660
Views
6
CrossRef citations to date
0
Altmetric
Articles

Living with dementia: using mentalization-based understandings to support family carers

, , & ORCID Icon
Pages 233-247 | Received 25 Feb 2019, Accepted 23 Dec 2019, Published online: 21 Jan 2020

References

  • Allen, J., Fonagy, P., & Bateman, A. (2008). Mentalizing in clinical practice. Washington: American Psychiatric Press.
  • Asen, E., & Fonagy, P. (2017). Mentalizing family violence part 1: Conceptual framework. Family Process, 56(1), 6–21.
  • Balfour, A. (2006). Thinking about the experience of dementia: The importance of the unconscious. Journal of Social Work Practice, 20(3), 329–346.
  • Bateman, A., Campbell, C., Luyten, P., & Fonagy, P. (2017). A mentalization-based approach to common factors in the treatment of borderline personality disorder. Current Opinion in Psychology, 21, 44–49.
  • Bateman, A., & Fonagy, P. (2010). Mentalization-based treatment for borderline personality disorder. World Psychiatry: Official Journal of the World Psychiatric Association (WPA), 9(1), 11–15.
  • Bion, W. R. (1970). Attention and interpretation. London: Tavistock Publications.
  • Birt, L., Griffiths, R., Charlesworth, G., Higgs, P., Orrell, M., Leung, P., & Poland, F. (2019). Maintaining social connections in dementia: A qualitative synthesis. Qualitative Health Research. doi:10.1177/1471301216644114
  • Blandin, K., & Pepin, R. (2017). Dementia grief: A theoretical model of a unique grief experience. Dementia: the International Journal of Social Research and Practice, 16(1), 67–78.
  • Boulanger, G. (2007). Wounded by reality: Understanding and treating adult onset trauma. NJ: Analytic Press.
  • Cairns, M. (2012). In sickness and in health: An exploration of some of the unconscious processes involved in the decision by family caregivers to place a family member with dementia in residential care. Psychoanalytic Psychotherapy, 26(1), 34–47.
  • Chen, C. K., & Bailey, R. W. (2018). Episodic memories of relationship quality, procedural knowledge of attachment scripts, and the experience of daughters caring for a parent with dementia. Dementia: the International Journal of Social Research and Practice, 17(1), 61–77.
  • Cooper, C., Selwood, A., Blanchard, M., Walker, Z., Blizard, R., & Livingston, G. (2009). Abuse of people with dementia by family carers: Representative cross sectional survey. British Medical Journal, 338, b155.
  • Davenhill, R. (2007). Looking into later life: A psychoanalytic approach to depression and dementia in old age. London: Karnac Books.
  • de Vugt, M. E., & Verhey, F. R. (2013). The impact of early dementia diagnosis and intervention on informal caregivers. Progress in Neurobiology, 110, 54–62.
  • Evans, S. (2008). ‘Beyond forgetfulness’: How psychoanalytic ideas can help us to understand the experience of patients with dementia. Psychoanalytic Psychotherapy, 22(3), 155–176.
  • Feast, A., Orrell, M., Charlesworth, G., Melunsky, N., Poland, F., & Moniz-Cook, E. (2016). Behavioural and psychological symptoms in dementia and the challenges for family carers: Systematic review. British Journal of Psychiatry, 208, 429–434.
  • Feast, A., Orrell, M., Russell, I., Charlesworth, G., & Moniz‐Cook, E. (2017). The contribution of caregiver psychosocial factors to distress associated with behavioural and psychological symptoms in dementia. International Journal of Geriatric Psychiatry, 32(1), 76–85.
  • Fonagy, P., & Allison, E. (2014). The role of mentalizing and epistemic trust in the therapeutic relationship. Psychotherapy, 51, 372–380.
  • Fonagy, P., Gergely, G., Jurist, E. L., & Target, M. (2002). Affect regulation, mentalization, and the development of the self. New York: Other Press.
  • Gallagher, E., & Rickenbach, E. H. (2019). Perceptions of couplehood among community-dwelling spousal caregivers. Aging & Mental Health, 1–8. doi:10.1080/13607863.2019.1594168
  • Garner, J. (2004). Dementia. In S. Evans & J. Garner (Eds). Talking over the years: A handbook of dynamic psychotherapy (pp. 215–320). Hove, East Sussex: Brunner-Routledge.
  • Gaugler, J. E., Roth, D. L., Haley, W. E., & Mittelman, M. S. (2011). Modeling trajectories and transitions: Results from the New York University caregiver intervention. Nursing Research, 60(Suppl), S28–S37.
  • Hiel, L., Beenackers, M. A., Renders, C. M., Robroek, S. J., Burdorf, A., & Croezen, S. (2015). Providing personal informal care to older European adults: Should we care about the caregivers’ health? Preventive Medicine, 70, 64–68.
  • Kitwood, T., & Bredin, K. (1992). Towards a theory of dementia care: Personhood and well-being. Ageing & Society, 12(3), 269–287.
  • Lemma, A., Target, M., & Fonagy, P. (2011). Brief dynamic interpersonal therapy: A clinician’s Guide. Oxford: Oxford University Press.
  • Loboprabhu, S., Molinari, V., & Lomax, J. (2007). The transitional object in dementia: Clinical implications. International Journal of Applied Psychoanalytic Studies, 4, 144–169.
  • Long, K. H., Moriarty, J. P., Mittelman, M. S., & Foldes, S. S. (2014). Estimating the potential cost savings from the New York University Caregiver intervention in Minnesota. Health Affairs, 33(4), 596–604.
  • Luengo-Fernandez, R., Leal, J., & Gray, A. (2010). Dementia 2010: The economic burden of dementia and associated research funding in the United Kingdom. Cambridge: Alzheimer’s Research Trust.
  • Malloy, L. (2009). Thinking about dementia–A psychodynamic understanding of links between early infantile experience and dementia. Psychoanalytic Psychotherapy, 23(2), 109–120.
  • McCormack, L., Tillock, K., & Walmsley, B. D. (2017). Holding on while letting go: Trauma and growth on the pathway of dementia care in families. Aging & Mental Health, 21(6), 658–667.
  • McEvoy, P., & Bellass, S. (2017). Using drawings as a reflective tool to enhance communication in dementia care. Nursing Standard, 31(19), 46–52.
  • Mittelman, M. S., Haley, W. E., Clay, O. J., & Roth, D. L. (2006). Improving caregiver wellbeing delays nursing home placement of patients with Alzheimer disease. Neurology, 67(9), 1592–1599.
  • Mittelman, M. S., Roth, D. L., Coon, D. W., & Haley, W. E. (2004). Sustained benefit of supportive intervention for depressive symptoms in caregivers of patients with Alzheimer’s disease. American Journal of Psychiatry, 161(5), 850–856.
  • Morris, L., Mansell, W., Williamson, T., Wray, A., & McEvoy, P. (2018). Communication empowerment framework: An integrative framework to support effective communication and interaction between carers and people living with dementia. Dementia: the International Journal of Social Research and Practice. doi:10.1177/1471301218805329
  • Parkinson, M., Carr, S. M., Rushmer, R., & Abley, C. (2016). Investigating what works to support family carers of people with dementia: A rapid realist review. Journal of Public Health, 39(4), e290–e301.
  • Piiparinen, R., & Whitlatch, C. J. (2011). Existential loss as a determinant to well-being in the dementia caregiving dyad: A conceptual model. Dementia: the International Journal of Social Research and Practice, 10(2), 185–201.
  • Prince, M., Prina, M., & Guerchet, M. (2013). World Alzheimer report 2013: Journey of caring. An analysis of long-term care for dementia. London: Alzheimer’s Disease International.
  • Ramsay-Jones, E. (2015). Careful engagement: Can the work of Ettinger, Klein and Bion help us to understand the relational field in dementia care? Psychodynamic Practice, 21(3), 241–253.
  • Ramsay-Jones, E. (2019). Holding time: Human need and relationships in dementia care. Stanmore: Free Association Books.
  • Reddy, V. (2008). How infants know minds. Cambridge, MA: Harvard University Press.
  • Richardson, J. T., Lee, J. S., Weger, B. M., & Grossberg, T. G. (2013). Caregiver health: Health of caregivers of Alzheimer’s and other dementia patients. Current Psychiatry Reports, 15(367). Available at https://link.springer.com/article/10.1007/s11920-013-0367-
  • Roth, D. L., Fredman, L., & Haley, W. E. (2015). Informal caregiving and its impact on health: A reappraisal from population-based studies. The Gerontologist, 55(2), 309–319.
  • Sabat, S. R. (2018). Alzheimer’s Disease and Dementia: What everyone needs to Know®. New York: Oxford University Press.
  • Santulli, R. B., & Blandin, K. (2015). The emotional journey of the Alzheimer’s family. Lebanon, NH: Dartmouth College.
  • Shai, D., & Fonagy, P. (2014). Beyond words: Parental embodied mentalizing and the parent infant dance. In M. Mikulincer & P. R. Shaver (Eds.), Nature and formation of social connections: From brain to group (pp. 185–203). Washington, DC: American Psychological Association.
  • Stern, D. (2004). The present moment in psychotherapy and everyday life. London: Norton & Company Ltd.
  • Taylor, J. S. (2008). On recognition, caring, and dementia. Medical Anthropology Quarterly, 22(4), 313–335.
  • Tom, S. E., Hubbard, R. A., Crane, P. K., Haneuse, S. J., Bowen, J., McCormick, W., ... Larsen, E. B. (2015). Characterization of dementia and Alzheimer’s disease in an older population: Updated incidence and life expectancy with and without dementia. American Journal of Public Health, 105(2), 408–413.
  • Tschanz, J. T., Piercy, K., Corcoran, C. D., Fauth, E., Norton, M. C., Rabins, P. V., ... Lyketsos, C. G. (2013). Caregiver coping strategies predict cognitive and functional decline in dementia: The Cache County dementia progression study. The American Journal of Geriatric Psychiatry, 21(1), 57–66.
  • World Health Organization. (2012). Dementia: A public health priority. Geneva: Author.
  • Wray, A. (2016). Mechanisms of conflict and aggression in the dementia context. Journal of Language Aggression and Conflict, 4(1), 115–141.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.