Who Shall Decide? The Relevance of Theory and Research to Decision-making by People with an Intellectual Disability

REFERENCES

• Bannerman , D.J. , Sheldon , J.B. , Sherman , A.K. and Harchik , A.E. 1990 . Balancing the right to habilitation with the right to personal liberties: the right of people with developmental disabilities to eat too many doughnuts and take a nap . Journal of Applied Behavior Analysis , 23 : 79 – 89 .
   PubMed Web of Science ®Google Scholar
• Baron , J. 1988 . Thinking and Deciding , Cambridge : Cambridge University Press .
   Google Scholar
• Bell , D.E. , Raiffa , H. and Tversky , A. , eds. 1988 . Decision-making: descriptive, normative, and prescriptive interactions , Cambridge : Cambridge University Press .
   Google Scholar
• Beyer , H.A. and Howell , M.C. 1988 . A question of competency . Exceptional Parent , 18 : 52 – 57 .
   Google Scholar
• Birenbaum , A. and Re , M.A. 1979 . Resettling mentally retarded adults in the community—almost four years later . American Journal of Mental Deficiency , 83 : 323 – 329 .
   PubMedGoogle Scholar
• Boggs , E.M. 1986 . “ Ethics in the middle of life ” . In Ethics of Dealing with Persons with Severe Handicaps: toward a research agenda , Edited by: Docecki , P.R. and Zaner , R.M. Baltimore , MD : Paul H. Brookes . in
   Google Scholar
• Breuning , S.E. , Davis , V.J. and Lewis , J.R. 1981 . Examination of methods of selecting goal directed activities for institutionalized retarded adults . Education and Training of the Mentally Retarded , 16 : 5 – 12 .
   Google Scholar
• Corbin , R.M. 1980 . “ Decisions that might not get made ” . In Cognitive Processes in Choice and Decision Behaviour , Edited by: Wallsten , T.S. Hillsdale , NJ : Erlbaum . in
   Google Scholar
• Drake , R.F. 1992 . Consumer participation: the voluntary sector and the concept of power . Disability, Handicap & Society , 7 : 267 – 278 .
   Google Scholar
• Fischoff , B. , Slovic , P. and Lichtenstein , S. 1980 . “ Knowing what you want: measuring labile variables ” . In Cognitive Processes in Choice and Decision Behaviour , Edited by: Wallsten , T.S. Hillsdale , NJ : Erlbaum . in
   Google Scholar
• Grantham , R.J. and Gordon , M.E. 1986 . The nature of preference . Journal of Counselling and Development , 64 : 396 – 400 .
   Web of Science ®Google Scholar
• Guess , D. , Benson , H.A. and Siegel-Causey , E. 1985 . Concepts and issues related to choice-making and autonomy among persons with severe disabilities . Journal of the Association for Persons with Severe Handicaps , 10 : 79 – 86 .
   Google Scholar
• Hagner , D. and Salomone , P. 1989 . Issues in decision-making for workers with developmental disabilities . Career Development Quarterly , 38 : 148 – 158 .
   Web of Science ®Google Scholar
• Houghton , J. , Bronicki , G.J.B. and Guess , D. 1987 . Opportunities to express preferences and make choices among students with severe disabilities in class room settings . Journal of the Association of Persons with Severe Handicaps , 12 : 18 – 27 .
   Web of Science ®Google Scholar
• Janis , I.L. and Mann , L. 1977 . Decision-making: a psychological analysis of conflict, choice and commitment , New York : Free Press .
   Google Scholar
• Jenkinson , J. , Copeland , C. , Drivas , V. , Scoon , H. and Yap , M-L. 1992 . Decision-making by community residents with an intellectual disability . Australia and New Zealand Journal of Developmental Disabilities , 18 : 1 – 8 .
   Google Scholar
• Jenkinson , J. and Nelms , R. 1993 . Patterns of Decision-making Behaviour in People with an Intellectual Disability: an exploratory study (submitted for publication)
   Google Scholar
• Jiranek , D. and Kirby , N. 1990 . The job satisfaction and/or psychological well-being of young adults with an intellectual disability and nondisabled young adults in either sheltered employment, competitive employment or unemployment . Australia and New Zealand Journal of Developmental Disabilities , 16 : 133 – 148 .
   Google Scholar
• Kaplan , K.H. , Strang , P. and Ahmed , I. 1988 . Dementia, mental retardation, and competency to make decisions . General Hospital Psychiatry , 10 : 385 – 388 .
   PubMed Web of Science ®Google Scholar
• Kehoe , J.F. 1979 . “ Choice time and aspects of choice alternatives ” . In Choice and Perceived Control , Edited by: Perlmuter , L.C. and Monty , R.A. Hillsdale , NJ : Erlbaum . in
   Google Scholar
• Keeney , R.L. 1988 . “ Value-focused thinking and the study of values ” . In Decision-making: descriptive, normative, and prescriptive interactions , Edited by: Bell , D.E. , Raiffa , H. and Tversky , A. Cambridge : Cambridge University Press . in
   Google Scholar
• Kishi , G. , Teelucksingh , B. , Zollers , N. , Park-Lee , S. and Meyer , L. 1988 . Daily decision-making in community residences: a social comparison of adults with and without mental retardation . American Journal of Mental Retardation , 92 : 430 – 435 .
   PubMedGoogle Scholar
• Knowlton , H. , Turnbull , H. , Backus , L. and Turnbull , A. 1988 . “ Letting go: consent and the ‘Yes, but…” problem in transition ” . In Transitions to Adult Life for People with Mental Retardation: principles and practices , Edited by: Ludlow , B.L. , Turnbull , A.P. and Luckasson , R. Baltimore , MD : Paul H. Brookes . in
   Google Scholar
• Lacey , H.M. 1979 . “ Control, perceived control, and the methodological role of cognitive constructs ” . In Choice and Perceived Control , Edited by: Perlmuter , L.C. and Monty , R.A. Hillsdale , NJ : Erlbaum . in
   Google Scholar
• Lockhead , G.R. 1980 . “ Know, then decide ” . In Cognitive Processes in Choice and Decision Behaviour , Edited by: Wallsten , T.S. Hillsdale , NJ : Erlbaum . in
   Google Scholar
• Longhurst , T.M. 1974 . Communication in retarded adolescents: sex and intelligence level . American Journal of Mental Deficiency , 78 : 607 – 608 .
   PubMedGoogle Scholar
• Maier , S.F. and Seligman , M.E.P. 1976 . Learned helplessness: theory and evidence . Journal of Experimental Psychology: General , 105 : 3 – 46 .
   Web of Science ®Google Scholar
• Mann , L. 1985 . “ Decision-making ” . In Australian Psychology: a review of research , Edited by: Feather , N.T. Syndey : Allen & Unwin . in
   Google Scholar
• March , P. 1992 . Do photographs help adults with severe mental handicaps to make choices? . British Journal of Mental Subnormality , 38 : 122 – 128 .
   Web of Science ®Google Scholar
• Mithaug , D.E. and Hanawalt , D.A. 1978 . The validation of procedures to assess prevocational tasks in two severely retarded young adults . Journal of Applied Behavior Analysis , 11 : 153 – 162 .
   PubMed Web of Science ®Google Scholar
• Mithaug , D.E. and Mar , D.K. 1980 . The relation between choosing and working prevocational tasks in two severely retarded young adults . Journal of Applied Behavior Analysis , 13 : 177 – 182 .
   PubMed Web of Science ®Google Scholar
• Monty , R.A. , Geller , E.S. , Savage , R.E. and Perlmuter , L.C. 1979 . The freedom to choose is not always so choice . Journal of Experimental Psychology: Human Learning and Memory , 5 : 170 – 178 .
   Google Scholar
• Parmenter , T.R. , Briggs , L. and Sullivan , R. 1991 . Quality of life: intellectual disabilities and community living . Evaluation Journal of Australia , 3 : 12 – 25 .
   Google Scholar
• Parsons , M.B. and Reid , D.H. 1990 . Assessing food preferences among persons with profound mental retardation: providing opportunities to make choices . Journal of Applied Behavioral Analysis , 23 : 183 – 195 .
   PubMed Web of Science ®Google Scholar
• Parsons , M.B. , Reid , D.H. , Reynolds , J. and Bumgarner , H. 1990 . Effects of chosen task versus assigned jobs on the work performance of persons with severe handicaps . Journal of Applied Behavioral Analysis , 23 : 253 – 258 .
   PubMed Web of Science ®Google Scholar
• Realon , R.E. , Favell , J.E. and Lowerre , A. 1990 . The effects of making choices on the engagement levels of persons who are profoundly multiply handicapped . Education and Training in Mental Retardation , 25 : 299 – 305 .
   Google Scholar
• Schalock , R.L. , Ketth , K.D. , Hoffman , K. and Karan , O.C. 1989 . Quality of life: its measurement and use . Mental Retardation , 27 : 25 – 32 .
   PubMedGoogle Scholar
• Shevin , M. and Klein , N.K. 1984 . The importance of choice-making for students with severe disabilities . Journal of the Association for Persons with Severe Handicaps , 9 : 159 – 166 .
   Google Scholar
• Sigelman , C.K. and Budd , E.C. 1986 . Pictures as an aid in questioning mentally retarded persons . Rehabilitation Counselling Bulletin , 29 : 173 – 181 .
   Web of Science ®Google Scholar
• Stancliffe , R. 1991a . Problems with the assessment of choice based on the opinions of significant others (Unpublished manuscript)
   Google Scholar
• Stancliffe , R. 1991b . “ Choice-making by adults in supported community accommodation: Hobson's choice? ” . In Paper presented at the National Conference of the Australian Society for the Study of Intellectual Disability , Geelong : Victoria .
   Google Scholar
• Stark , J.A. and Goldsbury , T. 1990 . “ Quality of life from childhood to adulthood ” . In Quality of Life: perspectives and issues , Edited by: Schalock , R.L. Washington, DC : American Association on Mental Retardation . in
   Google Scholar
• Steiner , I.D. 1979 . “ Three kinds of reported choice ” . In Choice and Perceived Control , Edited by: Perlmuter , L.C. and Monty , R.A. Hillsdale , NJ : Erlbaum . in
   Google Scholar
• Turnbull , H.R. , Turnbull , A.P. , Bronicki , G.J. , Summers , J.A. and Roeder-Gordon , C. 1989 . Disability and the Family: a guide to decisions for adulthood , Baltimore , MD : Paul H. Brookes .
   Google Scholar
• Tustin , R.D. and Bond , M.J. 1991 . Assessing the ability to give consent to medical and dental procedures . Australia and New Zealand Journal of Developmental Disabilities , 17 : 35 – 47 .
   Google Scholar
• Tversky , A. 1972 . Elimination by aspects: a theory of choice . Psychological Review , 79 : 281 – 299 .
   Web of Science ®Google Scholar
• Tymchuk , A.J. , Andron , L. and Rahbar , B. 1988 . Effective decision-making/problem-solving training with mothers who have mental retardation . American Journal on Mental Retardation , 92 : 510 – 516 .
   PubMedGoogle Scholar
• Tymchuk , A.J. , Cudanes , J. , Franklin , L. and Friedman , J. 1992 . A comparison of the medical, legal and financial decision-making skills of persons with and persons without mental retardation , Los Angeles : University of California, Department of Psychiatry . [Unpublished manuscript]
   Google Scholar
• Tymchuk , A.J. , Yokota , A. and Rahbar , B. 1990 . Decision-making abilities of mothers with mental retardation . Research in Developmental Disabilities , 11 : 97 – 109 .
   PubMed Web of Science ®Google Scholar
• West , M.D. and Parent , W.S. 1992 . Consumer choice and empowerment in supported employment services: issues and strategies . Journal of the Association for Persons with Severe Handicaps , 17 : 47 – 52 .
   Web of Science ®Google Scholar
• Weisz , J. 1982 . “ Learned helplessness and the retarded child ” . In Mental Retardation: the developmental-difference controversy , Edited by: Zigler , E. and Balla , D. Hillsdale , NJ : Erlbaum . in
   Google Scholar
• Wilson , L.J. 1992 . Ethical issues encountered by mental retardation nurses in their direct care service provision , Australia : Monash University . Unpublished master's thesis
   Google Scholar