What makes a successful peer-led aphasia support group?

REFERENCES

• Braun , V. and Clarke , V. 2006 . Using thematic analysis in psychology . Qualitative Research in Psychology , 3 : 77 – 101 .
   Google Scholar
• Brown , K. , Davidson , B. , Worrall , L. and Howe , T. 2013 . Making a good time”: The role of friendship in living successfully with aphasia . International Journal of Speech-Language Pathology , 15 ( 2 ) : 165 – 175 . doi: 10.3109/17549507.2012.692814
   PubMed Web of Science ®Google Scholar
• Brown , K. , Worrall , L. , Davidson , B. and Howe , T. 2010 . Snapshots of success: An insider perspective on living successfully with aphasia . Aphasiology , 24 ( 10 ) : 1267 – 1295 . doi: 10.1080/02687031003755429
   Web of Science ®Google Scholar
• Brown , K. , Worrall , L. , Davidson , B. and Howe , T. 2011 . Exploring speech-language pathologists' perspectives about living successfully with aphasia . International Journal of Language & Communication Disorders , 46 ( 3 ) : 300 – 311 . doi: 10.3109/13682822.2010.496762
   PubMed Web of Science ®Google Scholar
• Butow , P. N. , Kirsten , L. T. , Ussher , J. M. , Wain , G. V. , Sandoval , M. , Hobbs , K. M. and Stenlake , A. 2007 . What is the ideal support group? Views of Australian people with cancer and their carers . Psycho-Oncology , 16 : 1039 – 1045 . doi: 10.1002/pon.1172
   PubMed Web of Science ®Google Scholar
• Code , C. , Eales , C. , Pearl , G. , Conan , M. , Cowin , K. and Hickin , J. 2003 . “ Supported self-help groups for aphasic people: Development and research ” . In The sciences of aphasia: From therapy to theory , Edited by: I. Papathanasiou and R. De Bleser . 188 – 200 . Boston , MA : Pergamon .
   Google Scholar
• Code , C. and Petheram , B. 2011 . Delivering for aphasia . International Journal of Speech-Language Pathology , 13 ( 1 ) : 3 – 10 . doi: 10.3109/17549507.2010.520090
   PubMed Web of Science ®Google Scholar
• Coles , R. and Eales , C. 1999 . “ The aphasia self-help movement in Britain: A challenge and an opportunity ” . In Group treatment of neurogenic communication disorders: The expert clinician's approach , Edited by: Elman , R. J. 107 – 114 . Boston , MA : Butterworth-Heinemann .
   Google Scholar
• Croteau , C. and Le Dorze , G. 2006 . Overprotection, “speaking for”, and conversational participation: A study of couples with aphasia . Aphasiology , 20 ( 02–04 ) : 327 – 336 . doi: 10.1080/02687030500475051
   Web of Science ®Google Scholar
• Cruice , M. , Worrall , L. and Hickson , L. 2006 . Quantifying aphasic people's social lives in the context of non-aphasic peers . Aphasiology , 20 ( 12 ) : 1210 – 1225 . doi: 10.1080/02687030600790136
   Web of Science ®Google Scholar
• Davidson , B. , Howe , T. , Worrall , L. , Hickson , L. and Togher , L. 2008 . Social participation for older people with aphasia: The impact of communication disability on friendships . Topics in Stroke Rehabilitation , 15 ( 4 ) : 325 – 340 .
   PubMed Web of Science ®Google Scholar
• Davidson , B. , Worrall , L. and Hickson , L. 2008 . Exploring the interactional dimension of social communication: A collective case study of older people with aphasia . Aphasiology , 22 ( 3 ) : 235 – 257 . doi: 10.1080/02687030701268024
   Web of Science ®Google Scholar
• Goldfarb , R. and Pietro , M. J. S. 2004 . Support systems: Older adults with neurogenic communication disorders . Journal of Ambulatory Care Management , 24 ( 4 ) : 356 – 365 .
   Google Scholar
• Grohn , B. , Worrall , L. E. , Simmons-Mackie , N. and Brown , K. 2012 . The first 3-months post-stroke: What facilitates successfully living with aphasia? . International Journal of Speech-Language Pathology , 14 ( 4 ) : 390 – 400 .
   PubMed Web of Science ®Google Scholar
• Hersh , D. 1998 . Beyond the “plateau”: Discharge dilemmas in chronic aphasia . Aphasiology , 12 ( 3 ) : 207 – 218 .
   Web of Science ®Google Scholar
• Hilari , K. and Northcott , S. 2006 . Social support in people with chronic aphasia . Aphasiology , 20 ( 1 ) : 17 – 36 . doi: 10.1080/02687030500279982
   Web of Science ®Google Scholar
• Hinckley , J. J. 2006 . Finding messages in bottles: Living successfully with stroke and aphasia . Topics in Stroke Rehabilitation , 13 ( 1 ) : 25
   PubMed Web of Science ®Google Scholar
• Hoen , B. , Thelander , M. and Worsley , J. 1997 . Improvement in psychological well-being of people with aphasia and their families: Evaluation of a community-based programme . Aphasiology , 11 ( 7 ) : 681 – 691 .
   Web of Science ®Google Scholar
• Hogan , B. E. , Linden , W. and Najarian , B. 2002 . Social support interventions—Do they work? . Clinical Psychology Review , 22 : 381 – 440 .
   Web of Science ®Google Scholar
• Kerr , J. , Hilari , K. and Litosseliti , L. 2010 . Information needs after stroke: What to include and how to structure it on a website. A qualitative study using focus groups and card sorting . Aphasiology , 24 ( 10 ) : 1170 – 1196 . doi: 10.1080/02687030903383738
   Web of Science ®Google Scholar
• Kitzinger , J. 1994 . The methodology of focus groups: The importance of interactions between research participants . Sociology of Health and Illness , 16 : 103 – 121 .
   Web of Science ®Google Scholar
• Kong , A. P. H. 2011 . Family members' report on speech-language pathology and community services for persons with aphasia in Hong Kong . Disability and Rehabilitation , 33 ( 25–26 ) : 2633 – 2645 .
   PubMed Web of Science ®Google Scholar
• Law , J. , Huby , G. , Irving , A. , Pringle , A. , Conochie , D. , Haworth , C. and Burston , A. 2010 . Reconciling the perspective of practitioner and service user: Findings from The Aphasia in Scotland study . International Journal of Language and Communication Disorders , 45 ( 5 ) : 551 – 560 .
   PubMed Web of Science ®Google Scholar
• Legg , L. , Stott , D. , Ellis , G. and Sellars , C. 2007 . Volunteer Stroke Service (VSS) groups for patients with communication difficulties after stroke: A qualitative analysis of the value of groups to their users . Clinical Rehabilitation , 21 : 794 – 804 . doi: 10.1177/0269215507077301
   PubMed Web of Science ®Google Scholar
• Luck , A. M. and Rose , M. L. 2007 . Interviewing people with aphasia: Insights into method adjustments from a pilot study . Aphasiology , 21 ( 2 ) : 208 – 224 . doi: 10.1080/02687030601065470
   Web of Science ®Google Scholar
• McElroy , T. A. , Davis , A. , Hunt , C. , Dadul , J. , Stanba , T. and Larson , C. 2011 . Navigating a way forward: Using focused ethnography and community readiness to study disability issues in Ladakh, India . Disability and Rehabilitation , 33 ( 1 ) : 17 – 27 . doi: 10.3109/09638288.2010.485670
   PubMed Web of Science ®Google Scholar
• Morris , R. and Morris , P. 2012 . Participants' experience of hospital-based peer support groups for stroke patients and carers . Disability and Rehabilitation , 34 ( 4 ) : 347 – 354 .
   PubMed Web of Science ®Google Scholar
• National Stroke Foundation . 2010 . Clinical guidelines for stroke management , Melbourne , , VI : Author .
   Google Scholar
• Parr , S. 2007 . Living with severe aphasia: Tracking social exclusion . Aphasiology , 21 ( 1 ) : 98 – 123 . doi: 10.1080/02687030600798337
   Web of Science ®Google Scholar
• Patton , M. Q. 2002 . Qualitative research and evaluation methods , 3rd , Thousand Oaks , CA : Sage .
   Google Scholar
• Pound , C. 2011 . Reciprocity, resources, and relationships: New discourses in healthcare, personal, and social relationships . International Journal of Speech-Language Pathology , 13 ( 3 ) : 197 – 206 . doi: 10.3109/17549507.2011.530692
   PubMed Web of Science ®Google Scholar
• Pound , C. , Duchan , J. , Penman , T. , Hewitt , A. and Parr , S. 2007 . Communication access to organisations: Inclusionary practices for people with aphasia . Aphasiology , 21 ( 1 ) : 23 – 38 .
   Web of Science ®Google Scholar
• Rose , T. A. , Worrall , L. E. , Hickson , L. M. and Hoffmann , T. C. 2012 . Guiding principles for printed education materials: Design preferences of people with aphasia . International Journal of Speech-Language Pathology , 14 ( 1 ) : 11 – 23 . doi: 10.3109/17549507.2011.631583
   PubMed Web of Science ®Google Scholar
• Rosenberg , P. P. 1984 . Support groups: A special therapeutic entity . Small Group Research , 15 ( 2 ) : 173 – 186 . doi: 10.1177/104649648401500202
   Web of Science ®Google Scholar
• Royal College of Speech and Language Therapists . 2005 . Royal College of Speech and Language Therapists clinical guidelines , Oxon : Speechmark .
   Google Scholar
• Shadden , B. and Agan , J. 2004 . Renegotiation of identity: The social context of aphasia support groups . Topics in Language Disorders , 24 ( 3 ) : 174 – 186 .
   Web of Science ®Google Scholar
• Sherratt , S. and Hersh , D. 2010 . You feel like family …” Professional boundaries and social model aphasia groups . International Journal of Speech-Language Pathology , 12 ( 2 ) : 152 – 161 . doi: 10.3109/17549500903521806
   PubMed Web of Science ®Google Scholar
• Simmons-Mackie , N. 1998 . A solution to the discharge dilemma in aphasia: Social approaches to aphasia management . Aphasiology , 12 ( 3 ) : 231 – 239 .
   Web of Science ®Google Scholar
• Simmons-Mackie , N. and Damico , J. S. 1999 . Qualitative methods in aphasia research: Ethnography . Aphasiology , 13 ( 9–11 ) : 681 – 687 .
   Web of Science ®Google Scholar
• Simmons-Mackie , N. , Kagan , A. , O'Neill Christie , C. , Huijbregts , M. , McEwen , S. and Willems , J. 2007 . Communicative access and decision making for people with aphasia: Implementing sustainable healthcare systems change . Aphasiology , 21 ( 1 ) : 39 – 66 . doi: 10.1080/02687030600798287
   Web of Science ®Google Scholar
• Stevinson , C. , Lydon , A. and Amir , Z. 2010 . Characteristics of professionally-led and peer-led cancer support groups in the United Kingdom . Journal of Cancer Survivors , 4 : 331 – 338 .
   PubMed Web of Science ®Google Scholar
• Vickers , C. P. 2010 . Social networks after the onset of aphasia: The impact of aphasia group attendance . Aphasiology , 24 ( 6–8 ) : 902 – 913 . doi: 10.1080/0268703090343853
   Web of Science ®Google Scholar