1,105
Views
5
CrossRef citations to date
0
Altmetric
Original Articles

A Protocol for Improving Loneliness in People with Multiple Sclerosis

&

References

  • Amtmann, D., Bamer, A. M., Cook, K. F., Askew, R. L., Noonan, V. K., & Brockway, J. A. (2012). University of Washington self-efficacy scale: A new self-efficacy scale for people with disabilities. Archives of Physical Medicine and Rehabilitation, 93(10), 1757–1765. doi:10.1016/2Fj.apmr.2012.05.001
  • Bandura, A. (1977). Self-efficacy: Toward a unifying theory of behavioral change. Physiological Review, 82, 191–215. doi:10.1037//0033-295x.84.2.191
  • Bandura, A. (1997). Self efficacy: The exercise of control. New York, NY: W. H. Freeman & Company.
  • Barnwell, A. M., & Kavanagh, D. J. (1997). Prediction of psychological adjustment to multiple sclerosis. Social Science & Medicine, 45(3), 411–418. doi:10.1016/s0277-9536(96)00356-5
  • Beal, C. B., & Stuifbergen, A. (2007). Loneliness in women with multiple sclerosis. Rehabilitation Nursing, 32, 65–71. doi:10.1002/j.2048-7940.2007.tb00171.x
  • Ben-Zacharia, A. B. (2011). Therapeutics for multiple sclerosis symptoms. Mount Sinai Journal of Medicine: A Journal of Translational and Personalized Medicine, 78(2), 176–191. doi:10.1002/msj.20245
  • Block, P., Vanner, E. A., Keys, C. B., Rimmer, J. H., & Skeels, S. E. (2010). Project Shake-It-Up: Using health promotion, capacity building and a disability studies framework to increase self efficacy. Disability & Rehabilitation, 32(9), 741–754. doi:10.3109/09638280903295466
  • Cattan, M., White, M., Bond, J., & Learmouth, A. (2002). Preventing social isolation and loneliness among older people: A systematic review of health promotion interventions. Ageing & Society, 25, 41–67. doi:10.1017/s0144686x04002594
  • Chiaravalloti, N. D., & DeLuca, J. (2008). Cognitive impairment in multiple sclerosis. The Lancet Neurology, 7(12), 1139–1151.
  • de Jong-Gierveld, J. (1987). Developing and testing a model of loneliness. Journal of Personality and Social Psychology, 53(1), 119–128. doi:10.1037//0022-3514.53.1.119
  • Dennison, L., Moss-Morris, R., & Chalder, T. (2009). A review of psychological correlates of adjustment in patients with multiple sclerosis. Clinical Psychology Review, 29(2), 141–153. doi:10.1016/j.cpr.2008.12.001
  • Dickerson, A. E., Molnar, L. J., Eby, D. W., Adler, G., Bédard, M., Berg-Weger, M., … Trujillo, L. (2007). Transportation and aging: A research agenda for advancing safe mobility. The Gerontologist, 47(5), 578–590. doi:10.1093/geront/47.5.578
  • Fry, P. S., & Debats, D. L. (2002). Self-efficacy beliefs as predictors of loneliness and psychological distress in older adults. International Journal of Aging and Human Development, 55, 233–269. doi:10.2190/kbvp-l2te-2ery-bh26
  • Goffman, E. (1963). Stigma: The management of spoiled identity. Englewood Cliffs, NJ: Prentice-Hall.
  • Grimby, A., Milsom, I., Molander, U., Wiklund, I., & Ekelund, P. (1993). The influence of urinary incontinence on the quality of life of elderly women. Age and Ageing, 22(2), 82–89. doi:10.1093/ageing/22.2.82
  • Grytten, N., & Måseide, P. (2006). ‘When I am together with them I feel more ill.’ The stigma of multiple sclerosis experienced in social relationships. Chronic Illness, 2(3), 195–208. doi:10.1179/174592006x129482
  • Gulick, E. E. (2001). Emotional distress and activities of daily living functioning in persons with multiple sclerosis. Nursing Research, 50(3), 147–154. doi:10.1097/00006199-200105000-00004
  • Hakim, E. A., Bakheit, A. M., Bryant, T. N., Roberts, M. W., McIntosh-Michaelis, S. A., Spackman, A. J., … McLellan, D. L. (2000). The social impact of multiple sclerosis: A study of 305 patients and their relatives. Disability & Rehabilitation, 6, 288–293. doi:10.1080/096382800296755
  • Hughes, M. E., Waite, L. J., Hawkley, L. C., & Cacioppo, J. T. (2004). A short scale for measuring loneliness in large surveys results from two population-based studies. Research on Aging, 26(6), 655–672. doi:10.1177/0164027504268574
  • Janardhan, V., & Bakshi, R. (2002). Quality of life in patients with multiple sclerosis: The impact of fatigue and depression. Journal of the Neurological Sciences, 205(1), 51–58.
  • Jongen, P. J., Ruimschotel, R., Heerings, M., Hussaarts, A., Duyverman, L., van der Zande, A., … Visser, L. H. (2014). Improved self-efficacy in persons with relapsing remitting multiple sclerosis after an intensive social cognitive wellness program with participation of support partners: A 6-months observational study. Health and Quality of Life Outcomes, 12(1), 40. doi:10.1186/1477-7525-12-40
  • Krupp, L. B., LaRocca, N. G., Muir-Nash, J., & Steinberg, A. D. (1989). The fatigue severity scale: Application to patients with multiple sclerosis and systemic lupus erythematosus. Archives of Neurology, 46(10), 1121. doi:10.1001/archneur.1989.00520460115022
  • McPheters, J. K., & Sandberg, J. G. (2010). The relationship among couple relationship quality, physical functioning, and depression in multiple sclerosis patients and partners. Families, Systems, & Health, 28, 48–68. doi:10.1037/a0018818
  • Mitchell, A. J., Benito-Leon, J., Gonzalez, J. M., & Rivera-Navarro, J. (2005). Quality of life and its assessment in multiple sclerosis: Integrating physical and psychological components of wellbeing. Lancet Neurology, 4(9), 556–566. doi:10.1016/s1474-4422(05)70166-6
  • Motl, R. W., McAuley, E., Snook, E. M., & Gliottoni, R. C. (2009). Physical activity and quality of life in multiple sclerosis: Intermediary roles of disability, fatigue, mood, pain, self-efficacy and social support. Psychology, Health & Medicine, 14(1), 111–124. doi:10.1080/13548500802241902
  • Mullins, L. C., Elston, C. H., & Gutkowski, S. M. (1996). Social determinants of loneliness among older Americans. Genetic, Social, and General Psychology Monographs, 122(4), 455–474.
  • Peplau, L. A., & Perlman, D. (1982). Loneliness: A sourcebook of current theory, research and therapy. New York, NY: John Wiley & Sons.
  • Perlman, D., & Peplau, L. A. (1981). Toward a social psychology of loneliness. In R. Gilmour & S. Duck (Eds.), Personal relationships in disorder (pp. 31–56). London, England: Academic Press.
  • Rao, S. M., Leo, G. J., Ellington, L., Nauertz, T., Bernardin, L., & Unverzagt, F. (1991). Cognitive dysfunction in multiple sclerosis. II. Impact on employment and social functioning. Neurology, 41(5), 692–696. doi:10.1212/wnl.41.5.692
  • Rigby, S. A., Domenech, C., Thornton, E. W., Tedman, S., & Young, C. A. (2003). Development and validation of a self-efficacy measure for people with multiple sclerosis: The multiple sclerosis self-efficacy scale. Multiple Sclerosis, 9(1), 73–81. doi:10.1191/1352458503ms870oa
  • Rigby, S. A., Thornton, E. W., & Young, C. A. (2008). A randomized group intervention trial to enhance mood and self-efficacy in people with multiple sclerosis. British Journal of Health Psychology, 13(Pt 4), 619–631. doi:10.1348/135910707x241505
  • Rokach, A. (2004). Loneliness in cancer and multiple sclerosis patients. Psychological Reports, 94, 637–648. doi:10.2466/pr0.94.2.637-648
  • Russell, D. W. (1996). UCLA loneliness scale (version 3): Reliability, validity, and factor structure. Journal of Personality Assessment, 66, 20–40. doi:10.1207/s15327752jpa6601_2
  • Schwartz, C., & Frohner, R. (2005). Contribution of Demographic, Medical, and Social Support Variables in Predicting the Mental Health Dimension of Quality of Life among People with Multiple Sclerosis. Health & Social Work, 30(3), 203–212. doi:10.1093/hsw/30.3.203
  • Schwartz, C., & Gronemann, O. C. (2009). The contribution of self-efficacy, social support and participation in the community to predicting loneliness among persons with schizophrenia living in supported residences. The Israel Journal of Psychiatry and Related Services, 46(2), 120–129.
  • Schwartz, C. E., Coulthard-Morris, L., Zeng, Q., & Retzlaff, P. (1996). Measuring self-efficacy in people with multiple sclerosis: A validation study. Archives of Physical Medicine and Rehabilitation, 77(4), 394–398. doi:10.1016/s0003-9993(96)90091-x
  • Simmons, R. D. (2010). Life issues in multiple sclerosis. Nature Reviews Neurology, 6(11), 603–610. doi:10.1038/nrneurol.2010.143
  • Smith, J. M. (2012). Loneliness in older adults: An embodied experience. Journal of Gerontological Nursing, 38, 45–53. doi:10.3928/00989134-20210703-08
  • Tijhuis, M. A., De Jong-Gierveld, J., Feskens, E. J., & Kromhout, D. (1999). Changes in and factors related to loneliness in older men. The Zutphen Elderly Study. Age and Ageing, 28(5), 491–495. doi:10.1093/ageing/28.5.491
  • Weeks, D. J. (1994). A review of loneliness concepts, with particular reference to old age. International Journal of Geriatric Psychiatry, 9(5), 345–355. doi:10.1002/gps.930090502
  • Wei, M., Russell, D. W., & Zakalik, R. A. (2005). Adult attachment, social self-efficacy, self-disclosure, loneliness, and subsequent depression for freshman college students: A longitudinal study. Journal of Counseling Psychology, 52(4), 602–614. doi:10.1037/0022-0167.52.4.602
  • Wineman, N. M. (1990). Adaptation to multiple sclerosis: The role of social support, functional disability, and perceived uncertainty. Nursing Research, 39, 294–299. doi:10.1097/00006199-199009000-00013
  • Yorkston, K. M., Johnson, K. L., & Klasner, E. R. (2005). Taking part in life: Enhancing participation in multiple sclerosis. Physical Medicine & Rehabilitation Clinics of North America, 16, 583–594. doi:10.1016/j.pmr.2005.01.003

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.