Women’s experience of care when undergoing termination of pregnancy for fetal anomaly in England

References

• Antenatal Results and Choices. (2012). A handbook to be given to parents when an anomaly is diagnosed in their unborn baby. London: Antenatal Results and Choices.
   Google Scholar
• Asplin, N., Wessel, S., Marions, L., & Georgsson Öhman, S. (2013). Pregnancy termination due to fetal anomaly: Women’s reactions, satisfaction and experiences of care. Midwifery, 30, 62–67. doi: 10.1016/j.midw.2013.10.013
   Google Scholar
• Boyd, P. A., DeVigan, C., Khoshnood, B., Loane, M., Garne, E., & Dolle, H. (2008). Survey of prenatal screening policies in Europe for structural malformations and chromosome anomalies, and their impact on detection and termination rates for neural tube defects and Down’s syndrome. British Journal of Obstetrics and Gynaecology, 115, 689–696. doi:10.1111/j.1471-0528.2008.01700.x
   Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101. doi:10.1191/1478088706qp063oa
   Google Scholar
• British Psychological Society. (2013). Ethics guidelines for internet-mediated research. Retrieved from http://www.bps.org.uk/system/files/Public%20files/inf206-guidelines-for-internet-mediated-research.pdf
   Google Scholar
• Bryant, A. G., Grimes, D. A., Garrett, J. M., & Stuart, G. S. (2011). Second-trimester abortion for fetal anomalies or fetal death: Labor induction compared with dilation and evacuation. Obstetrics and Gynecology, 117, 788–792. doi:10.1097/AOG.0b013e31820c3d26
   PubMed Web of Science ®Google Scholar
• Chitty, L. S., Hill, M., White, H., Wright, D., & Morris, S. (2012). Non-invasive prenatal testing for aneuploidy – ready for prime time? American Journal of Obstetrics and Gynecology, 206, 269–275. doi:10.1016/j.ajog.2012.02.021
   PubMed Web of Science ®Google Scholar
• Davies, V., Gledhill, J., McFadyen, A., Whitlow, B., & Economides, D. (2005). Psychological outcome in women undergoing termination of pregnancy for ultrasound detected fetal anomaly in the first and second trimesters: A pilot study. Ultrasound in Obstetrics and Gynecology, 25, 389–392. doi:10.1002/uog.1854
   PubMed Web of Science ®Google Scholar
• Department of Health. (2012, then 2013, 2014). Abortion statistics for England and Wales 2011 (then 2012, 2013). Retrieved from https://www.gov.uk/government/publications/abortion-statistics-england-and-wales-2011 (then 2012, 2013).
   Google Scholar
• Fisher, J., Lohr, P. A., Lafarge, C., & Robson, S. C. (2014). Termination for fetal anomaly: Are women in England given a choice of method? Journal of Obstetrics & Gynaecology. doi:10.3109/01443615.2014.94029
   Web of Science ®Google Scholar
• Garel, M., Etienne, E., Blondel, B., & Dommergues, M. (2007). French midwives’ practice of termination of pregnancy for fetal abnormality. At what psychological and ethical cost? Prenatal Diagnosis, 27, 622–628. doi:10.1002/pd.1755
   PubMed Web of Science ®Google Scholar
• Hadjigeorgiou, E., & Coxon, K. (2013). In Cyprus, ‘midwifery is dying…’. A qualitative exploration of midwives’ perceptions of their role as advocates for normal childbirth. Midwifery. Retrieved from http://dx.doi.org/10.1016/j.midw.2013.08.009
   Google Scholar
• Hunt, K., France, E., Ziebland, S., Field, K., & Wyke, S. (2009). ‘My brain couldn’t move from planning a birth to planning a funeral’: A qualitative study of parents’ experiences of decisions after ending a pregnancy for fetal abnormality. International Journal of Nursing Studies, 46, 1111–1121. doi:10.1016/j.ijnurstu.2008.12.004
   PubMed Web of Science ®Google Scholar
• Kelly, T., Suddes, J., Howel, D., Hewison, J., & Robson, S. (2010). Comparing medical versus surgical termination of pregnancy at 13–20 weeks of gestation: A randomised controlled trial. British Journal of Obstetrics and Gynaecology, 117, 1512–1520. doi:10.1111/j.1471-0528.2010.02712.x
   Google Scholar
• Kerns, J., Vanjani, R., Freedman, L., Meckstroth, K., Drey, E. A., & Steinauer, J. (2012). Women’s decision making regarding choice of second trimester termination method for pregnancy complications. International Journal of Gynecology & Obstetrics, 116, 244–248. doi:10.1016/j.ijgo.2011.10.016
   PubMed Web of Science ®Google Scholar
• Kersting, A., Dorsch, M., Kreulich, C., Reutemann, M., Ohrmann, P., Baez, E., & Arolt, V. (2005). Trauma and grief 2–7 years after termination of pregnancy because of fetal anomalies: A pilot study. Journal of Psychosomatic Obstetrics and Gynecology, 26, 9–14. doi:10.1080/01443610400022967
   PubMed Web of Science ®Google Scholar
• Knussen, C., & McFadyen, A. (2010). Ethical issues involved in using Survey Monkey. Retrieved from http://www.google.co.uk/url?url=http://www.gcu.ac.uk/media/gcalwebv2/gsbs/content/downloads/Survey%2520Monkey.doc&rct=j&frm=1&q=&esrc=s&sa=U&ei=1H-6U7KEIaX07AbatYHgCQ&ved=0CBQQFjAA&usg=AFQjCNEnpbYLM9FRUSdK1z7IPzy7KvLcpg
   Google Scholar
• Koponen, K., Laaksonen, K., & Vehkakoski, T. (2013). Parental and professional agency in terminations for fetal anomalies: Analysis of Finnish women’s accounts. Scandinavian Journal of Disability Research, 15, 33–44. Retrieved from http://dx.doi.org/10.1080/15017419.2012.660704
   Google Scholar
• Korenromp, M. J., Page-Christiaens, G. C. M. L., van den Bout, J., Mulder, E. J. H., Hunfeld, J. A. M., Bilardo, C. M., ... Visser, G. H. A. (2005). Long-term psychological consequences of pregnancy termination for fetal abnormality: A cross-sectional study. Prenatal Diagnosis, 25, 253–260. doi:10.1002/pd.1127
   PubMed Web of Science ®Google Scholar
• Korenromp, M. J., Page-Christiaens, G. C. M. L., van den Bout, J., Mulder, E. J. H., Hunfeld, J. A. M., Potters, C. M. A. A., & … Visser, G. H. A. (2007). A prospective study on parental coping 4 months after termination of pregnancy for fetal anomalies. Prenatal Diagnosis, 27, 709–716. doi:10.1002/pd.1763
   PubMed Web of Science ®Google Scholar
• Korenromp, M. J., Page-Christiaens, G. C. M. L., van den Bout, J., Mulder, E. J. H., & Visser, G. H. A. (2007). Maternal decision to terminate pregnancy in case of Down syndrome. American Journal of Obstetrics & Gynecology, 196(149), e1–11. doi:10.1016/j.ajog.2006.09.013
   PubMed Web of Science ®Google Scholar
• Korenromp, M. J., Page-Christiaens, G. C. M. L., van den Bout, J., Mulder, E. J., & Visser, G. H. (2009). Adjustment to termination of pregnancy for fetal anomaly: A longitudinal study in women at 4, 8, and 16 months. American Journal of Obstetrics & Gynecology, 201(160), e1–7. doi:10.1016/j.ajog.2009.04.007
   PubMed Web of Science ®Google Scholar
• Lafarge, C., Mitchell, K., & Fox, P. (2013). Women’s coping with pregnancy termination for fetal abnormality: An interpretative phenomenological analysis of women’s experiences. Qualitative Health Research, 23, 924–936. doi:10.1177/1049732313484198
   PubMed Web of Science ®Google Scholar
• Lewis, C., Hill, M., Silcock, C., Daley, R., & Chitty, L.S. (2014). Non-invasive prenatal testing for trisomy 21: A cross-sectional survey of service users’ views and likely uptake. British Journal of Obstetrics and Gynaecology, 121, 582–594. doi:10.1111/1471-0528.12579
   Google Scholar
• Lyus, R., Robson, S., Parsons, J., Fisher, J., & Cameron, M. (2013). Second trimester abortion for fetal abnormality. British Medical Journal, 347, f4165. doi:10.1136/bmj.f4165
   PubMed Web of Science ®Google Scholar
• McCoyd, J. L. (2007). Pregnancy interrupted: Loss of a desired pregnancy after diagnosis of fetal anomaly. Journal of Psychosomatic Obstetrics & Gynaecology, 28, 37–48. doi:10.1080/01674820601096153
   PubMed Web of Science ®Google Scholar
• McCoyd, J. L. (2009). What do women want? Experiences and reflections of women after prenatal diagnosis and termination for anomaly. Health Care for Women International, 30, 507–535. doi:10.1080/07399330902801278
   PubMed Web of Science ®Google Scholar
• Malik, S. H., & Coulson, N. (2008). The male experience of infertility: A thematic analysis of an online infertility support group bulletin board. Journal of Reproductive and Infant Psychology, 26, 18–30. doi:10.1080/02646830701759777
   Web of Science ®Google Scholar
• Menezes, M. A., Hodgson, J. M., Sahhar, M., & Metcalfe, S. A. (2013). ‘Taking its toll’: The challenges of working in fetal medicine. Birth, 40, 52–60. doi:10.1111/birt.12029
   PubMed Web of Science ®Google Scholar
• The Mid Staffordshire NHS Foundation Trust Public Inquiry. (2013). Report of the Mid Staffordshire NHS Foundation Trust Public Inquiry: Executive summary. London: Stationery Office (Chair: R. Francis). Retrieved from http://www.midstaffspublicinquiry.com/report
   Google Scholar
• Morris, J. K., & Springett, A. (2014). The national Down Syndrome cytogenetic register for England and Wales 2012 annual report. London: Queen Mary University of London, Barts and the London School of Medicine and Dentistry. Retrieved from http://www.binocar.org/content/annrep2012_FINAL.pdf
   Google Scholar
• Nicolaides, K. (2011). A model for a new pyramid of prenatal care based on the 11 to 13 weeks assessment. Prenatal Diagnosis, 31, 3–6. doi:10.1002/pd.2685
   PubMed Web of Science ®Google Scholar
• Nicolaides, K. H., Syngelaki, A., Ashoor, G., Birdir, C., & Touzet, G. (2012). Noninvasive prenatal testing for fetal trisomies in a routinely screened first-trimester population. American Journal of Obstetrics and Gynecology, 207, 374.e1–374.e6. doi:10.1016/j.ajog.2012.08.033
   PubMed Web of Science ®Google Scholar
• Rillstone, P., & Hutchinson, S. A. (2001). Managing the reemergence of anguish: Pregnancy after a loss due to anomalies. Journal of Obstetric, Gynecologic & Neonatal Nursing, 30, 291–298. doi:10.1111/j.1552-6909.2001.tb01547.x
   PubMedGoogle Scholar
• Royal College of Midwives. (2013). Press release: At least a decade before midwife shortage ends. Retrieved from https://www.rcm.org.uk/college/about/media-centre/press-releases/at-least-a-decade-before-midwife-shortage-ends-18-08-132
   Google Scholar
• Royal College of Obstetricians and Gynaecologists. (1996). Termination of pregnancy for fetal abnormality in England, Scotland and Wales: Report of the Royal College of Obstetricians and Gynaecologists Working Party. London: RCOG.
   Google Scholar
• Royal College of Obstetricians and Gynaecologists. (2010). Termination of pregnancy for fetal abnormality in England, Scotland and Wales: Report of a Working Party. London: RCOG.
   Google Scholar
• Sloan, E. P., Kirsh, S., & Mowbray, M. (2008). Viewing the fetus following termination of pregnancy for fetal anomaly. Journal of Obstetric, Gynecologic, & Neonatal Nursing, 37, 395–404. doi:10.1111/j.1552-6909.2008.00260.x
   PubMed Web of Science ®Google Scholar
• Statham, H. (2002). Prenatal diagnosis of fetal abnormality: The decision to terminate the pregnancy and the psychological consequences. Fetal and Maternal Medicine Review, 13, 213–247. Retrieved from http://dx.doi.org/10.1017/S0965539502000414
   Google Scholar
• Statham, H., Solomou, W., & Green, J. M. (2001). When a baby has an abnormality: A study of parents’ experiences. Report to the NHS Executive (Mother and Child Health Initiative) of grant noMCH 4-12. Cambridge: University of Cambridge, Centre for Family Research.
   Google Scholar
• Stillbirth and Neonatal Death Charity. (2013). Post mortem consent package. London: The Stillbirth and Neonatal Death Charity.
   Google Scholar
• United Kingdom National Screening Committee. (2013). Screening in England: Annual report 2011/12. Retrieved from http://www.screening.nhs.uk/publications
   Google Scholar