .
  • Monroe , Scott M. and Amy M. Peterman . 1988 . “Life Stress and Psychopathology.” Pp. 25 – 36 in Life Events and Psychological Functioning: Theoretical and Methodological Issues , edited by Lawrence H. Cohen . Beverly Hills , CA : Sage .
  • Moore , Li Li and Dennis Moore . 2001 . “Disability and Illicit Drug Use: An Application of Labeling Theory.” Deviant Behavior 22 : 1 – 22 .
  • Muennig , Peter , Haomiao Jia , Rufina Lee , and Erica Lubetkin . 2008 . “I Think Therefore I Am: Perceived Ideal Weight as a Determinant of Health.” American Journal of Public Health 98 : 501 – 506 .
  • Murphy , Debra A. , Barbara Moscicki , Sten Vermund , and Larry R. Muenz . 2000 . “Psycological Distress Among HIV+ Adolescents in the REACH Study: Effects of Life Stress, Social Support, and Coping.” Journal of Adolescent Health 27 : 391 – 398 .
  • Neisser , Ulric and Robyn Fivush . 1994 . The Remembering Self: Construction and Accuracy in the Self-Narrative . Cambridge : Cambridge University Press .
  • Schafer , Markus H. and Kenneth F. Ferraro . 2011 . “The Stigma of Obesity: Does Perceived Weight Discrimination Affect Identity and Physical Health?” Social Psychology Quarterly 74 : 76 – 97 .
  • Schneider Joseph W. and Peter Conrad . 1983 . Having Epilepsy: The Experience and Control of Illness . Philadelphia : Temple University Press .
  • Shai , Iris. 2008 . “Weight Loss with a Low-Carbohydrate, Mediterranean or Low-Fat Diet.” New England Journal of Medicine 359 : 229 – 241 .
  • Sharp , Shane. 2009 . “Escaping Symbolic Entrapment: Maintaining Social Identities.” Social Problems 56 : 267 – 284 .
  • Stryker , Sheldon and Richard T. Serpe . 1982 . “Commitment, Identity Salience, and Role Behavior: Theory and Research Example.” Pp. 199 – 218 in Personality. Roles, and Social Behavior , edited by William Ickes and Eric S. Knowles . New York : Springer-Verlag .
  • Westbrook , Lauren E. , Laurie J. Bauman , and Shlomo Shinnar . 1992 . “Applying Stigma Theory to Epilepsy: A Test of a Conceptual Model.” Journal of Pediatric Psychology 17 : 633 – 649 .
  • Wiener , Judith , Molly Malone , Angela Varma , Clarisa Markel , Daniella Biondic , Rosemary Tannock , and Tom Humphries . 2012 . “Children's Perceptions of Their ADHD Symptoms: Positive Illusions, Attributions, and Stigma.” Canadian Journal of School Psychology 27 ( 3 ): 217 – 242 .
  • Yang Lawrence H. , Arthur Kleinman , Bruce G. Link , Jo C. Phelan , Sing Lee , and Byron Good . 2007 . “Culture and Stigma: Adding Moral Experience to Stigma Theory.” Social Science and Medicine 64 : 1524 – 1535 .

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