Attitudes towards prenatal diagnosis and termination in women who have a sibling with Down's syndrome

References

• Abramsky , L , Hall , S , Levitan , J and Marteau , TM . 2001 . What parents are told after prenatal diagnosis of a sex chromosome abnormality: interview and questionnaire study. . British Medical Journal , 322 : 463 – 466 .
   PubMed Web of Science ®Google Scholar
• Ajzen I Fishbein M 1980 Understanding attitudes and predicting social behaviour Englewood Cliffs NJ Prentice Hall
   Google Scholar
• Bekker H Thornton JG Airey CM Connelly JB Hewison J Robinson MB et al. Informed decision making: an annotated bibliography and systematic review. 1999 Health Technology Assessment 3 1 156
   PubMedGoogle Scholar
• Bell , M and Stoneman , Z . 2000 . Reactions to prenatal testing: reflection of religiosity and attitudes toward abortion and people with disabilities. . American Journal on Mental Retardation , 105 : 1 – 13 .
   PubMedGoogle Scholar
• Boon , AR . 1986 . Family building in parents with Down's syndrome. . Journal of Epidemiology and Community Health , 40 : 154 – 156 .
   PubMedGoogle Scholar
• Bridle , L . 2000 . Confronting the distortions: mothers of children with Down syndrome and prenatal testing. . Interaction , 13 : 26 – 33 .
   Google Scholar
• British Psychological Society 1995 Code of conduct, ethical principles and guidelines Leicester British Psychological Society
   Google Scholar
• Bruce , EJ , Schultz , CL and Smyrnios , KX . 1996 . A longitudinal study of the grief of mothers and fathers of children with intellectual disability. . British Journal of Medical Psychology , 69 : 33 – 45 .
   PubMed Web of Science ®Google Scholar
• Carpenter S Carpenter B Working with families. 1997 In: Carpenter B, ed. Families in context: emerging trends in family support and early intervention 10 17 London David Fulton
   Google Scholar
• Carr J 1995 Down's syndrome: children growing up Cambridge Cambridge University Press
   Google Scholar
• Cunningham , CC . 1996 . Families of children with Down syndrome. . Down Syndrome: Research and Practice , 4 : 87 – 95 .
   Google Scholar
• Davies , BL and Doran , TA . 1982 . Factors in a woman's decision to undergo genetic amniocentesis for advanced maternal age. . Nursing Research , 31 : 56 – 59 .
   PubMed Web of Science ®Google Scholar
• Denayer , L , Evers‐Kiebooms , G , de Boeck , K and van den Berghe , H . 1992 . Reproductive decision making of aunts and uncles of a child with cystic fibrosis: genetic risk perception and attitudes toward carrier identification and prenatal diagnosis. . American Journal of Medical Genetics , 44 : 104 – 111 .
   PubMed Web of Science ®Google Scholar
• Drake , H , Reid , M and Marteau , T . 1996 . Attitudes towards termination for fetal abnormality: comparisons in three European countries. . Clinical Genetics , 49 : 134 – 140 .
   PubMed Web of Science ®Google Scholar
• Drugan A Greb A Johnson MP Krivchenia EL Uhlmann WR Moghissi KS et al. Determinants of parental decisions to abort for chromosome abnormalities. 1990 Prenatal Diagnosis 10 483 490
   PubMed Web of Science ®Google Scholar
• Eagly AH Chaiken S The psychology of attitudes. 1993 Fort Worth Harcourt Brace Jovanovich
   Google Scholar
• Ekwo , EE , Seals , BF , Kim , J‐O , Williamson , RA and Hanson , JW . 1985 . Factors influencing maternal estimates of genetic risk. . American Journal of Medical Genetics , 20 : 491 – 504 .
   PubMed Web of Science ®Google Scholar
• Ekwo , EE , Kim , J‐O and Gosselink , CA . 1987 . Parental perceptions of the burden of genetic disease. . American Journal of Medical Genetics , 28 : 955 – 963 .
   PubMedGoogle Scholar
• Elkins , TE , Stovall , TG , Wilroy , S and Dacus , JV . 1986 . Attitudes of mothers of children with Down syndrome concerning amniocentesis, abortion and prenatal genetic counselling techniques. . Obstetrics and Gynecology , 68 : 181 – 184 .
   PubMedGoogle Scholar
• Evans MI Sobiecki MA Krivchenia EL Duquette DA Drugan A Hume RFJnr et al. Parental decisions to terminate/continue following abnormal cytogenetic prenatal diagnosis: ‘what’ is still more important than ‘when’. 1996 American Journal of Medical Genetics 61 353 355
   PubMedGoogle Scholar
• Evers‐Kiebooms , G , Denayer , L , Decruyenaere , M and van den Berghe , H . 1993 . Community attitudes towards prenatal testing for congenital handicap. . Journal of Reproductive and Infant Psychology , 11 : 21 – 23 .
   Google Scholar
• Fairbrother P 1988 I was the lucky one London Sibs (MENCAP)
   Google Scholar
• Fazio RH Zanna MP Direct experience and attitude–behavior consistency. 1981 In: Berkowitz L, ed. Advances in experimental social psychology 161 202 New York Academic Press
   Google Scholar
• Fazio , RH , Chen , J , McDonel , EC and Sherman , SJ . 1982 . Attitude accessibility, attitude–behaviour consistency, and the strength of the object–evaluation association. . Journal of Experimental Social Psychology , 18 : 339 – 357 .
   Web of Science ®Google Scholar
• Felker , KS . 1994 . Controlling the population: views of medicine and mothers. . Research in Sociology of Health Care , 11 : 25 – 38 .
   Google Scholar
• Furr , LA and Seger , RE . 1998 . Psychosocial predictors of interest in prenatal genetic screening. . Psychological Reports , 82 : 235 – 244 .
   PubMedGoogle Scholar
• Gilligan C 1982 In a different voice: psychological theory and women's development Cambridge Harvard University Press
   Google Scholar
• Green , JM . 1995 . Comment: Decruyenaere et al. ‘Adolescents' opinions about genetic risk information, prenatal diagnosis, and termination of pregnancy’. . Journal of Medical Genetics , 32 : 805
   PubMedGoogle Scholar
• Green , JM , Snowdon , C and Statham , H . 1993 . Pregnant women's attitudes to abortion and prenatal screening. . Journal of Reproductive and Infant Psychology , 11 : 31 – 39 .
   Google Scholar
• Hobdell , EF and Deatrick , JA . 1996 . Chronic sorrow: a content analysis of parental differences. . Journal of Genetic Counseling , 5 : 57 – 68 .
   PubMedGoogle Scholar
• Holmes‐Siedle , M , Ryynänen , M and Lindenbaum , RH . 1987 . Parental decisions regarding termination of pregnancy following prenatal detection of sex chromosome abnormality. . Prenatal Diagnosis , 7 : 239 – 244 .
   PubMed Web of Science ®Google Scholar
• Itzkowitz JS Sisters and brothers of persons with Down syndrome: an intimate look at their experiences. 1995 In: Rosenthal D, ed. Down syndrome: living and learning in the community 67 72 New York Wiley‐Liss
   Google Scholar
• Kramer RL Jarve RK Yaron Y Johnson MP Lampinen J Kasperski SB et al. Determinants of parental decisions after the prenatal diagnosis of Down syndrome. 1998 American Journal of Medical Genetics 79 172 174
   PubMed Web of Science ®Google Scholar
• Lawson , KL . 2001 . Contemplating selective reproduction: the subjective appraisal of parenting a child with a disability. . Journal of Reproductive and Infant Psychology , 19 : 73 – 82 .
   Web of Science ®Google Scholar
• Levine SP The sibling relationship: attending to the needs of the other children in the family. 2002 In: Cohen W. I, Nadel L, Madnick M. E, eds. Down Syndrome: Visions for the 21st Century 163 172 New York Wiley‐Liss
   Google Scholar
• Mansfield , C , Hopfer , S and Marteau , TM . 1999 . Termination rates after prenatal diagnosis of Down syndrome, spina bifida, anencephaly, and Turner and Klinefelter syndromes: a systematic literature review. . Prenatal Diagnosis , 19 : 808 – 812 .
   PubMed Web of Science ®Google Scholar
• Marteau , TM and Dormandy , E . 2001 . Facilitating informed choice in prenatal testing: how well are we doing? . American Journal of Medical Genetics , 106 : 185 – 190 .
   PubMed Web of Science ®Google Scholar
• Marteau TM Johnston M Kidd J Michie S Cook R Slack J et al. Psychological models in predicting uptake of prenatal screening. 1992 Psychology and Health 6 13 22
   Google Scholar
• Marteau , TM , Michie , S , Drake , H and Bobrow , M . 1995 . Public attitudes towards the selection of desirable characteristics in children. . Journal of Medical Genetics , 32 : 796 – 798 .
   PubMed Web of Science ®Google Scholar
• Miller , CH , Hilgartner , MW and Aledort , LM . 1987 . Reproductive choices in hemophilic men and carriers. . American Journal of Medical Genetics , 26 : 591 – 598 .
   PubMedGoogle Scholar
• Norup , M . 1997 . Attitudes toward abortion in the Danish population. . Bioethics , 11 : 439 – 449 .
   PubMedGoogle Scholar
• Pierce GR The Quality of Relationships Inventory: assessing the interpersonal context of social support. 1994 In: Sarason I. G, ed. Communication of social support: messages, interactions, relationships, and community 247 264 Newbury Park CA Sage
   Google Scholar
• Pierce , GR , Sarason , IG and Sarason , BR . 1991 . General and relationship‐based perception of social support: Are two constructs better than one? . Journal of Personality and Social Psychology , 61 : 1028 – 1039 .
   PubMed Web of Science ®Google Scholar
• Pierce , GR , Sarason , BR and Sarason , IG . 1992 . General and specific support expectations and stress as predictors of perceived supportiveness: An experimental study. . Journal of Personality and Social Psychology , 63 : 297 – 307 .
   PubMed Web of Science ®Google Scholar
• Pierce , GR , Sarason , IG , Sarason , BR , Solky‐Butzel , JA and Nagle , LC . 1997 . Assessing the quality of personal relationships. . Journal of Social and Personal Relationships , 14 : 339 – 356 .
   Web of Science ®Google Scholar
• Priest , JH , Fitzgerald , JM , Haag , MM , Streets , K , Vanisko , M and Johnson , JP . 1998 . Acceptance of amniocentesis by women in the state of Montana (USA) who are screen positive for Down's syndrome. . Journal of Medical Screening , 5 : 178 – 182 .
   PubMedGoogle Scholar
• Rees , LM , Spreen , O and Harnadek , M . 1991 . Do attitudes towards person with handicaps really shift over time? Comparison between 1975 and 1988. . Mental Retardation , 29 : 81 – 86 .
   PubMedGoogle Scholar
• Regan , DT and Fazio , RH . 1977 . On the consistency between attitudes and behavior: look to the method of attitude formation. . Journal of Experimental Social Psychology , 13 : 28 – 45 .
   Web of Science ®Google Scholar
• Scotson L 1988 The other child London Collins
   Google Scholar
• Singer , E . 1993 . Public attitudes towards fetal diagnosis and the termination of life. . Social Indicators Research , 28 : 117 – 136 .
   PubMed Web of Science ®Google Scholar
• Singer , E , Corning , AD and Antonucci , T . 1999 . Attitudes towards genetic testing and fetal diagnosis: 1990–1996. . Journal of Health and Social Behaviour , 40 : 429 – 445 .
   PubMed Web of Science ®Google Scholar
• Swerts , A . 1987 . Impact of genetic counseling and prenatal diagnosis for Down syndrome and neural tube defects. . Birth Defects: Original Article Series , 23 : 61 – 83 .
   PubMedGoogle Scholar
• Teel , CS . 1991 . Chronic sorrow: analysis of the concept. . Journal of Advanced Nursing , 16 : 1311 – 1319 .
   PubMed Web of Science ®Google Scholar
• Verp , MS , Bombard , AT , Simpson , JL and Elias , S . 1988 . Parental decision following prenatal diagnosis of fetal chromosome abnormality. . American Journal of Medical Genetics , 29 : 613 – 622 .
   PubMed Web of Science ®Google Scholar
• Wertz DC How parents of affected children view selective abortion. 1992 In: Bequaert Holmes H, ed. Issues in reproductive technology I: an anthology 161 189 New York Garland
   Google Scholar
• Wertz , DC , Rosenfield , JM , Janes , SW and Erbe , RW . 1991 . Attitudes towards abortion among parents of children with cystic fibrosis. . American Journal of Public Health , 81 : 992 – 996 .
   PubMedGoogle Scholar
• Wertz , DC , Janes , SR , Rosenfield , JM and Erbe , RW . 1992 . Attitudes toward the prenatal diagnosis of cystic fibrosis: factors in decision making among affected families. . American Journal of Human Genetics , 50 : 1077 – 1085 .
   PubMed Web of Science ®Google Scholar
• Wishart , JG . 1998 . Development in children with Down syndrome: facts, findings, the future. . International Journal of Disability, Development and Education , 45 : 343 – 363 .
   Google Scholar