References
- Anumba, D. O. (2013). Errors in prenatal diagnosis. Best practice & research clinical. Obstetrics & Gynaecology, 27(4), 537–548. https://doi.org/https://doi.org/10.1016/j.bpobgyn.2013.04.007
- Azad, G., Blacher, J., & Marcoulides, G. A. (2013). Mothers of children with developmental disabilities: Stress in early and middle childhood. Research in Developmental Disabilities, 34(10), 3449–3459. https://doi.org/https://doi.org/10.1016/j.ridd.2013.07.009.
- Beighton, C., & Wills, J. (2017). Are parents identifying positive aspects to parenting their child with an intellectual disability or are they just coping? A qualitative exploration. Journal of Intellectual Disabilities, 21(4), 325–345. https://doi.org/https://doi.org/10.1177/1744629516656073
- Costich, J. F. (2006). The Perruche case and the issue of compensation for the consequences of medical error. Health Policy, 78(1), 8–16. https://doi.org/https://doi.org/10.1016/j.healthpol.2005.08.007.
- Crombag, N. M., Vellinga, Y. E., Kluijfhout, S. A., Bryant, L. D., Ward, P. A., Iedema-Kuiper, R., Schielen, P. C., Bensing, J. M., Visser, G. H., Tabor, A., & Hirst, J. (2014). Explaining variation in Down’s syndrome screening uptake: Comparing the Netherlands with England and Denmark using documentary analysis and expert stakeholder interviews. BMC Health Services Research, 14(1), 437. https://doi.org/https://doi.org/10.1186/1472-6963-14-437.
- EUROCAT. (2010). Prenatal screening policies in Europe (Special report). http://www.eurocat-network.eu/content/Special-Report-Prenatal-Screening-Policies.pdf
- EUROCAT. n.d. Overall proportion of cases prenatally diagnosed, 2013–2017. EUROCAT. https://eu-rd-platform.jrc.ec.europa.eu/eurocat/eurocat-data/prenatal-screening-and-diagnosis_en
- Fisher, J., & Lafarge, C. (2015). Women’s experience of care when undergoing termination of pregnancy for fetal anomaly in England. Journal of Reproductive and Infant Psychology, 33(1), 69–87. https://doi.org/https://doi.org/10.1080/02646838.2014.970149
- Giesen, I. (2012). Of wrongful birth, wrongful life, comparative law and the politics of tort law systems. Journal for Contemporary Roman-Dutch Law, 72, 257–273. https://papers.ssrn.com/sol3/papers.cfm?Abstract_id=1424901
- Graungaard, A. H., & Skov, L. (2007). Why do we need a diagnosis? A qualitative study of parents’ experiences, coping and needs, when the newborn child is severely disabled. Child: Care, Health and Development, 33(3), 296–307. https://doi.org/https://doi.org/10.1111/j.1365-2214.2006.00666.x
- Hassan, M., Chitty, L., & Reardon, H. (2014). Wrongful birth: Clinical settings and legal implications. Seminars in Fetal and Neonatal Medicine, 19(5), 312–316. https://doi.org/https://doi.org/10.1016/j.siny.2014.08.006
- Kandel, I., & Merrick, J. (2007). The child with a disability: Parental acceptance, management and coping. The Scientific World Journal, 7, 1799–1809. https://doi.org/https://doi.org/10.1100/tsw.2007.265
- Lafarge, C., Mitchell, K., & Fox, P. (2017). Posttraumatic growth following pregnancy termination for fetal abnormality: The predictive role of coping strategies and perinatal grief. Anxiety, Stress, & Coping, 30(5), 536–550. https://doi.org/https://doi.org/10.1080/10615806.2016.1278433
- Mameri, Q., Fillion, E., & Champenois, B. (2015). Le juge et le diagnostic prénatal depuis la loi du 4 mars 2002. ALTER-European Journal of Disability Research/Revue Européenne De Recherche Sur Le Handicap, 9(4), 331–353. https://doi.org/https://doi.org/10.1016/j.alter.2015.09.004.
- McConnell, D., Savage, A., Sobsey, D., & Uditsky, B. (2015). Benefit-finding or finding benefits? The positive impact of having a disabled child. Disability & Society, 30(1), 29–45. https://doi.org/https://doi.org/10.1080/09687599.2014.984803
- McCoyd, J. L. (2009). What do women want? Experiences and reflections of women after prenatal diagnosis and termination for anomaly. Health Care for Women International, 30(6), 507–535. https://doi.org/https://doi.org/10.1080/07399330902801278
- Moyse, D., & Diederich, N. (2007). Prenatal screening for anomalies: Between clinical finality and selective finality. Scandinavian Journal of Disability Research, 9(3–4), 254–277. https://doi.org/https://doi.org/10.1080/15017410701680597
- Mutuelle d’Assurance des Professionnels de la Santé. (2019). Rapport annuel sur la sinistralité des professions de santé 2018. MACSFhttps://www.macsf.fr/Rapport-annuel-sur-le-risque-medical/risque-des-professions-de-sante
- Nelson Goff, B. S., Springer, N., Foote, L. C., Frantz, C., Peak, M., Tracy, C., … Cross, K. A. (2013). Receiving the initial down syndrome diagnosis: A comparison of prenatal and postnatal parent group experiences. Mental Retardation, 51(6), 446–457. https://doi.org/https://doi.org/10.1352/1934-9556-51.6.446
- Priestley, M. (Ed). (2001). Disability and the life course: Global perspectives. University Press.
- Raposo, V. L. (2017). Wrongful birth and wrongful life actions. The Italian Law Journal, 3, 421–450. http://theitalianlawjournal.it/data/uploads/3-italj-2-2017/pdf-singoli/421-raposo.pdf.
- Santé Publique. (2019). Anomalies et malformations congénitales. Santé Publique https://www.santepubliquefrance.fr/maladies-et-traumatismes/maladies-de-la-mere-et-de-l-enfant/anomalies-et-malformations-congenitales/donnees/#tabs
- Skotko, B. G., Capone, G. T., & Kishnani, P. S. (2009). Postnatal diagnosis of Down syndrome: Synthesis of the evidence on how best to deliver the news. Pediatrics, 124(4), e751–e758. https://doi.org/https://doi.org/10.1542/peds.2009-0480
- Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological approach: Theory, method and research. Sage.
- Van Wyk, N. C., & Leech, R. (2016). Becoming the mother of a child with disabilities: A systematic literature review. Community, Work & Family, 19(5), 554–568. https://doi.org/https://doi.org/10.1080/13668803.2016.1143806
- Ville, I. (2011). Disability policies and perinatal medicine: The difficult conciliation of two fields of intervention on disability. ALTER-European Journal of Disability Research/Revue Européenne De Recherche Sur Le Handicap, 5(1), 16–25. https://doi.org/https://doi.org/10.1016/j.alter.2010.11.002
- Watermeyer, B. (2009). Claiming loss in disability. Disability & Society, 24(1), 91–102. https://doi.org/https://doi.org/10.1080/09687590802535717