Do measures of language impairment predict patient‐reported communication difficulty and distress as measured by the Burden of Stroke Scale (BOSS)?Footnote

This work was supported by the VHA Department of Rehabilitation Research and Development Merit Review Program (Project # C2386R), and the VA Pittsburgh Healthcare System's Geriatric Research Education and Clinical Center (GRECC).

The authors wish to acknowledge the contributions of Burden of Stroke Scale (BOSS) Phase 2 Field Trial collaborators, Katherine Ross PhD, VAMC Phoenix, and Julie Wambaugh PhD, VAMC Salt Lake City, the assistance of their respective study team members, Steve Larson MA, Rosalea Cameron MA, and Christina Nessler MA, and the assistance of Mary Ann Oakley and Amy Goda.

REFERENCES

• Agewall , S. M. , Wikstand , J. and Fagerberg , B. 1998 . Stroke was predicted by dimensions of quality of life in treated hypertensive men. . Stroke , 29 : 2329 – 2333 .
   PubMedGoogle Scholar
• Aneshensel , C. S. and Huba , G. J. 1984 . An integrative causal model of the antecedents and consequences of depression over one year. . Research in Community and Mental Health , 4 : 35 – 72 .
   Google Scholar
• Angeleri , F. , Angeleri , V. A. , Foschi , N. , Giaquinto , S. and Nolfe , G. 1993 . The influence of depression, social activity, and family stress on functional outcome after stroke. . Stroke , 24 : 1478 – 1483 .
   PubMed Web of Science ®Google Scholar
• Arvedson , J. C. , McNeil , M. R. and West , T. L. 1986 . Prediction of Revised Token Test overall, subtest, and linguistic unit scores by two shortened versions. . Clinical Aphasiology , 16 : 57 – 63 .
   Google Scholar
• Blazer , D. G. , Burchett , B. , Service , C. and George , L. K. 1991 . The association of age and depression among the elderly: An epidemiological exploration. . Journals of Gerontology: Medical Sciences , 46 : 210 – 215 .
   Web of Science ®Google Scholar
• Blazer , D. G. and Williams , C. 2005 . Epidemiology of depression and dysphoria in an elderly population. . American Journal of Psychiatry , 137 : 439 – 443 .
   Google Scholar
• Bombardier , C. , Ware , J. E. , Russell , I. , Larson , M. , Chalmers , A. and Read , J. L. 1986 . Auranofin therapy and quality of life in patients with rheumatoid arthritis. . American Journal of Medicine , 81 : 565 – 578 .
   PubMed Web of Science ®Google Scholar
• Burke , W. J. , Roccaforte , W. H. and Wengel , S. P. 1991 . The short form of the geriatric depression scale: A comparison with the 30‐item form. . Journal of Geriatric Psychiatry and Neurology , 4 : 173 – 178 .
   PubMedGoogle Scholar
• Cleary , P. , Epstein , A. M. and Oster , G. 1991 . Health related quality of life among patients undergoing precutaneous transluminal coronary angioplasty. . Medical Care , 29 : 939 – 950 .
   PubMed Web of Science ®Google Scholar
• Coates , A. , Gebski , V. and Signorini , D. 1992 . Prognostic value of quality of life scores during chemotherapy for advanced breast cancer. . Journal of Clinical Oncology , 10 : 1833 – 1838 .
   PubMed Web of Science ®Google Scholar
• Connelly , J. E. , Philbrick , J. T. , Smith , G. R. , Kaiser , D. L. and Wymer , A. 1989 . Health perceptions of primary care patients and their influence on healthcare utilisation. . Medical Care , 27 : S99 – S109 .
   PubMed Web of Science ®Google Scholar
• Croog , S. H. , Levine , S. and Testa , M. A. 1986 . The effects of antihypertensive therapy on quality of life. . New England Journal of Medicine , 314 : 1657 – 1664 .
   PubMed Web of Science ®Google Scholar
• Daut , R. L. , Cleeland , C. S. and Flanery , R. C. 1983 . Development of the Wisconsin Brief Pain Questionnaire to assess pain in cancer and other diseases. . Pain , 17 : 197 – 210 .
   PubMed Web of Science ®Google Scholar
• Diener , E. , Suh , E. M. , Lucas , R. E. and Smith , H. L. 1999 . Subjective well‐being: Three decades of progress. . Psychological Bulletin , 125 : 276 – 302 .
   Web of Science ®Google Scholar
• Disimoni , F. G. , Keith , R. L. and Darley , F. L. 1980 . Prediction of PICA overall score by short versions of the test. . Journal of Speech and Hearing Research , 23 : 511 – 516 .
   PubMedGoogle Scholar
• Doyle , P. J. , Hula , W. D. , McNeil , M. R. , Mikolic , J. M. and Matthews , C. T. in press . An application of Rasch analysis to the measurement of communicative functioning. . Journal of Speech‐Language Hearing Research ,
   Google Scholar
• Doyle , P. J. , McNeil , M. R. , Hula , W. D. and Mikolic , J. M. 2003 . The Burden of Stroke Scale (BOSS): Validating patient‐reported communication difficulty and associated psychological distress in stroke survivors. . Aphasiology , 17 : 291 – 304 .
   Web of Science ®Google Scholar
• Doyle , P. J. , McNeil , M. , Mikolic , J. M. , Prieto , L. R. , Hula , W. D. Lustig , A. P. 2004 . The Burden of Stroke Scale (BOSS) provided valid and reliable score estimates of functioning and well‐being in stroke survivors with and without communication disorders. . Journal of Clinical Epidemiology , 57 : 997 – 1007 .
   PubMed Web of Science ®Google Scholar
• Doyle , P. J. 2005 . The Burden of Stroke Scale: Reliability, concurrent validity, and sensitivity to change Manuscript in preparation
   Google Scholar
• Duncan , P. W. , Lai , S. M. , Bode , R. , Perera , S. and DeRosa , J. 2003 . Stroke impact scale‐16: A brief assessment of physical function. . Neurology , 60 : 291 – 296 .
   PubMed Web of Science ®Google Scholar
• Duncan , P. , Lai , S. M. , Wallace , D. , Embretson , S. , Johnson , D. and Studenski , S. 1999 . Stroke impact scale: Version 2.0 , Kansas City, KS : University of Kansas Medical Center .
   Google Scholar
• Enderby , P. , Wood , V. and Wade , D. T. 1987 . Frenchay Aphasia Screening Test , Windsor, , UK : NFER‐Nelson .
   Google Scholar
• Frattali , C. 1998 . “ Measuring modality specific behaviors, functional abilities, and quality of life. ” . In Measuring outcomes in speech‐language pathology , Edited by: Frattali , C . 55 – 88 . New York : Thieme .
   Google Scholar
• Frattali , C. , Thompson , C. K. , Holland , A. L. , Wohl , C. B. and Ferketic , M. M. 1995 . The American Speech‐Language‐Hearing Association functional assessment of communication skills for adults (ASHA FACS) , Rockville, MD : American Speech‐Language‐Hearing Association .
   Google Scholar
• Friedman , L. C. , Brown , A. E. , Romero , C. , Dulay , M. F. and Peterson , L. E. 2005 . Depressed mood and social support as predictors of quality of life in women receiving nursing home health care. . Quality of Life Research , 14 : 1925 – 1929 .
   PubMed Web of Science ®Google Scholar
• Goodglass , H. , Kaplan , E. and Barressi , B. 2001 . The assessment of aphasia and related disorders , 3 , Philadelphia : Lippincott, Williams & Wilkins .
   Google Scholar
• Hilari , K. , Byng , S. , Lamping , D. L. and Smith , S. C. 2003 . Stroke and Aphasia Quality of Life Scale‐39 (SAQOL‐39): Evaluation of acceptability, reliability, and validity. . Stroke , 34 : 1944 – 1950 .
   PubMed Web of Science ®Google Scholar
• Holland , A. L. , Frattali , C. and Fromm , D. 1999 . Communication activities of daily living , 2 , Austin, TX : Pro‐Ed .
   Google Scholar
• Johnson , T. P. 1991 . Mental health, social relations, and social selection: A longitudinal analysis. . Journal of Health and Social Behavior , 32 : 408 – 423 .
   PubMed Web of Science ®Google Scholar
• Kaplan , G. , Barell , V. and Lusky , A. 1988 . Subjective state of health and survival in elderly adults. . Journal of Gerontology: Social Science , : S114 – S120 .
   Google Scholar
• Kertesz , A. 1982 . Western Aphasia Battery , New York : Grune & Stratton .
   Google Scholar
• Likert , R. 1932 . A technique for the measurement of attitudes. . Archives of Psychology , 140 : 5 – 55 .
   Google Scholar
• Lynn , M. W. , Hunter , K. and Harris , R. 1980 . Symptoms of depression and recent life events in the community elderly. . Journal of Clinical Psychology , 36 : 675 – 682 .
   PubMedGoogle Scholar
• Matt , G. E. and Dean , A. 1993 . Social support from friends and psychological distress among elderly persons: Moderator effects of age. . Journal of Health and Social Behavior , 34 : 187 – 200 .
   PubMed Web of Science ®Google Scholar
• McDowell , I. and Newell , C. 1987 . Measuring health: A guide to rating scales and questionnaires , New York : Oxford University Press .
   Google Scholar
• McNeil , M. R. and Prescott , T. E. 1978 . Revised Token Test , Austin, TX : Pro‐Ed .
   Google Scholar
• Mossey , J. M. and Shapiro , E. 1982 . Self‐rated health: A predictor of mortality among the elderly. . American Journal of Public Health , 72 : 800 – 808 .
   PubMed Web of Science ®Google Scholar
• Newsom , J. T. and Schulz , R. 1996 . Social support as a mediator in the relation between functional status and quality of life in older adults. . Psychology and Aging , 11 : 34 – 44 .
   PubMed Web of Science ®Google Scholar
• Patrick , D. L. 2003 . Patient‐Reported Outcomes (PROs): An organizing tool for concepts, measures, and applications. . Quality of Life , 31 : 1 – 5 .
   Google Scholar
• Porch , B. E. 1981 . The Porch Index of Communicative Ability , Palo Alto, CA : Consulting Psychologists Press .
   Google Scholar
• Sherbourne , C. D. and Stewart , A. L. 1991 . The MOS social support survey. . Social Science and Medicine , 32 : 705 – 714 .
   PubMed Web of Science ®Google Scholar
• Stewart , A. L. and Ware , J. E. 1992 . Measuring functioning and well‐being: The medical outcomes study approach , Durham, North Carolina : Duke University Press .
   Google Scholar
• Stewart , L. 1989 . Functional status and well‐being of patients with chronic conditions. Results from the medical outcomes study. . Journal of the American Medical Association , 262 : 907 – 913 .
   PubMed Web of Science ®Google Scholar
• Turner , R. J. 1981 . Social support as a contingency in psychological well being. . Journal of Health and Social Behavior , 22 : 357 – 367 .
   Web of Science ®Google Scholar
• Vidrine , D. , Amick , B. , Gritz , E. and Arduino , R. 2005 . Assessing a conceptual framework of health‐related quality of life in a HIV/AIDS population. . Quality of Life Research , 14 : 923 – 933 .
   PubMed Web of Science ®Google Scholar
• Weissman , M. M. , Sholomskas , D. and John , K. 1981 . The assessment of social adjustment. . Archives of General Psychiatry , 38 : 1250 – 1258 .
   PubMed Web of Science ®Google Scholar
• Wells , K. B. , Manning , W. G. , Duan , N. , Newhause , J. P. and Ware , J. E. 1986 . Socio‐demographic factors and the use of outpatient mental health services. . Medical Care , 24 : 75 – 85 .
   PubMed Web of Science ®Google Scholar
• Williams , L. S. , Weinberger , M. , Harris , L. E. , Clark , D. O. and Biller , J. 1999 . Development of a stroke‐specific quality of life scale. . Stroke , 30 : 1362 – 1369 .
   PubMed Web of Science ®Google Scholar
• Willke , R. J. , Burke , L. B. and Erickson , P. 2004 . Measuring treatment impact: A review of patient‐reported outcomes and other efficacy endpoints in approved product labels. . Controlled Clinical Trials , 25 : 535 – 552 .
   PubMedGoogle Scholar
• Wilson , I. and Cleary , P. 1995 . Linking clinical variables with health related quality of life: A conceptual model of patient outcomes. . Journal of the American Medical Association , 273 : 59 – 65 .
   PubMed Web of Science ®Google Scholar
• World Health Organization . ICF: International classification of functioning, disability, and health , Geneva, WHO
   Google Scholar
• Yellen , S. , Cella , D. , Webster , K. , Bloch , D. E. and Kaplan , E. 1998 . Measuring fatigue and other anaemia‐related symptoms with the Functional Assessment of Cancer Therapy (FACT). . Journal of Pain and Symptom Management , 13 : 63 – 74 .
   Google Scholar