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Original Articles

Aphasia blog talk: How does stroke and aphasia affect a person’s social relationships?

, , &
Pages 1281-1300 | Received 08 Mar 2014, Accepted 23 May 2014, Published online: 19 Jun 2014

REFERENCES

  • Adair, C. E., Marcoux, G., Williams, A., & Reimer, M. (2006). The Internet as a source of data to support the development of a quality-of-life measure for eating disorders. Qualitative Health Research, 16, 538–546. doi:10.1177/1049732305285850
  • Astrom, M., Adolfsson, R., & Asplund, K. (1993). Major depression in stroke patients. A 3-year longitudinal study. Stroke, 24, 976–982. doi:10.1161/01.STR.24.7.976
  • Astrom, M., Adolfsson, R., Asplund, K., & Astrom, T. (1992). Life before and after stroke. Living conditions and life satisfaction in relation to a general elderly population. Cerebrovascular Diseases, 2, 28–34. doi:10.1159/000108984
  • Brown, K., Davidson, B., Worrall, L. E., & Howe, T. (2013). “Making a good time”: The role of friendship in living successfully with aphasia. International Journal of Speech-Language Pathology, 15, 165–175. doi:10.3109/17549507.2012.692814
  • Brown, K., Worrall, L., Davidson, B., & Howe, T. (2010). Snapshots of success: An insider perspective on living successfully with aphasia. Aphasiology, 24, 1267–1295. doi:10.1080/02687031003755429
  • Ch’ng, A. M., French, D., & McLean, N. (2008). Coping with the challenges of recovery from stroke: Long term perspectives of stroke support group members. Journal of Health Psychology, 13, 1136–1146. doi:10.1177/1359105308095967
  • Chau, J. P., Thompson, D. R., Chang, A. M., Woo, J., Twinn, S., Cheung, S. K., & Kwok, T. (2010). Depression among Chinese stroke survivors six months after discharge from a rehabilitation hospital. Journal of Clinical Nursing, 19, 3042–3050. doi:10.1111/j.1365-2702.2010.03317.x
  • Clark, M. S., & Smith, D. S. (1999). Changes in family functioning for stroke rehabilitation patients and their families. International Journal of Rehabilitation Research, 22, 171–180. doi:10.1097/00004356-199909000-00003
  • Cohen, S., & Wills, T. A. (1985). Stress, social support, and the buffering hypothesis. Psychological Bulletin, 98, 310–357. doi:10.1037/0033-2909.98.2.310
  • Cruice, M., & Bunning, K. (2004, July 6–9). An introduction – striving for access and inclusive communities: What does it all mean for the person and the profession? Paper presented at the Presentation at the 11th International Aphasia Rehabilitation Conference, Milos, Greece.
  • Cruice, M., Hill, R., Worrall, L., & Hickson, L. (2010). Conceptualising quality of life for older people with aphasia. Aphasiology, 24, 327–347. doi:10.1080/02687030802565849
  • Cruice, M., Worrall, L., Hickson, L., & Murison, R. (2003). Finding a focus for quality of life with aphasia: Social and emotional health, and psychological well-being. Aphasiology, 17, 333–353. doi:10.1080/02687030244000707
  • Dalemans, R. J., de Witte, L., Wade, D., & van den Heuvel, W. (2010). Social participation through the eyes of people with aphasia. International Journal of Language & Communication Disorders, 45, 537–550. doi:10.3109/13682820903223633
  • Davidson, B., Howe, T., Worrall, L., Hickson, L., & Togher, L. (2008). Social participation for older people with aphasia: The impact of communication disability on friendships. Topics in Stroke Rehabilitation, 15, 325–340. doi:10.1310/tsr1504-325
  • Department of Health. (2007). National stroke strategy. Retrieved from http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_081062
  • Dowswell, G., Lawler, J., Dowswell, T., Young, J., Forster, A., & Hearn, J. (2000). Investigating recovery from stroke: A qualitative study. Journal of Clinical Nursing, 9, 507–515. doi:10.1046/j.1365-2702.2000.00411.x
  • Elman, R., Ogar, J., & Elman, S. (2000). Aphasia: Awareness, advocacy, and activism. Aphasiology, 14, 455–459. doi:10.1080/026870300401234
  • Eysenbach, G., & Till, J. E. (2001). Ethical issues in qualitative research on internet communities. British Medical Journal, 323, 1103–1105. doi:10.1136/bmj.323.7321.1103
  • Figueiredo, M. I., Fries, E., & Ingram, K. M. (2004). The role of disclosure patterns and unsupportive social interactions in the well-being of breast cancer patients. Psychooncology, 13, 96–105. doi:10.1002/pon.717
  • Fleitas, J. (1998). Spinning tales from the world wide web: Qualitative research in an electronic environment. Qualitative Health Research, 8, 283–292. doi:10.1177/104973239800800211
  • Glass, T. A., & Maddox, G. L. (1992). The quality and quantity of social support: Stroke recovery as psycho-social transition. Social Science & Medicine, 34, 1249–1261. doi:10.1016/0277-9536(92)90317-J
  • Haun, J., Rittman, M. R., & Sberna, M. (2008). The continuum of connectedness and social isolation during post stroke recovery. Journal of Aging Studies, 22, 54–64. doi:10.1016/j.jaging.2007.03.001
  • Herbette, G., & Rime, B. (2004). Verbalization of emotion in chronic pain patients and their psychological adjustment. Journal of Health Psychology, 9, 661–676. doi:10.1177/1359105304045378
  • Hilari, K., Byng, S., Lamping, D. L., & Smith, S. C. (2003). Stroke and aphasia quality of life scale-39 (SAQOL-39) evaluation of acceptability, reliability, and validity. Stroke, 34, 1944–1950. doi:10.1161/01.STR.0000081987.46660.ED
  • Hilari, K., Lamping, D. L., Smith, S. C., Northcott, S., Lamb, A., & Marshall, J. (2009). Psychometric properties of the Stroke and Aphasia Quality of Life Scale (SAQOL-39) in a generic stroke population. Clinical Rehabilitation, 23, 544–557. doi:10.1177/0269215508101729
  • Hilari, K., Needle, J. J., & Harrison, K. L. (2012). What are the important factors in health-related quality of life for people with aphasia? A systematic review. Archives of Physical Medicine and Rehabilitation, 93, S86–S95. doi:10.1016/j.apmr.2011.05.028
  • Hilari, K., & Northcott, S. (2006). Social support in people with chronic aphasia. Aphasiology, 20, 17–36. doi:10.1080/02687030500279982
  • Hilari, K., Northcott, S., Roy, P., Marshall, J., Wiggins, R. D., Chataway, J., & Ames, D. (2010). Psychological distress after stroke and aphasia: The first six months. Clinical Rehabilitation, 24, 181–190. doi:10.1177/0269215509346090
  • Hinckley, J. J. (2006). Finding messages in bottles: Living successfully with stroke and aphasia. Topics in Stroke Rehabilitation, 13, 25–36. doi:10.1310/FLJ3-04DQ-MG8W-89EU
  • Howe, T., Davidson, B., Worrall, L., Hersh, D., Ferguson, A., Sherratt, S., & Gilbert, J. (2012). ‘You needed to rehab … families as well’: Family members’ own goals for aphasia rehabilitation. International Journal of Language & Communication Disorders, 47, 511–521. doi:10.1111/j.1460-6984.2012.00159.x
  • Howe, T., Worrall, L., & Hickson, L. (2008). Observing people with aphasia: Environmental factors that influence their community participation. Aphasiology, 22, 618–643. doi:10.1080/02687030701536024
  • Intercollegiate Stroke Working Party. (2012). National clinical guideline for stroke. London: Royal College of Physicians.
  • Keim-Malpass, J., Baernholdt, M., Erickson, J. M., Ropka, M. E., Schroen, A. T., & Steeves, R. H. (2013). Blogging through cancer: Young women’s persistent problems shared online. Cancer Nursing, 36, 163–172. doi:10.1097/NCC.0b013e31824eb879
  • King, R. B., Shade-Zeldow, Y., Carlson, C. E., Feldman, J. L., & Philip, M. (2002). Adaptation to stroke: A longitudinal study of depressive symptoms, physical health, and coping process. Topics in Stroke Rehabilitation, 9, 46–66. doi:10.1310/KDTA-WELC-T2WR-X51W
  • Kirkevold, M., Christensen, D., Andersen, G., Johansen, S. P., & Harder, I. (2012). Fatigue after stroke: Manifestations and strategies. Disability and Rehabilitation, 34, 665–670. doi:10.3109/09638288.2011.615373
  • LeDorze, G., & Brassard, C. (1995). A description of the consequences of aphasia on aphasic persons and their relatives and friends, based on the WHO model of chronic diseases. Aphasiology, 9, 239–255. doi:10.1080/02687039508248198
  • Martire, L. M., Schulz, R., Helgeson, V. S., Small, B. J., & Saghafi, E. M. (2010). Review and meta-analysis of couple-oriented interventions for chronic illness. Annals of Behavioral Medicine, 40, 325–342. doi:10.1007/s12160-010-9216-2
  • Northcott, S., & Hilari, K. (2011). Why do people lose their friends after a stroke? International Journal of Language & Communication Disorders, 46, 524–534. doi:10.1111/j.1460-6984.2011.00079.x
  • Northcott, S., & Hilari, K. (2013). Stroke Social Network Scale: Development and psychometric evaluation of a new patient-reported measure. Clinical Rehabilitation, 27, 823–833. doi:10.1177/0269215513479388
  • Parkes, C. M. (1971). Psycho-social transitions: A field for study. Social Science & Medicine (1967), 5, 101–115. doi:10.1016/0037-7856(71)90091-6
  • Parr, S. (2007). Living with severe aphasia: Tracking social exclusion. Aphasiology, 21, 98–123. doi:10.1080/02687030600798337
  • Parr, S., Byng, S., & Gilpin, S. (1997). Talking about aphasia. Buckingham: Open University Press.
  • Pennebaker, J. W. (2000). Telling stories: The health benefits of narrative. Literature and Medicine, 19, 3–18. doi:10.1353/lm.2000.0011
  • Ressler, P. K., Bradshaw, Y. S., Gualtieri, L., & Chui, K. K. (2012). Communicating the experience of chronic pain and illness through blogging. Journal of Medical Internet Research, 14, e143. doi:10.2196/jmir.2002
  • Rier, D. A. (2007). Internet social support groups as moral agents: The ethical dynamics of HIV+ status disclosure. Sociology of Health & Illness, 29, 1043–1058. doi:10.1111/j.1467-9566.2007.01023.x
  • Ritchie, J., & Spencer, L. (1994). Qualitative data analysis for applied policy research. In A. Bryman & R. Burgess (Eds.), Analysing qualitative data. London: Routledge.
  • Ritchie, J., Spencer, L., & O’Connor, W. (2003). Carrying out qualitative analysis. In J. Ritchie & J. Lewis (Eds.), Qualitative research practice: A guide for social science students and researchers. London: Sage.
  • Robinson, K. M. (2001). Unsolicited narratives from the Internet: A rich source of qualitative data. [Research Support, Non-US Gov’t]. Qualitative Health Research, 11, 706–714. doi:10.1177/104973201129119398
  • Seale, C., Charteris-Black, J., MacFarlane, A., & McPherson, A. (2010). Interviews and internet forums: A comparison of two sources of qualitative data. Qualitative Health Research, 20, 595–606. doi:10.1177/1049732309354094
  • Shadden, B. (2005). Aphasia as identity theft: Theory and practice. Aphasiology, 19, 211–223. doi:10.1080/02687930444000697
  • Stemler, S. E. (2004). A comparison of consensus, consistency, and measurement approaches to estimating interrater reliability. Practical Assessment, Research and Evaluation, 9. Retrieved from http://PAREonline.net/getvn.asp?v=9&n=4
  • Stroebe, M., & Schut, H. (1999). The dual process model of coping with bereavement: Rationale and description. Death Studies, 23, 197–224. doi:10.1080/074811899201046
  • Sumathipala, K., Radcliffe, E., Sadler, E., Wolfe, C. D., & McKevitt, C. (2012). Identifying the long-term needs of stroke survivors using the International Classification of Functioning, Disability and Health. Chronic Illness, 8, 31–44. doi:10.1177/1742395311423848
  • Thoits, P. A. (2011). Mechanisms linking social ties and support to physical and mental health. Journal of Health and Social Behavior, 52, 145–161. doi:10.1177/0022146510395592
  • Townend, B. S., Whyte, S., Desborough, T., Crimmins, D., Markus, R., Levi, C., & Sturm, J. W. (2007). Longitudinal prevalence and determinants of early mood disorder post-stroke. Journal of Clinical Neuroscience, 14, 429–434. doi:10.1016/j.jocn.2006.01.025
  • Tsouna-Hadjis, E., Vemmos, K. N., Zakopoulos, N., & Stamatelopoulos, S. (2000). First-stroke recovery process: The role of family social support. Archives of Physical Medicine and Rehabilitation, 81, 881–887. doi:10.1053/apmr.2000.4435
  • Vickers, C. (2010). Social networks after the onset of aphasia: The impact of aphasia group attendance. Aphasiology, 24, 902–913. doi:10.1080/02687030903438532
  • Worrall, L., Sherratt, S., Rogers, P., Howe, T., Hersh, D., Ferguson, A., & Davidson, B. (2011). What people with aphasia want: Their goals according to the ICF. Aphasiology, 25, 309–322. doi:10.1080/02687038.2010.508530

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