Tourism and final wish making: the discourse of terminal illness and travel

References

• Aisporna, C., & Erickson-Hurt, C. (2019). End-of-Life travel: A bucket list desire for patients with life-limiting illnesses. Journal of Hospice & Palliative Nursing, 21(5), 397–403. https://doi.org/10.1097/NJH.0000000000000542
   Web of Science ®Google Scholar
• Bachner, Y. G., Guldin, M. B., & Nielsen, M. K. (2021). Mortality communication and post-bereavement depression among danish family caregivers of terminal cancer patients. Supportive Care in Cancer, 29(4), 1951–1958. https://doi.org/10.1007/s00520-020-05685-6
   PubMed Web of Science ®Google Scholar
• Beeuwkes Buntin, M., Garber, A. M., McClellan, M., & Newhouse, J. P. (2004). The costs of decedents in the medicare program: Implications for payments to medicare+ choice plans. Health Services Research, 39(1), 111–130. https://doi.org/10.1111/j.1475-6773.2004.00218.x
   PubMed Web of Science ®Google Scholar
• Biran, A., Hyde, K., Miller, D. S., & Gonzalez, C. (2013). When death is the destination: The business of death tourism–despite legal and social implications. International Journal of Culture, Tourism and Hospitality Research, 7(3), 293–306. https://doi.org/10.1108/IJCTHR-05-2013-0032
   Google Scholar
• Boles, J. C., & Jones, M. T. (2021). Legacy perceptions and interventions for adults and children receiving palliative care: A systematic review. Palliative Medicine, 35(3), 529–551. https://doi.org/10.1177/0269216321989565
   PubMed Web of Science ®Google Scholar
• Capaldi, C. A., Passmore, H. A., Nisbet, E. K., Zelenski, J. M., & Dopko, R. L. (2015). Flourishing in nature: A review of the benefits of connecting with nature and its application as a wellbeing intervention. International Journal of Wellbeing, 5(4). https://doi.org/10.5502/ijw.v5i4.449
   Google Scholar
• Carpentier, N., & Van Brussel, L. (2012). On the contingency of death: A discourse-theoretical perspective on the construction of death. Critical Discourse Studies, 9(2), 99–115. https://doi.org/10.1080/17405904.2012.656372
   Web of Science ®Google Scholar
• Carter, T. (2022). The five most important pages of your website. Retrieved 9 May 2022 from www.seo.co.
   Google Scholar
• Coelho, A., de Brito, M., Teixeira, P., Frade, P., Barros, L., & Barbosa, A. (2020). Family caregivers’ anticipatory grief: A conceptual framework for understanding its multiple challenges. Qualitative Health Research, 30(5), 693–703. https://doi.org/10.1177/1049732319873330
   PubMed Web of Science ®Google Scholar
• Corr, C. A., Corr, D. M., & Doka, K. J. (2018). Death and dying, life and living. Cengage Learning.
   Google Scholar
• Desforges, L. (2000). Traveling the world: Identity and travel biography. Annals of Tourism Research, 27(4), 926–945. https://doi.org/10.1016/S0160-7383(99)00125-5
   Web of Science ®Google Scholar
• Diekmann, A., McCabe, S., & Ferreira, C. C. (2020). Social tourism at the crossroads. Routledge.
   Google Scholar
• Fairclough, N. (1992). Intertextuality in critical discourse analysis. Linguistics and Education, 4(3-4), 269–293. https://doi.org/10.1016/0898-5898(92)90004-G
   Google Scholar
• Fearnley, R. (2015). Writing the ‘penultimate chapter’: How children begin to make sense of parental terminal illness. Mortality, 20(2), 163–177. https://doi.org/10.1080/13576275.2014.996209
   Google Scholar
• Gawande, A. (2014). Being mortal: Medicine and what matters in the end. Metropolitan Books.
   Google Scholar
• Goldsteen, M., Houtepen, R., Proot, I. M., Abu-Saad, H. H., Spreeuwenberg, C., & Widdershoven, G. (2006). What is a good death? Terminally ill patients dealing with normative expectations around death and dying. Patient Education and Counseling, 64(1-3), 378–386. https://doi.org/10.1016/j.pec.2006.04.008
   PubMed Web of Science ®Google Scholar
• Gordon, B. (1986). The souvenir: Messenger of the extraordinary. The Journal of Popular Culture, 20(3), 135. https://doi.org/10.1111/j.0022-3840.1986.2003_135.x
   Web of Science ®Google Scholar
• Grant, D., Hardy, C., Oswick, C., & Putnam, L. L. (2004). The sage handbook of organizational discourse. Sage.
   Google Scholar
• Hannam, K., & Knox, D. (2005). Discourse analysis in tourism research a critical perspective. Tourism Recreation Research, 30(2), 23–30. https://doi.org/10.1080/02508281.2005.11081470
   Google Scholar
• Harris, A. (2017). Rainbow trust neonatal care: Caring for families who have a child with a life threatening or terminal illness. Infant Journal, 13(6), 236–237.
   Google Scholar
• Hay, B. (2015). Dark hospitality: Hotels as places for the end of life. Hospitality & Society, 5(2-3), 233–248. https://doi.org/10.1386/hosp.5.2-3.233_7
   Google Scholar
• Hilal, A. H., & Alabri, S. S. (2013). Using NVivo for data analysis in qualitative research. International Interdisciplinary Journal of Education, 2(2), 181–186. https://doi.org/10.12816/0002914
   Google Scholar
• Ho, A. H., Leung, P. P., Tse, D. M., Pang, S. M., Chochinov, H. M., Neimeyer, R. A., & Chan, C. L. (2013). Dignity amidst liminality: Healing within suffering among Chinese terminal cancer patients. Death Studies, 37(10), 953–970. https://doi.org/10.1080/07481187.2012.703078
   PubMed Web of Science ®Google Scholar
• Hui, D., Nooruddin, Z., Didwaniya, N., Dev, R., De La Cruz, M., Kim, S. H., & Bruera, E. (2014). Concepts and definitions for “actively dying,” “End of life,” “terminally Ill,” “terminal care,” and “transition of care”: A systematic review. Journal of Pain and Symptom Management, 47(1), 77–89. https://doi.org/10.1016/j.jpainsymman.2013.02.021
   PubMed Web of Science ®Google Scholar
• Hunter-Jones, P., Sudbury-Riley, L., Al-Abdin, A., Menzies, L., & Neary, K. (2020). When a child is sick: The role of social tourism in palliative and end-of-life care. Annals of Tourism Research, 83, 102900. https://doi.org/10.1016/j.annals.2020.102900
   Web of Science ®Google Scholar
• Janks, H. (1997). Critical discourse analysis as a research tool. Discourse: Studies in the Cultural Politics of Education, 18(3), 329–342. https://doi.org/10.1080/0159630970180302
   Google Scholar
• Jaworska, S., & Ryan, K. (2018). Gender and the language of pain in chronic and terminal illness: A corpus-based discourse analysis of patients’ narratives. Social Science & Medicine, 215, 107–114. https://doi.org/10.1016/j.socscimed.2018.09.002
   PubMed Web of Science ®Google Scholar
• Johnson, J. O., Sulmasy, D. P., & Nolan, M. T. (2007). Patients’ experiences of being a burden on family in terminal illness. Journal of Hospice & Palliative Nursing, 9(5), 264. https://doi.org/10.1097/01.NJH.0000289656.91880.f2
   Google Scholar
• Kuhl, D., Stanbrook, M. B., & Hébert, P. C. (2010). What people want at the end of life. Canadian Medical Association Journal, 182(16), 1707–1707. https://doi.org/10.1503/cmaj.101201
   Web of Science ®Google Scholar
• Leitch, S., & Palmer, I. (2010). Analysing texts in context: Current practices and new protocols for critical discourse analysis in organization studies. Journal of Management Studies, 47(6), 1194–1212. https://doi.org/10.1111/j.1467-6486.2009.00884.x
   Web of Science ®Google Scholar
• Lejeune, P., Tomarken, A., & Tomarken, E. (1977). Autobiography in the third person. New Literary History, 9(1), 27–50. https://doi.org/10.2307/468435
   Web of Science ®Google Scholar
• Leung, K. K., Chiu, T. Y., & Chen, C. Y. (2006). The influence of awareness of terminal condition on spiritual well-being in terminal cancer patients. Journal of Pain and Symptom Management, 31(5), 449–456. https://doi.org/10.1016/j.jpainsymman.2006.02.001
   PubMed Web of Science ®Google Scholar
• Little, J. (2015). Nature, wellbeing and the transformational self. The Geographical Journal, 181(2), 121–128. https://doi.org/10.1111/geoj.12083
   Web of Science ®Google Scholar
• Luo, S. (2016). Analysis of guangxi bama as cancer village from the perspective of anthropology. New West (Theoretical Edition), 24, 32–33.
   Google Scholar
• MacDonald, K. (2009). Patient-clinician eye contact: Social neuroscience and art of clinical engagement. Postgraduate Medicine, 121(4), 136–144. https://doi.org/10.3810/pgm.2009.07.2039
   PubMed Web of Science ®Google Scholar
• Marks, A., Firn, J., & Harada, K. (2016). Final destination: Air travel in the setting of a terminal illness (FR402). Journal of Pain and Symptom Management, 51(2), 346. https://doi.org/10.1016/j.jpainsymman.2015.12.184
   Web of Science ®Google Scholar
• Mautner, G. (2005). Time to get wired: Using web-based corpora in critical discourse analysis. Discourse & Society, 16(6), 809–828. https://doi.org/10.1177/0957926505056661
   Web of Science ®Google Scholar
• McCabe, S. (2020). “Tourism for all?” considering social tourism: A perspective paper. Tourism Review, 75(1), 61–64. https://doi.org/10.1108/TR-06-2019-0264
   Google Scholar
• McGuigan, K. A., Legget, J. A., & Horsburgh, M. (2015). Visiting the museum together: Evaluating a programme at auckland museum for people living with dementia and their carers. Arts & Health, 7(3), 261–270. https://doi.org/10.1080/17533015.2015.1045531
   Web of Science ®Google Scholar
• Meyer, M. (2001). Between theory, method, and politics: Positioning of the approaches to CDA. In R. Wodak & M. Meyer (Eds.), Methods of critical discourse analysis (pp. 14–31). Sage.
   Google Scholar
• Motion, J., & Weaver, C. K. (2005). A discourse perspective for critical public relations research: Life sciences network and the battle for truth. Journal of Public Relations Research, 17(1), 49–67. https://doi.org/10.1207/s1532754xjprr1701_5
   Google Scholar
• Qian, J., Wei, J., & Law, R. (2018). Review of critical discourse analysis in tourism studies. International Journal of Tourism Research, 20(4), 526–537. https://doi.org/10.1002/jtr.2202
   Web of Science ®Google Scholar
• Rhoads, L. (2009). Museums, meaning making, and memories: The need for museum programs for people with dementia and their caregivers. Curator: The Museum Journal, 52(3), 229–240. https://doi.org/10.1111/j.2151-6952.2009.tb00348.x
   Google Scholar
• Scacca, S. (2020). How to make cross-browser testing more efficient with LambdaTest. Retrieved 12 May 2020 from https://www.smashingmagazine.com/2020/02/cross-browser-testing-efficient-lambdatest/.
   Google Scholar
• Schaefer, M. R., Wagoner, S. T., Young, M. E., Madan-Swain, A., Barnett, M., & Gray, W. N. (2020). Healing the hearts of bereaved parents: Impact of legacy artwork on grief in pediatric oncology. Journal of Pain and Symptom Management, 60(4), 790–800. https://doi.org/10.1016/j.jpainsymman.2020.04.018
   PubMed Web of Science ®Google Scholar
• Shanahan, F. (2020). The language of illness. Liberties Press.
   Google Scholar
• Shiva, B. (2020). Photo tips: Better portraits: The art of emotion. Australian Photography, (May), 40–49.
   Google Scholar
• Small, J. (2017). Women’s “beach body” in Australian women’s magazines. Annals of Tourism Research, 63, 23–33. https://doi.org/10.1016/j.annals.2016.12.006
   Web of Science ®Google Scholar
• Small, J., & Harris, C. (2012). Obesity and tourism: Rights and responsibilities. Annals of Tourism Research, 39(2), 686–707. https://doi.org/10.1016/j.annals.2011.09.002
   Web of Science ®Google Scholar
• Small, J., & Harris, C. (2014). Crying babies on planes: Aeromobility and parenting. Annals of Tourism Research, 48, 27–41. https://doi.org/10.1016/j.annals.2014.04.009
   Web of Science ®Google Scholar
• Smith, K. (2022). Colour symbolism and meaning of blue. Retrieved 29 May 2022 from https://www.sensationalcolor.com/meaning-of-blue/.
   Google Scholar
• Steinhauser, K. E., Christakis, N. A., Clipp, E. C., McNeilly, M., McIntyre, L., & Tulsky, J. A. (2000). Factors considered important at the end of life by patients, family, physicians, and other care providers. Jama, 284(19), 2476–2482. https://doi.org/10.1001/jama.284.19.2476
   PubMed Web of Science ®Google Scholar
• Taddeo, C., & Barnes, A. (2016). The school website: Facilitating communication engagement and learning. British Journal of Educational Technology, 47(2), 421–436. https://doi.org/10.1111/bjet.12229
   Web of Science ®Google Scholar
• Talley, D. L. (2017). A kingdom of heaven at hand. Christianity & Literature, 66(3), 541–542. https://doi.org/10.1177/0148333117714550
   Google Scholar
• Thomas, L. E., & Thomas, S. M. (2001). Personal reflections on terminal illness after twenty years of teaching a death and dying course. OMEGA - Journal of Death and Dying, 43(2), 119–127. https://doi.org/10.2190/FTXX-K4XM-8829-293J
   Web of Science ®Google Scholar
• Thurnell-Read, T. (2017). What’s on your bucket list?’: Tourism, identity and imperative experiential discourse. Annals of Tourism Research, 67, 58–66. https://doi.org/10.1016/j.annals.2017.08.003
   Web of Science ®Google Scholar
• Tickle, L., & von Essen, E. (2020). The seven sins of hunting tourism. Annals of Tourism Research, 84, 102996. https://doi.org/10.1016/j.annals.2020.102996
   PubMed Web of Science ®Google Scholar
• Turner, D. C. (2007). The nature of the dying: An examination of the therapeutic benefits of gardens in palliative care facilities. (Doctoral dissertation). University of Georgia.
   Google Scholar
• Walker, W. R., Skowronski, J. J., & Thompson, C. P. (2003). Life is pleasant—And memory helps to keep it that way!. Review of General Psychology, 7(2), 203–210. https://doi.org/10.1037/1089-2680.7.2.203
   Web of Science ®Google Scholar
• Walter, T. (1996). A new model of grief: Bereavement and biography. Mortality, 1(1), 7–25. https://doi.org/10.1080/713685822
   Google Scholar
• Walter, T. (1999). On bereavement: The culture of grief. McGraw-Hill Education (UK).
   Google Scholar
• Wang, K., Xu, H., & Huang, L. (2020). Wellness tourism and spatial stigma: A case study of bama, China. Tourism Management, 78, 104039. https://doi.org/10.1016/j.tourman.2019.104039
   Web of Science ®Google Scholar
• Ware, B. (2012). The top five regrets of the dying: A life transformed by the dearly departing. Hay House, Inc.
   Google Scholar
• Wen, J., Yu, C. E., & Goh, E. (2019). Physician-assisted suicide travel constraints: Thematic content analysis of online reviews. Tourism Recreation Research, 44(4), 553–557. https://doi.org/10.1080/02508281.2019.1660488
   Web of Science ®Google Scholar
• Wilson, E., Harris, C., & Small, J. (2008). Furthering critical approaches in tourism and hospitality studies: Perspectives from Australia and New Zealand. Journal of Hospitality and Tourism Management, 15(1), 15–18. https://doi.org/10.1375/jhtm.15.15
   Google Scholar
• Wilson, E., Holdsworth, L., & Witsel, M. (2009). Gutsy women? Conflicting discourses in women’s travel guidebooks. Tourism Recreation Research, 34(1), 3–11. https://doi.org/10.1080/02508281.2009.11081570
   Google Scholar
• Willson, G., McIntosh, A. J., Morgan, A., & Sanders, D. (2018). Terminal illness and tourism: A review of current literature and directions for future research. Tourism Recreation Research, 43(2), 268–272. https://doi.org/10.1080/02508281.2018.1443053
   Web of Science ®Google Scholar
• Wodak, R. (1997). Critical discourse analysis and the study of doctor-patient interaction. The Construction of Professional Discourse, 19(6), 173–200.
   Google Scholar
• Zascerinska, S., Sharpley, R., & Wright, D. (2022). Living life or denying death? Towards an understanding of the bucket list. Tourism Recreation Research, 1–14. https://doi.org/10.1080/02508281.2021.2015673
   Google Scholar